ALS Northwest

Thank you to Joel Carson and Firehouse PDX for their dedicated support of our mission over several years! Consider joining the restaurant for a BBQ Extravaganza this Sunday, July 14, which includes a raffle for ALS Northwest, yard games, cheap eats, and frozen drinks.

ALS Northwest is hosting ALS Ice Bucket Challenge: 10-Year Anniversary Celebration. Join us on August 10th, 2024.

All are welcome at this no-cost community gathering in commemoration of the 2014 ALS Ice Bucket Challenge. The campaign inspired people worldwide and pushed ALS research to the next level. Join us and learn more about what we continue to do to push ALS research forward a decade later. Tobias Read, Oregon State Treasurer and ALS Champion, serves as emcee.

Looking for fun way to build camaraderie while supporting a great cause? Bring your whole team out to Mt. Angel on Saturday, July 13 for ALS Northwest’s annual ride, 2024 Beers and Gears (formerly known as Ride to Defeat ALS). It’s more than just a day on the route; it’s a celebration of our community! Three incredible local breweries and food await you at the finish line. Plus, enjoy cornhole, giant Jenga, ladder ball, and more games all afternoon. Guests are more than welcome with a reduced registration fee, so invite your whole family and bring a friend. See you at the finish line!

Registration is officially open for our annual Gala! Join us in your finest cocktail attire and be part of our mission to #EndALS. Secure your ticket now: https://lnkd.in/ghgsT4Vu

We have a few employee anniversary milestones to celebrate! ��� 🧡 Christina Riddock is our Central Oregon Care Services Coordinator, and has now helped facilitate direct services to people living with ALS and their families throughout Oregon for the past five years. 💻 Catherine Hodges, our dedicated Data and Administrative Coordinator, excels at database administration and has now spent three years supporting our programs in this vital role. 📝 Maggie Pimm has been our Bookkeeper and Operations Coordinator extraordinaire for 12 years! Maggie is the lifeblood that keeps our office running smoothly, and we're grateful for her many years of committed service.

Sharing some highlights from the ALS Northwest PDX Walk event that I shot earlier this month. The day was filled with wind, rain, loved ones, warriors and incredible stories 💪🏼🌦️ Thank you ALS Northwest for having me out and Jamie Goodwick for the referral🤝🏼

The release of the National Academy of Sciences report "Living with ALS" marks a significant step in the discussion about ALS care and research. ALS Northwest appreciates everyone's involvement and looks forward to the collaborative efforts to come. #ALSAdvocacy #ALSUnited #TogetherWeEndALS https://lnkd.in/g8dq_gDK

Advocacy at work! ALS Northwest alongside many ALS organizations lobbied Congress to allocate funds to study ALS and raise the profile of the disease amongst the research community. The result was a National Academy of Science study: Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life. This collaborative effort by academia, government, industry, nonprofits and people living with ALS aims to be a road map to advancing new therapies and better quality of life for people with ALS. Join the National Academy of Sciences Webinar sharing the report on June 18th, 2024. Register for the webinar at https://lnkd.in/gTftHmAW

As proud members of ALS United, we're excited to support the Accelerating Medicines Partnership (AMP) ALS Project managed by Foundation for the National Institutes of Health, thanks to the unwavering dedication of our supporters nationwide. This innovative initiative highlights the crucial role of collaboration between public and private organizations in advancing ALS research. By developing a central ALS Knowledge Platform and identifying new therapeutic targets, we’re making significant strides towards addressing the urgent unmet needs of individuals living with ALS. Together, we’re not just envisioning progress—we’re actively forging a path towards a brighter future for the ALS community. #ALSResearch #EndALS #ALSUnited #AMPALS #ALS #MND #BridgesToBreakthroughs https://lnkd.in/eYdiyXwQ