I AM ALS

We are thrilled to announce that For Love and Life: No Ordinary Campaign, the inspiring documentary that tells the story of our co-founders Brian Wallach and Sandra Abrevaya and the I AM ALS movement will begin streaming on Prime Video on Tuesday, May 28th!! Check out the trailer and learn more: https://lnkd.in/e98gadui

We are sending out a huge thank you to our friends at Live Like Lou! They provided 6,000 Lou Gehrig baseball cards that, in addition to IAA's dugout speech, educated approximately 8,500 youth baseball players and their families about Lou and ALS on Lou Gehrig Day. Thank you!

The FDA announced today that it has created an Innovation Hub for Rare Diseases. We are hopeful that this will get us closer to treatments and cures for rare diseases like ALS. Read more: https://lnkd.in/egJKYwvs

Have an idea to spread ALS awareness but not sure how to get it rolling? Come to a Community Outreach Team meeting! This team is full of great thinkers and great ideas who can help you take your project from a dream to a reality. Join the team: https://lnkd.in/exDCXx-h

Yesterday we learned about new assistive technologies under development, heard from some amazing ALS caregivers, and had an invaluable discussion with Les Turner ALS Foundation, I AM ALS and Hope Loves Company, Inc. about the power of partnership. The day ended with a poster session and learning of the incredible work being done by young researchers in the lab. We’re excited to learn more today, the final day of #ALSNexus!

Check out the ALS Calendar to find events across the ALS landscape -- from support groups to fundraisers to webinars, we're putting it all in one place! Have an event you'd like to see on the calendar? Request to have it added! https://lnkd.in/eK6vuNhK

If you're a Veteran living with ALS who's approaching or has gone past the 65% home care cost cap, we want to hear from you! Reach out and tell us your story: https://lnkd.in/eBjfepDE

Volunteering isn't "one size fits all" -- so many people want to help, but everyone's availability is different. Good thing we have tons of ways to get involved in the movement! Whether you have hours to spare or just minutes, learn how you can help: https://lnkd.in/efCkGdSA

Chicagoland ALS advocates: a fundraiser benefiting I AM ALS and Les Turner ALS Foundation is happening on August 23rd at the Bridges of Poplar Creek Country Club, in memory of Eric von Schaumburg. See how you can participate: https://lnkd.in/ecK9wJAG

If you've ever wanted to help the Legislative Affairs Team but don't have the time to attend regular meetings, we've got just the thing! This team needs constituents in every corner of the country to make their meetings with elected officials as effective as possible. Become a constituent today: https://lnkd.in/ehUKe_m2