We're grateful to Allysa Ware, PhD, MSW's leadership in helping us make sure our research is improving the health care system for children and youth with special health care needs.
We asked our staff to share why the work we do is meaningful to them. Here’s what we heard from Dr. Allysa Ware, our Executive Director. "It’s important to me that no other family faces a system that is not prepared to meet their needs." Learn more about our staff at familyvoices.org/team.
The Future of Care for Children with Medical Complexity (CMC) Virtual Cafe Series continues on Wed., July 24 from 3– 4 PM ET on Zoom. Lisa Kirsch, MPAff and Meg Comeau, CISWH will briefly share framing around the current policy landscape for CMC & facilitate discussion. Learn more and RSVP: https://lnkd.in/gn2xphmy
Early career researchers—the deadline to apply for funding from the Emerging Investigators Guided Research Program is two weeks from today! Be sure to watch the application assistance webinar for help completing your application. https://lnkd.in/gs_ysEm9
A new episode of the Complex Care Journal Club Podcast is now available! In this episode, Bethlyn Vergo Houlihan and Meg Comeau discuss a qualitative study of the perspectives of families of children with medical complexity on what is needed to promote their quality of life and well-being. They describe the family-led approach to designing and conducting the study, the importance of upholding human dignity as a major theme, and next steps to translate their findings into systems change. Listen on your preferred podcast platform. Linked here to YouTube: https://lnkd.in/gQX5RcT4
We've added two new downloadable templates for researchers to our Primary Data Center. ➡ Brief research proposal template ➡ Measure selection principles Download tools and templates: https://lnkd.in/gcUkSywc
We've added two new downloadable templates for researchers to our Primary Data Center. ➡ Brief research proposal template ➡ Measure selection principles Download tools and templates: https://lnkd.in/gcUkSywc
Are you interested in learning how to bring lived experience partners into research? We're accepting applications for our Emerging Investigators program through July 15. Learn more about this funding opportunity that offers guidance on partnering with children and youth with special health care needs and their families/caregivers.
Congratulations to our advisory committee member Dishita Agarwal for being named a U.S. Presidential Scholar! Read more about how this recent high school graduate has advocated for students with chronic illnesses and disabilities--and so much more. CYSHCNet is guided by an advisory committee that includes members of the children and youth with special health care needs (CYSHCN) community, family and youth leaders with lived experience, and other experts. https://lnkd.in/gmGeazaj
