🚀 Unleashing #AI's potential for rare disease treatment: Dr. David Fajgenbaum, MD, MBA, MSc reveals the innovative work of Every Cure, a pioneering nonprofit harnessing the vast realm of medical knowledge to unveil potential treatments for #RareDisease patients with artificial intelligence. 🎙️ During the UCSF Rare Disease Symposium, our President Dr. James Levine interviewed Dr. Fajgenbaum about leveraging AI algorithms for drug repurposing and evaluating the efficacy of every FDA-approved drug against every rare disease. Watch the full interview 👉 https://lnkd.in/egXRCkSe
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🎭 Simon Callow, the famous British actor, performed a striking piece of Dickens' "The Pickwick Papers" during an event to raise awareness on #lymphoedema! #RareDisease #RareDiseaseAwareness #SimonCallow
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📚 What if children's books could change the world? At Educap City, we distributed children's books that open doors to conversations about rare diseases, inclusivity, and disability. Discover our free book collection 👉 https://lnkd.in/dqG7uDP #ChildrensBooks #Books #RareDiseases #Disability #Inclusivity
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👇 Learn about the crucial role of the FDA's accelerated approval pathway in providing #PatientAccess to innovative treatments for rare diseases. 💡 🎙 Amazing insights from Thayer Surette Roberts, Senior Vice President at Thorn Run Partners at the #LivingRareForum! #RareDisease #RareDiseaseAwareness
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🗞️ Céline Colombier-Maffre, our editorial manager, presents the mission of So In magazine for an inclusive society: celebrating #diversity and highlighting simple initiatives to build a more inclusive world. 👉 Download your free copy on our website: https://lnkd.in/e8WPX2Q8 #InclusionMatters #Diversity #Inclusion #Solidarity #Disability #RespectDiversity #UnitedForInclusion #SocialInclusion
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📸 Last week, we attended EDUCAP CITY, an incredible event promoting civic values, #inclusion and #disability awareness for children aged 8-14. 🌍 We were delighted to share our knowledge about genetics and rare diseases with over a thousand children. Together, let's build a world of empathy and inclusion! #InclusionMatters #EDUCAPCITY CAPSAAA Paris #RareDiseaseAwareness #Diversity
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📚 Today is World Sickle Cell Awareness Day 🩸#SickleCellDisease is an illness that affects red blood cells. Billions of red blood cells continuously circulate throughout the body. These cells transport oxygen from the lungs to the muscles, organs, and other tissues. Oxygen is used as a source of energy to keep warm, strengthen, and ensure the proper functioning of the body. But in the case of sickle cell disease, the body doesn't have enough healthy red blood cells to carry oxygen throughout the body. 👉 Discover our free book on World Sickle Cell: https://lnkd.in/e2n9bzqV
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🎬 "Maybe by telling my story, it would make it a little easier for someone else to tell theirs". 🎥 During the National Organization for Rare Disorders's #LivingRareForum, Miles Levin told his story of using art to defeat stigma surrounding #epilepsy through his movie #UndertheLight. #RareDisease #RareDiseaseAwareness #PatientAdvocacy
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⭐️ We are thrilled to share a mesmerizing moment from a recent Lymphoedema Awareness Event featuring the legendary Dame Judi Dench. 🎭 Her recitation of Shakespeare was particularly moving. A heartfelt thank you to Dame Judi for her support in raising awareness for #lymphoedema. #RareDisease #RareDiseaseAwareness #DameJudiDench
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🎙️How can we make the #RareDisease community a more welcoming space for minorities? 👉 During the National Organization for Rare Disorders's #LivingRareForum, we were particularly inspired by the testimony and insights of Georgene' Glass from the Dreamsickle Kids Foundation,Inc on the topic of #healthequity.
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🤔 Why is #lymphoedema so misunderstood? 🔬 Professor Peter Mortimer, a leading dermatologist at St George's University Hospitals NHS Foundation Trust, explains how the invisibility of the lymphatic system results in poor understanding, inadequate scientific training, and frequent #misdiagnoses. #RareDiseaseAwareness #RareDisease
