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Deborah James
Deborah James received a damehood from Prince William last month. Photograph: @bowelbabe/twitter
Deborah James received a damehood from Prince William last month. Photograph: @bowelbabe/twitter

Deborah James describes anger and fear over dying of bowel cancer

This article is more than 2 years old

Campaigner says death is ‘life’s last taboo’ and that she hopes talking about may bring comfort to others

Deborah James has said she is angry at the fact she is terminally ill, and scared of dying.

The campaigner, 40, who was diagnosed with bowel cancer in 2016 and has documented her experiences since on social media, revealed that in the weeks since moving to end-of-life care she keeps “shouting at people and pushing them away”.

In a poignant interview with the Sun, in which she called death “life’s last taboo”, James also said she had decided not to see close friends and to only spend time with family.

The mother of two announced nearly a month ago that she had stopped treatment and would receive end-of-life care at her parents’ home in Woking, Surrey.

She was given days to a week to live when she left hospital, after doctors told her nothing more could be done to treat her cancer.

Describing how she has felt since, she said: “Dying is really hard. I’ve been consumed by anger this week, in all honesty, I’ve been a real bitch. I’m still doing this my way. I’m frustrated with my situation because I don’t want to die. I don’t think I will ever really accept it.”

James, who received a damehood from the Duke of Cambridge last month, has raised more than £6.6m for Cancer Research UK, Bowel Cancer UK and the Royal Marsden Cancer Charity through her Bowelbabe fund on Just Giving.

The podcaster set herself an initial target of £250,000 and has received donations from a huge number of supporters.

She said she still found joy in doing things such as helping her family cook – despite no longer eating much herself – and getting dressed and putting on makeup each morning.

One of her favourite things to do with her daughter Eloise, 12, and son Hugo, 14, is reading letters from supporters and wellwishers.

“I’m scared because I don’t know what to expect,” she said. “It’s a really scary thing to face, I’m only 40, and it’s heartbreaking knowing what I am leaving behind. What’s really hard is that no one talks about death. We don’t really know what happens or how we’re meant to navigate it.

“Death is life’s last taboo. I hope that by talking about it a bit, I might bring some comfort to others.”

More on this story

More on this story

  • Bowel cancer checks at record high after Deborah James death, says NHS

  • Speaker at Labour manifesto launch is cancer-free after terminal diagnosis

  • Deborah James cancer podcast You, Me and the Big C wins top award

  • Drug that ‘melts away’ tumours hailed as ‘gamechanger’ for some bowel cancer patients

  • Deborah James legacy: huge rise in online checks for bowel cancer signs

  • Deborah James hailed as a ‘beacon’ whose legacy will save lives

  • ‘Her attitude was a lesson to us all’: tributes pour in for Dame Deborah James

  • Deborah James grateful for ‘surreal, mind-blowing’ few days as cancer donations hit £5.7m

  • Dame Deborah James obituary

  • From stigma to spotlight: Deborah James puts focus on bowel cancer

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