Our VISION: A World Free of ALS/MND. The Alliance is a global network of ALS/MND associations informed by people living with ALS and their Caregivers (PALS/CALS), that builds capability for its members and connects to external stakeholders. The Alliance is an enabler of global collaboration and we: • Include underrepresented communities, • Adhere to the principles of Open Science, and, • Break down silos in research, care and advocacy!
External link for The International Alliance of ALS/MND Associations
Francis Crick House
6 Summerhouse Road, Moulton Park
Northampton, NN3 6BJ, GB
Are you an early career #MND #ALS researcher? Interested in science communication? Attending #alsmndsymp? Apply to be a Symposium Communications Ambassador and help Motor Neurone Disease (MND) Association share research from the largest conference dedicated to ALS/MND! More info: https://lnkd.in/ebXyQrdq
Thank you Google for acknowledging the work done in Latin America by the Alliance. Special mention for Orlando Ruiz and Jessica Mabe #ALSMNDWithoutBorders
it's not everyday that you get a shout out from Google! Thank you! Orlando Ruiz Jessica Mabe
🧬 The fight to win the fight against ALS/MND happens daily on an international scale. Psychologist Marcela Santos shares the strength gained when people come together for a cause, like at our annual conference, and share ideas. The volume of learning that takes place means there’s always a lot to take home! 📺 Watch the video to hear why she’ll be coming back in 2024. Then we hope you too will join us too in Montreal, Canada, this December 4-5, 2024: https://ow.ly/5bs750RY8oj
Did you know 1 in 3 people could benefit from rehabilitation services? But many don’t get this chance. Let's talk about how Health Policy and Systems Research for rehabilitation can make a difference! The Alliance is a proud member of the World Rehabilitation Alliance, a WHO global network of stakeholders whose mission is to support the implementation of the Rehabilitation 2030 Initiative through advocacy activities.
🌐 The Global Clinic Locator is now available on the Alliance website, and we invite you to contribute! 🌐 The Alliance is proud to offer the ALS/MND global clinic locator to our community, thanks to the wonderful work of The Mappers. 🗺️ Our goal with this tool is to help you find ALS/MND clinics around the world, with the specialties they offer, in the hopes of increasing access to care. 🏥 Especially for people living with ALS/MND and their caregivers, this tool makes it easier to identify and contact the nearest clinic. ❤️ 🔗 https://ow.ly/Wk7950SkRXr
Applications are open for the 2024 Patient Fellows Program - the deadline is this Friday, June 28! https://ow.ly/XPBo50SbJXC This program provides the following for people diagnosed with ALS/MND, caregivers and ALS/MND gene carriers: - Registration for the MND Association’s International Symposium on ALS/MND (virtual or in person) – December 6-8, 2024 - Access to valuable networking opportunities with fellow patients and researchers - Limited assistance with hotel and travel expenses (for in-person attendees) during the International Symposium – December 6-8 - Optional registration for the International Alliance’s conferences (virtual or in person) – December 2-5, 2024 Please help us spread the word about this opportunity to everyone in the ALS/MND community by sharing it with your network!
We may be wrapping up this year’s Global ALS/MND Awareness Day, but the fight continues. And it takes a community. 🌍💪 THANK YOU to all who have helped the Alliance for more than 3 decades! Together, we're making a difference. ✨🤝 #ALSMNDWithoutBorders