My first Father's Day had some mixed emotions for me:
Last weekend we buried my 66 year old uncle after he contracted
an incurable, incredibly rare brain disease called, CJD, Creutzfeldt
Jakob Disease. One to two people out of every million people get
diagnosed with CJD each year (400-500 deaths annually). The
disease was so progressive and my uncle declined so rapidly that
he was in hospice by the third month since the onset of symptoms.
My uncle had such an impact on my life so I’m going to do my best
to honor him as so many did last weekend via a celebration of his life.
He was an extremely loving husband, father, brother, and
friend. He was a successful business man who built himself from
nothing and was incredibly philanthropic. He was an all around
amazing human being, and did his best to take care of himself and
those close to him. He welcomed me every time I saw him over the
last ~30+ years with a smile on his face saying “hey, how you
doin’?” in his fake Jewish mafia voice, followed by a kiss on both
cheeks just like ‘the Don.' Oh, did I mention that he had an
amazing sense of humor? He was an inspiration to our family, and
someone we all loved and looked up to. He was honestly one of the
best people I have ever known.
This is not to mention his incredible family that he leaves behind,
whom I love with all of my heart. My aunt more than matches his humility and generosity and is such an incredible person. She’s a bright, shining light if there ever was one. In terms of my cousins, I’m lucky to be related to them. They're both incredible people, just like their parents, and will continue to do them proud! The saddest part is that my cousin is also expecting her first child later this year, and my uncle won’t have the chance to meet his first grandchild. He won’t be able to hold and cuddle her, see any smiles, capture any first steps or celebrate any birthdays. And as a new dad, I selfishly want him there with my
family for all of those milestones with my daughter as well. (All of
this literally brings tears to my eyes every time I think of it.)
None of this is written for sympathy, rather for two reasons…
1) I want to honor this man that I’ve looked up to my entire life and
celebrate the time I had with him. And candidly, I wish I spent more
1:1 time with him because he’s fucking awesome and none of us
had enough time with him!
2) I intentionally post this to show my vulnerability as a human
being. We are all faced with difficult events and situations
throughout our lives, and this is one of those times for me.
This is a call to motivate you to be more mindful and to hug your
loved ones more often and to keep them close. You never know
when you won’t be able to hug them again. My uncle deserved
more time with his family than this and had so many things to look
forward to. But life isn’t fair. Make sure you make the most of your
life so you don’t miss out on what’s important!
We will miss you, Unc! #foreverinourheartsmindsandsouls
Advocate and Advisor for Tech for Good, Diversity, Equity & Inclusion, and LGBTQ+
1moSo glad to see you taking on another new challenge. They are lucky to have you, Justin.