Call for abstracts! 📣 Share your research at the 35th International Symposium on #ALS #MND! Submit your abstract for the chance to present your work at the largest conference dedicated to ALS/MND. 📆 Deadline: 11 July More details: https://lnkd.in/ebx9zXs4 #alsmndsymp
Motor Neurone Disease (MND) Association
Non-profit Organizations
Focused on improving access to care, research and campaigning for people affected by MND in England, Wales, N. Ireland.
About us
The Motor Neurone Disease (MND) Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. Since then, we have grown considerably with an ever-increasing community of volunteers, supporters and staff, all sharing the same goal - to support people with MND and everyone who cares for them, now and in the future. We have over 10,000 members forming a powerful network that provides information and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments, and thus bringing us closer to a cure. We campaign and raise awareness so the needs of people with MND are recognised and addressed by wider society and decision makers. People with MND, their families and carers are at the heart of everything we do.
- Website
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http://www.mndassociation.org
External link for Motor Neurone Disease (MND) Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Northampton
- Type
- Nonprofit
- Founded
- 1979
- Specialties
- Research, Care, Information, Campaigning, Education on MND, MND, Fundraising, Support, Charity, and Motor Neurone Disease
Locations
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Primary
Get directions
Francis Crick House
6, Summerhouse Road, Moulton Park
Northampton, NN3 6BJ, GB
Employees at Motor Neurone Disease (MND) Association
Updates
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On 15 June, Patrick Backhouse ran over 100km from Reading to Battersea and raised £12,338 for the Association. 🧡💙 Inspired by his father, who is living with MND, Patrick invited everyone to support him along the route. "Since my Dad's diagnosis, the support from the MND Association, NHS, family, and friends has been incredible." Support Patrick and the team 👇 https://lnkd.in/eJ2THseB
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The MND Guarantee, our campaign for the 2024 General Election, has been signed by 367 candidates so far! ✍ The numbers we’ve reached are fantastic and the MND Association would like to thank every supporter who has taken part - and it’s not too late to get involved. With a week before the General Election, there’s still time to ask prospective MPs in your constituency to sign the MND Guarantee: https://lnkd.in/e5PHjFcm
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Join us as a sponsor or exhibitor at the world’s largest and most established conference dedicated to #MND research. 📍 Montreal, Canada 📆 6-8 December 2024 Reserve your package today: https://lnkd.in/eGfAWKwF #AlsMndSymp #MndResearch #AlsResearch
International Symposium on ALS/MND
https://symposium.mndassociation.org
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According to a recent MND Association survey, nearly a quarter of carers of those with MND have gone into debt to cover care-giving costs. Absolutely no one should face financial difficulty because of caring. Please complete our simple e-action and make sure the next Government prioritise MND. Visit mndassociation.org/eaction.
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Today is #GlobalMNDAwarenessDay, a day to come together and raise awareness of motor neurone disease. • 6 people will be diagnosed today • 6 people will die today • It has NO cure Today, help us ensure that at least one extra person in your network knows about #MND.
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On Sunday, Nick, who is living with MND, began an epic challenge: cycling 444 miles from Suffolk to Sennen, Cornwall. 🧡💙 He's aiming to raise £50,000 for the MND Association, Challenging MND, and the My Name'5 Doddie Foundation. Diagnosed with MND last June after years of symptoms, Nick shared, "My diagnosis has prompted me to ‘do more in ‘24’." He’ll use an E-assist recumbent tricycle and hopes to complete the challenge on Saturday. Good luck, Nick! 🎉 Visit Nick's fundraising page: https://lnkd.in/e8W64mDG
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This #CarersWeek we want to highlight some of the brilliant people caring for loved ones with #MND. 💙🧡 Gareth cares for his wife, Sarah, who was diagnosed in December 2023. On having difficult discussions with their two children, he shared, "I told them both that any feeling is valid, whether they’re angry, fearful or sad and none of them are wrong." "There’s a lot of pressures. I don’t want to feel I am letting anyone down. It’s juggling so many different things, not just care." Read Gareth's full story here: https://lnkd.in/ecG_Mpma
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We’re deeply saddened to learn of the death of our patron Rob Burrow CBE. Rob lived with motor neurone disease in the public eye after choosing to announce his diagnosis in 2019. We will be forever grateful to Rob. Sharing his journey with this disease inspired so many people both within the MND community and the wider public. Our thoughts today are with Rob’s wife Lindsey, children Macy, Maya and Jackson, family, friends and the rugby league community.
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More than 80 #TeamMND cyclists participated in RideLondon this past weekend, raising over £59,700! A heartfelt thank you from the entire MND community. 🧡💙 Find your next fundraising challenge: https://lnkd.in/gM7hwrNd
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