Fondation Ipsen

🌍 Rare, but not alone Did you know this hashtag #RareDisease fact? 👉 For more information and resource on rare diseases: https://lnkd.in/daA33zc

We launched our newest manga, Summer Games 2024, today at the vibrant Paris Japan Expo! 🔥 In an incredible blend of talent, 22 para-athletes teamed up with 22 manga artists to create a captivating story that highlights the 22 disciplines of the Paris 2024 Paralympic Games. 🏅🌟 The #JapanExpo cosplayers couldn't help but join the fun and grab a copy! Find the manga for free on our website👉: https://lnkd.in/emwq2vPe #Paralympics #Parasports #Manga Gwendoline Simon Céline Colombier-Maffre

#BehindTheScenes 🎥 We’re thrilled to give you a sneak peek of our latest webinar with AAAS and Science Magazine! Through these webinars, we aim to give a voice to both patients and international experts to explore the complexities of rare diseases.🔬 Find the latest webinar on our website: https://lnkd.in/eaSZ_6Ei and stay tuned for clips on our social media! #RareDisease #Webinar

📑 "We are the keepers of our own information, or our child's information" 💡 At the #LivingRareForum by National Organization for Rare Disorders, Jennifer Shumsky, shared important wisdom for #RareDisease patients.

🎭 Simon Callow, the famous British actor, performed a striking piece of Dickens' "The Pickwick Papers" during an event to raise awareness on #lymphoedema! #RareDisease #RareDiseaseAwareness #SimonCallow

📚 What if children's books could change the world? At Educap City, we distributed children's books that open doors to conversations about rare diseases, inclusivity, and disability. Discover our free book collection 👉 https://lnkd.in/dqG7uDP #ChildrensBooks #Books #RareDiseases #Disability #Inclusivity

👇 Learn about the crucial role of the FDA's accelerated approval pathway in providing #PatientAccess to innovative treatments for rare diseases. 💡 🎙 Amazing insights from Thayer Surette Roberts, Senior Vice President at Thorn Run Partners at the #LivingRareForum! #RareDisease #RareDiseaseAwareness

🗞️ Céline Colombier-Maffre, our editorial manager, presents the mission of So In magazine for an inclusive society: celebrating #diversity and highlighting simple initiatives to build a more inclusive world. 👉 Download your free copy on our website: https://lnkd.in/e8WPX2Q8 #InclusionMatters #Diversity #Inclusion #Solidarity #Disability #RespectDiversity #UnitedForInclusion #SocialInclusion

📸 Last week, we attended EDUCAP CITY, an incredible event promoting civic values, #inclusion and #disability awareness for children aged 8-14. 🌍 We were delighted to share our knowledge about genetics and rare diseases with over a thousand children. Together, let's build a world of empathy and inclusion! #InclusionMatters #EDUCAPCITY CAPSAAA Paris #RareDiseaseAwareness #Diversity

📚 Today is World Sickle Cell Awareness Day 🩸#SickleCellDisease is an illness that affects red blood cells. Billions of red blood cells continuously circulate throughout the body. These cells transport oxygen from the lungs to the muscles, organs, and other tissues. Oxygen is used as a source of energy to keep warm, strengthen, and ensure the proper functioning of the body. But in the case of sickle cell disease, the body doesn't have enough healthy red blood cells to carry oxygen throughout the body. 👉 Discover our free book on World Sickle Cell: https://lnkd.in/e2n9bzqV