CYSHCNet is thrilled to announce Nora Wells and John Gordon, MD, as recipients of the 2024 Pediatric Complex Care Lifetime Achievement Award. Please join us in celebrating these pioneers who spent their lives changing how we care for medically complex children. They will be presented with the award during a live-streamed webinar on Thursday, Sept. 26 from 2:30-3:30 p.m. ET. Read their stories, learn more about the award, and register for the webinar using this link: https://lnkd.in/gbrZJ4Xd. Thanks for all you've done, Nora and John! Congratulations on this well-deserved honor.
Children & Youth with Special Health Care Needs National Research Network
Research Services
Aurora, Colorado 303 followers
Health systems research for children and youth with special health care needs (CYSHCN), their families, and providers
About us
CYSHCNet is a national research network whose purpose is to advance health systems research in the area of children & youth with special health care needs (CYSHCN), their families and providers. The focus of CYSHCNet’s research is creating greater access to health, wellness, and health care for this population of children and families. Making findings available and accessible to stakeholders from different backgrounds, education levels, socio-economic status, and positions that influence health care is a key to improving the functioning of health systems. The four tenets of CHYSCHNet are: 1) create a national research agenda, 2) increase CYSHCN research workforce through a mentored Emerging Investigator program, 3) families are partners in all network research, 4) network partners develop projects to produce impactful research that increases access of CYSHCN and their families to appropriate health services. We are the only national center for CYSHCN research in the U.S. We are funded by a cooperative agreement with the Health Resources & Services Administration (HRSA) and the Maternal & Child Health Bureau (MCHB) and housed at the University of Colorado Anschutz Medical Campus. Our partnerships with major research institutions and family-led organizations across the U.S. ensure that CYSHCN, families, and providers receive the latest information available for advancing the health and wellbeing of children and youth, peace of mind of families, and cutting edge findings for providers.
- Website
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http://www.cyshcnet.org
External link for Children & Youth with Special Health Care Needs National Research Network
- Industry
- Research Services
- Company size
- 11-50 employees
- Headquarters
- Aurora, Colorado
- Type
- Educational
- Founded
- 2017
Locations
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Primary
Get directions
13199 E. Montview Ave Ste 300
Aurora, Colorado 80045, US
Employees at Children & Youth with Special Health Care Needs National Research Network
Updates
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It's not too late to register! Hope to see you Wednesday, July 24 from 3-4 p.m. ET for this important discussion about the current policy landscape for children with medical complexity.
The Future of Care for Children with Medical Complexity (CMC) Virtual Cafe Series continues on Wed., July 24 from 3– 4 PM ET on Zoom. Lisa Kirsch, MPAff and Meg Comeau, CISWH will briefly share framing around the current policy landscape for CMC & facilitate discussion. Learn more and RSVP: https://lnkd.in/gn2xphmy
The Future of Care for CMC Virtual Cafe #3 | CISWH
https://ciswh.org
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Deadline today!
The Children & Youth with Special Health Care Needs Research Network is home to an important program supporting early career researchers. Family Voices helps support this program, including how the researchers work with lived experience partners. The Emerging Investigator program is currently accepting applications until July 15. Apply here: https://lnkd.in/gs_ysEm9
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Children & Youth with Special Health Care Needs National Research Network reposted this
Disability Pride Month happens every July to mark the anniversary of the Americans with Disabilities Act (ADA), which was passed on July 26, 1990. The first celebration was a Disability Pride Day that took place in Boston in 1990. Chicago hosted the first Disability Pride Parade in 2004. Now there are events nationwide empowering people with disabilities to take pride in who they are!
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The Future of Care for Children with Medical Complexity (CMC) Virtual Cafe Series continues on Wed., July 24 from 3– 4 PM ET on Zoom. Lisa Kirsch, MPAff and Meg Comeau, CISWH will briefly share framing around the current policy landscape for CMC & facilitate discussion. Learn more and RSVP: https://lnkd.in/gn2xphmy
The Future of Care for CMC Virtual Cafe #3 | CISWH
https://ciswh.org
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Early career researchers—the deadline to apply for funding from the Emerging Investigators Guided Research Program is two weeks from today! Be sure to watch the application assistance webinar for help completing your application. https://lnkd.in/gs_ysEm9
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A new episode of the Complex Care Journal Club Podcast is now available! In this episode, Bethlyn Vergo Houlihan and Meg Comeau discuss a qualitative study of the perspectives of families of children with medical complexity on what is needed to promote their quality of life and well-being. They describe the family-led approach to designing and conducting the study, the importance of upholding human dignity as a major theme, and next steps to translate their findings into systems change. Listen on your preferred podcast platform. Linked here to YouTube: https://lnkd.in/gQX5RcT4
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Children & Youth with Special Health Care Needs National Research Network reposted this
Transformative healthcare leader, environmental sustainability champion, women's health warrior, health tech innovator
The Agency for Healthcare Research and Quality National Advisory Council - which was held in advance of AcademyHealth's Annual Research Meeting - delved into a variety of topics including the future of health services research, strategies to promote age-friendly care, consumer experience measurement modernization, and care for American Indian/Native Alaskan birthing persons. What was clear throughout the entire 1.5 days was 1) a strong focus on ensuring partnerships with diverse research and community groups, 2) the need to strengthen communication/dissemination best-practices, and 3) grant-making must promote implementation of learnings. More details about the funding opportunities to create state-based healthcare extension cooperatives through PCORTF here: https://lnkd.in/eHstegD8 More details about the meeting and recording: https://lnkd.in/eserH3KX
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We're grateful to Allysa Ware, PhD, MSW's leadership in helping us make sure our research is improving the health care system for children and youth with special health care needs.
We asked our staff to share why the work we do is meaningful to them. Here’s what we heard from Dr. Allysa Ware, our Executive Director. "It’s important to me that no other family faces a system that is not prepared to meet their needs." Learn more about our staff at familyvoices.org/team.
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Children & Youth with Special Health Care Needs National Research Network reposted this
So incredibly grateful to be a member of the CYSHCNet community! ❤️
Congratulations to our advisory committee member Dishita Agarwal for being named a U.S. Presidential Scholar! Read more about how this recent high school graduate has advocated for students with chronic illnesses and disabilities--and so much more. CYSHCNet is guided by an advisory committee that includes members of the children and youth with special health care needs (CYSHCN) community, family and youth leaders with lived experience, and other experts. https://lnkd.in/gmGeazaj
N.C. public school student named U.S. Presidential Scholar
https://www.ednc.org