ALS United Greater New York

Who can be diagnosed with ALS? The short answer is that anyone can be diagnosed with the disease, regardless of age, gender, economic background, nationality, or ethnicity. It is estimated that as many as 30,000 Americans have the disease at any given time. Learn more about symptoms, genetic testing, and diagnosis at als-ny.org.

Join ALS United Greater New York and the New York Yankees for a special day at Yankee Stadium on the 85th Anniversary of Lou Gehrig's "Luckiest Man Alive" speech. A portion of every ticket sold through this offer will benefit ALS United Greater New York. Tickets at https://lnkd.in/eMPSua_r

Today is Global ALS/MND Awareness Day. ALS is a disease that impacts people in every country around the globe. Global ALS/MND Awareness Day is observed every June 21 because it represents a turning point. We hope that today will be another turning point in the search for a cause, treatment, and cure for ALS/MND. #ALS #MND

Tomorrow the National Academy of Sciences will share their groundbreaking report about the future of ALS care. You can join the webinar to learn about this new National Academies’ report on Tuesday, June 18, 2024, from 11:00 am to 12:00 pm. Members of the report authoring committee will discuss the report’s key messages and recommendations and will answer questions from the audience about the report. Learn more and register to ask questions at https://bit.ly/NASEMevent #ALSUnited #ALS

The National ALS Registry allows people with ALS to fight back. By signing up, being counted, and answering brief questions about you and your disease, you can help researchers find answers to important questions. The registry has many parts that allow those living with ALS to help advance research. This includes: choosing to receive emails about clinical trials and epidemiological studies, and donating blood, saliva, and urine to the National ALS Biorepository. All Registry information is private. It can only be viewed by Registry-approved scientists. Anyone who registers is not identified by name.

Kristen Cocoman, president and CEO of ALS United Greater New York, said this funding cut would be cruel and devastating. “We are providing items such as communication devices, wheelchairs, all kinds of assistive technology and augmentative equipment,” she said. “We simply just can’t ignore losing a million dollars in funding without drastically reducing some of our services. I’m shocked and disappointed.” We are hopeful the NJ Legislature will reinstate these cuts during the budget negotiations and the governor will pass a budget that keeps our funding.

We are JUMPING with excitement to see you this Sunday at Saddle River County Park in New Jersey for the 3rd WALK ALS of the season! It's not too late to sign up ➡ ALSWALKS.org.

It is hard to believe that ten years ago this July the Ice Bucket Challenge began quietly in Westchester, New York, thanks to Anthony Senerchia and Pat Quinn. In the ten years following, ALS United Greater New York has been able to grow our care service programs. Our financial grants to families grew by a massive 1,500%, six additional local ALS clinics have been added for a total of 10 – a 150% increase, and there was a 115% increase in the number of medical equipment and communication devices we loan free of charge to patients each year! But we are not done yet. With your support today, we can keep up the momentum and build a better tomorrow. https://bit.ly/GNYDonate

We’re excited to participate in the Accelerating Medicines Partnership® Amyotrophic Lateral Sclerosis (AMP® ALS) program, along with the Foundation for the National Institutes of Health, NIH’s National Institute of Neurological Disorders and Stroke (NINDS), and industry and non-profit partners to accelerate progress in ALS research. Our objectives are clear: expedite and enable discovery and development of diagnostic tools, biomarkers, and new treatments. Learn more about AMP ALS, the largest public-private partnership of its kind to combat this devastating disease. #AMPALS #ALS #MND #BridgesToBreakthroughs #ALSUnited

Tomorrow and Friday! Join ALS United Greater New York for our Fourth Annual Virtual Education and Resource Summit: Navigating the ALS Journey on May 16 and 17, 2024. The event is FREE and open to the entire ALS community. Registration for this event is required. https://lnkd.in/e-dYQhEr For more information, please contact events@als-ny.org. Thank you to our Silver Sponsor, Mitsubishi Tanabe Pharma America for their support!