It’s often believed that Parkinson’s is an “old white man’s disease.” However, the more we learn about Parkinson's, the more we understand the diversity of people it affects. In this clip from one of our podcast episodes, MJFF Patient Council member, Soania Mathur leads a discussion with panelists: • Richelle Flanagan, Parkinson’s advocate, registered dietician and co-founder of the Women's Parkinson's Project. • Omotola Thomas, founder and director of Parkinson's Africa, diagnosed with PD in 2016. • Kat Hill, MSN, author, speaker, advocate and co-founder of the Women's Parkinson's Project, diagnosed with PD in 2015. Together, they discuss the challenges faced by women due to delayed diagnosis, hormonal changes, lack of information and treatment, inequity in research and gender biases. They share with listeners how they empower themselves to live better with the disease by advocating for themselves with their health care team and how they empower other women through awareness and activism. Listen now: https://bit.ly/4frqo0M
The Michael J. Fox Foundation for Parkinson's Research
Research Services
New York, NY 40,575 followers
Here. Until Parkinson's isn't.
About us
The Michael J. Fox Foundation for Parkinson's Research is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.
- Website
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http://www.michaeljfox.org
External link for The Michael J. Fox Foundation for Parkinson's Research
- Industry
- Research Services
- Company size
- 51-200 employees
- Headquarters
- New York, NY
- Type
- Nonprofit
- Founded
- 2000
Locations
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Primary
Grand Central Station
P.O. Box 4777
New York, NY 10163-4777, US
Employees at The Michael J. Fox Foundation for Parkinson's Research
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Cynthia Ramnarace
Editorial Content Strategy
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Susan Otten, MBA, ABC
Logistics, marketing, engineering services for CPG & shelf stable food businesses who do good. Appalachian Trail Thru-Hiker for Parkinson's Disease…
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Kevin Murray
Fundraiser, Trial Participant, Motorsports Enthusiast
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Ted Thompson
Senior VP @ MJFF | Leading Parkinson's Public Policy
Updates
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With several new drugs for Parkinson’s disease currently in the pipeline, you might be curious about what exactly goes into getting a new drug approved by the U.S. Food and Drug Administration (FDA). In our latest blog, we break down the approval process for new drugs, including applications, cost, timelines and what each phase of drug testing entails. Learn more: https://bit.ly/4f7ph66
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A particularly active area of research is the development of molecular imaging biomarkers that can be used in combination with common neuroimaging approaches. In the latest episode of The Parkinson’s Research Podcast, Antonio P. Strafella, MD, PhD, FRCPC, director of clinical research and translation at Temerty Faculty of Medicine, University of Toronto shares how molecular imaging biomarkers are being used in research and in the clinic. He discusses the process of developing new biomarkers, promising biomarkers that are currently in development, limitations, implementation challenges and the potential use of AI to enhance diagnostics in the future. Listen now: https://bit.ly/4cUf4bA * This podcast is geared toward researchers and clinicians. If you live with Parkinson’s or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson’s Podcast: https://bit.ly/3W1iKBa
Episode 19: Current and Emerging Imaging Biomarkers for Diagnosis and Prognosis of PD and Atypical Parkinsonism with Antonio Strafella
michaeljfox.org
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Some people with Parkinson’s disease (PD) who experience freezing of gait (FOG) often say they feel as if their feet are glued to the ground. But despite how disruptive the symptom can be, it remains difficult to measure. That’s why The Michael J. Fox Foundation sponsored an AI competition with the Kaggle data science platform to generate nearly 25,000 new machine learning solutions for detecting FOG in people with PD. Measuring these incidents allows researchers to pursue a better understanding of their causes and their different manifestations while also empowering clinical trials to measure potential improvements. Read more about the competition and its impact: https://bit.ly/46fF0fg
MJFF AI Competition Helps Decode Freezing of Gait in Parkinson's
michaeljfox.org
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“There's so much to take away from the experience of being in such a simple yet hostile environment, throwing everything at you, testing your very spirit, resolve and strength, but knowing you can do it,” says Brendan Cusick, captain of Team Human Powered Potential. “I knew I could do it because I had three amazing humans next to me and had what was in my heart, mind and spirit. It's untapped what any human can do if you just put your heart and mind to it.” Successfully completing the World's Toughest Row on July 19 after enduring over 41 days of rigorous rowing and unpredictable weather, Team HPP has proven that with determination, unity and compassion, extraordinary feats are possible. In the end, it was the team members’ unwavering spirit, combined with support from the Parkinson’s community, that propelled them to the finish line. With each stroke, Team HPP aimed to honor those living with Parkinson’s and raise $28 million for research. They set a race record, raising $9,000 per mile — totaling over $25 million raised to date — thanks to a historic 3:1 match from an anonymous donor. Learn more about their incredible journey and mission to find a cure for Parkinson’s: https://bit.ly/3yj92SQ 📽️: World's Toughest Row
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Limited spots remaining! If you are a neurology resident interested in learning about research, care and careers in movement disorders, join us in Chicago for a free, two-day educational course. Apply today: bit.ly/4eixDav.
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There is increasing recognition of the crucial role digital measures play in enabling early diagnosis, informing the development of novel treatments and delivering innovative care to people living with Parkinson’s. The Michael J. Fox Foundation is proud to partner with The Digital Health Measurement Collaborative Community (DATAcc) by the Digital Medicine Society (DiMe) and the Critical Path Institute (C-Path) to add 94 digital solutions that support PD to DATAcc’s Library of Digital Measurement Products. DATAcc’s Library of Digital Measurement Products is an interactive, searchable database cataloging sensor-based digital health technologies, high-quality digital clinical measures, measurement tools, and datasets. This collaboration demonstrates the power of pooling resources, sharing data, and working together towards a common goal: helping patients. Access the library here: https://bit.ly/4dcBPY7
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Last month, MJFF staff marched in the NYC Pride Parade for the third consecutive year. The Pride Parade is a time to recognize the valuable contributions of the worldwide LGBTQ+ community and commemorate the Stonewall Inn uprising of June 1969 in our hometown of New York City. At MJFF, we are proud to be part of a community that celebrates diversity, inclusivity, and equality for all.
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The Edmond J. Safra Fellowship in Movement Disorders aims to expand the global network of movement disorder specialists, improving access to Parkinson’s care, driving research advancements, and train future clinician-researchers. We are thrilled to welcome this year's awardees to train the Class of 2027! • University of Florida • Cleveland Clinic Foundation • FleniHospital • The Mount Sinai Hospital • University of Sydney • University of California, San Francisco • Mater Misericordiae University Hospital • Hospital de Clínicas de Porto Alegre (HCPA) Applications are now open for academic medical centers interested in training a new movement disorder clinician-researcher. Learn more and submit your application today. https://bit.ly/4fbLRKV
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On Friday, July 19, after 41 days, 1 hour and 57 minutes, Team Human Powered Potential finally reached the shores of Hanalei Bay, Hawaii. The team is one of nine to take on the World's Toughest Row, a 2,800-mile race across the Pacific Ocean. Friends and teammates, Brendan, Scott, Pat and Pete were driven by a shared desire to push their physical, mental and emotional limits. They faced highs and lows, encountered wildlife and grew the bonds of their friendship. The team's motivation went beyond a personal challenge, however. They did it to raise awareness and funds for Parkinson’s research. Pat lives with Parkinson’s disease himself, and the team’s motto, "inspired to endure," serves as a testament to their commitment to finding a cure for all those living by the disease. The team’s goal is to raise $28 million, in honor of the 2,800 miles they have rowed. Over the course of their journey, Team HPP’s story captured the hearts of many. And as they crossed the finish line, they also made history. The team raised an astounding $24 million (and counting) for Parkinson’s research — the largest fundraising amount any World’s Toughest Row team has raised. Pat has also become the first person with Parkinson’s to ever complete this journey across the Pacific. We are deeply grateful for Team Human Powered Potential for being extraordinary champions of our mission and taking on this epic journey to bring us closer to a cure.