ALS Network

Our 3rd annual Central Coast Ride & Rally to Cure ALS is just one month away on Saturday, August 24. Join us for the cycling and scenery, along with the camaraderie as we start and finish at Bang the Drum Brewery. Proceeds from the Central Coast Ride & Rally to Cure ALS events will provide critical funding for the ALS Network's urgent mission priorities related to #ALS care services, public policy initiatives, and cutting-edge research. Register and/or make a gift today at alsridecentralcoast.org.

Please join us on Monday, July 22 at 1:00 PM PDT/10:00 AM HST for Connect, Support Chat: Veterans with ALS. This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Kathleen Kelsey, RCP at kkelsey@alsnetwork.org for more information on how to participate.

Our 2nd annual Big Island Walk & Roll to Cure ALS is just one month away on Sunday, August 18! Proceeds from the Big Island Walk & Roll to Cure ALS will provide critical funding for the ALS Network's urgent mission priorities related to #ALS care services, public policy initiatives, and cutting-edge research. Funds raised in Hawaii are used to support our Hawaii programs and services. Sign up and/or make a gift today at alswalkbigisland.org.

We invite you to join us for Connect, Support, Chat: Familial ALS on Tuesday, July 16, 2:00 PM PDT/11:00 AM HST. For more information and to register via Zoom, please contact Cynthia Marks, RT, ALS Network Care Manager at cmarks@alsnetwork.org.

Lo invitamos a unirse a Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, Julio 17 4:00 p.m. Hora del pacífico/01:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy djoy@alsnetwork.org para las instrucciones. Please join us on Wednesday, July 17 at 4:00 PM PDT/1:00 PM HST for Connect, Support, Chat: Spanish Language. Contact Care Manager, Debbie Joy, at djoy@alsnetwork.org for more information about how to participate.

Join us for Connect, Support, Chat: LGBTQ+ on Tuesday, July 16 at 1:00 PM PDT/10:00 AM HST. All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. Please feel free to contact group facilitator Daniel Potapshyn via phone, email, or text for information on how to attend via Zoom and to receive monthly reminder emails: 707-861-0257; dpotapshyn@alsnetwork.org.

It is officially Summer and it's a perfect time to create a FUNdraiser in support of the ALS Network's mission and #ourALScommunity! Tag us (@youralsnetwork) in any social posts and join us to #cureALStogether. Learn more about how you can create your own do-it-yourself (DIY) FUNdraising page at diy.alsnetwork.org.

It's always the right time to plan for your future and the people and causes you care most about. Whether you are interested in securing your family’s financial future, reducing your taxable income, protecting your retirement assets, gifting assets in support of #ourALScommunity, or “all of the above,” our free Estate Planning Guide is a helpful tool. Please contact Mike Welling, our Senior Director of Planned Giving, at mwelling@alsnetwork.org, for more information about estate planning and legacy plans.

FUN FACT: Did you know that today is #NationalFrenchFryDay?! Summer is a great time to get creative and host a unique DIY fundraising event, like a french fry social, in support of #ourALScommunity and ALS Network’s mission. Learn more about how YOU can create your own do-it-yourself (DIY) FUNdraising page this summer at diy.alsnetwork.org. Be sure to tag us (ALS Network) and let’s #cureALStogether!

Meet Jim Obergefell, ALS advocate and inspirational figure within #ourALScommunity. The ALS Network shares the love story of Jim and his partner, John Arthur, who lived with #ALS, and how they fueled a historic human rights victory for marriage equality and continues to power ALS advocacy today. Learn more at https://lnkd.in/g5CKdhzu.