The ALS Association’s Post

Are you looking for an opportunity to engage in thought provoking discussions that will shape the future of ALS advocacy, research, and care? No matter how you are connected to #ALS, we encourage you to join us at ALS Nexus this July. Register today: als.org/als-nexus

85 years ago today, Lou Gehrig gave his "Luckiest Man" speech, bringing international attention to #ALS. His legacy continues to raise #ALSAwareness and support in the search for a cure. Learn more: https://lnkd.in/eTh-UrgB: https://lnkd.in/eTh-UrgB

⏳ Only 10 days left until ALS Nexus! Join us July 14-17 for the opportunity to connect, collaborate, and shape the future of ALS. Register TODAY: als.org/als-nexus Comment a ❤️ if you joining us at ALS Nexus!

Happy #IndependenceDay, and a huge thank you to all of the veterans who have protected our freedom. For unknown reasons, veterans are more likely to develop #ALS than people who did not serve. Learn more and find resources: https://bit.ly/ALSVets

Currently, ALS is considered a “diagnosis of exclusion,” meaning people experiencing ALS-like symptoms often have to undergo multiple tests to rule out other conditions. On average it takes 10-15 months from the time a person first notices symptoms to receiving an ALS diagnosis. Learn how funds from the Ice Bucket Challenge are working to change this: https://lnkd.in/eSnTGQR3

ALS advocates are on the frontlines in the fight for new treatments and a cure. You can help change laws and policies that impact people living with #ALS and their loved ones. Become an #ALSAdvocate today: als.org/advocate

Funds raised through the Walk to Defeat ALS help make local care programs possible. Get involved today: walktodefeatals.org #WalkToDefeatALS

In a special interview with The National CIO Review®, Pam Knott dives into her career, strategic IT initiatives, and her approach to nurturing talent in technology. Displaying the power of following your passion, even if the path isn’t straightforward. From humanities to HR to tech leadership, Pam’s story proves that progress matters more than perfection. Learn more: https://lnkd.in/eSaXvi8G

We stand with other patient advocacy groups in expressing concern and disappointment about the Supreme Court’s decision to overturn Chevron.  The Chevron precedent supported a regulatory environment that is flexible, informed by experts, and responsive to the needs of our communities. Overturning this precedent will have enormous impacts on the administration of federal programs – including Medicare and Medicaid – that are critical to public health. These programs are especially critical to people living with ALS and their loved ones. We anticipate that this ruling will cause significant disruption to publicly funded health insurance programs, to the stability of this country’s healthcare and food and drug review systems, and to the health and well-being of people living with ALS and their loved ones. We will continue to advocate for better policies and regulations that expedite new treatments and optimize care for the people we serve.

This month 10 years ago, the ALS #IceBucketChallenge swept across the world on social media. Donations from the challenge spurred a massive increase in our capacity to invest in promising research, the development of assistive technologies, and increased access to care and services for people living with #ALS. Thank you to everyone who took the challenge, and everyone who continues to support the ALS community today. Re-take the Ice Bucket Challenge and let's see it end! als.org/ibc