ALS Network

Make sure to visit our website’s News and Stories section, where you can find the latest updates, articles, and personal accounts related to #ALS, as well as information about our community initiatives and the ALS Network Learn more at https://lnkd.in/gHRrjya8.

We invite you to join us for Connect, Support, Chat: For Caregivers of ALS Clients Affected by FTD on Wednesday, July 10 at 3:00 PM HST. For more information and to register via Zoom, please contact Rex Like, MA, ALS Network Care Manager, at rlike@alsnetwork.org

Please visit our website to learn about upcoming activities and events. It is the best way to stay connected and be "in-the-know" about what is happening with the ALS Network, including programs offered online, and in your community! Learn more at https://lnkd.in/g4eKbSMg.

Lo invitamos a unirse a Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, Julio 17 4:00 p.m. Hora del pacífico/01:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy djoy@alsnetwork.org para las instrucciones. Please join us on Wednesday, July 17 at 4:00 PM PDT/1:00 PM HST for Connect, Support, Chat: Spanish Language. Contact Care Manager, Debbie Joy, at djoy@alsnetwork.org for more information about how to participate.

Our July eNewsletter is in your inbox now, or you can view it online! This month, we are inspired by the stories of many individuals in #ourALScommunity, highlight many support options for families touched by #ALS, and celebrate the 20th anniversary of our Napa Valley Ride, Walk & Roll to Cure ALS. Please check our calendar for upcoming events and online connection groups this month. Be sure to visit the News and Stories which serves as a valuable resource for timely updates about ALS, our community, and the ALS Network. Find out about our efforts in ALS research, care services, advocacy, and important news and resources. Read it today and share it with others! https://lnkd.in/gUiGAUWH

It was on July 4, 1939 that the New York Yankees held a “Lou Gehrig Appreciation Day'' in honor of their beloved first baseman. The event marked official farewell to baseball and public disclosure of his #ALS diagnosis, at the age of 36. In honor of the 85th anniversary of that historic day, we are inspired to share more about his story, both before and after his journey with the neurodegenerative disease that bears his name. We are grateful to Major League Baseball (MLB) and Smithsonian Channel for their thoughtful documentary about Lou Gehrig. Read more and watch the documentary at https://lnkd.in/gJh46ivr.

Join us for Adaptive Yoga/Assisted Movement and Guided Meditation on Monday, July 8 at 1:00 PM PDT/10:00 AM HST. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and an adaptive yoga specialist. This class is designed for students with limitation of movement due to ALS. It will include all aspects of yoga, including centering, meditation, visualization, yoga poses, breath work and relaxation. To register and for more information, please contact Care Manager, Sara Holiday at sholiday@alsnetwork.org.

All of us at the ALS Network wish you and your family a Happy #FourthofJuly! On this day, we commemorate not only the Declaration of Independence of the United States, but the contributions that people in #ourALScommunity have made through their military service. Learn more about resources for military personnel and veterans who are living with #ALS at https://lnkd.in/g6UQqMQZ.

Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, July 16 at 4:00 PM PDT/1:00 PM HST. Please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH, at ssonnicksen@alsnetwork.org for more information about how to participate.

Today (7/4) marks the 85th anniversary of New York Yankees longtime first baseman Lou Gehrig’s famous words: “For the past two weeks, you have been reading about a bad break. Yet today I consider myself the luckiest man on the face of the earth.” Please take a moment to watch the archival footage of this iconic speech, courtesy of Major League Baseball (MLB), which still resonates today. Watch the video at https://lnkd.in/geP5R-Ya.