Delighted to have New York Genome Center join iHope Genetic Health! https://lnkd.in/gvnGY4ue Samples are flowing in! We welcome your tax exempt donations to expand the program. NYGC and the other labs are offering these services pro bono. Because we want no cost to the clinical sites, we are paying for the shipping of samples and reagents (which are donated by Illumina). Contribute today! https://lnkd.in/gUa78FE6
Genetic Alliance
Non-profit Organizations
Washington, DC 5,732 followers
Transformation of health systems and community care.
About us
Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes more than 1,000 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs. Over the past 25 years, Genetic Alliance has been the voice of advocacy in genetics. Advocacy in the 21st century, however, requires new definitions and new focus. We dissolve boundaries to foster dialogue that includes the perspectives of all stakeholders: from industry professionals, researchers, healthcare providers, and public policy leaders to individuals, families, and communities. In a rapidly changing world, Genetic Alliance understands that nothing short of the transformation of our mission, goals, and even our Board of Directors will suffice to transform health.
- Website
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http://www.geneticalliance.org
External link for Genetic Alliance
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Washington, DC
- Type
- Nonprofit
- Founded
- 1986
- Specialties
- social entrepreneurship, registries, family health, data sharing, engagement, and public health
Locations
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Primary
Get directions
Washington, DC 20008, US
Employees at Genetic Alliance
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Sharon Terry
President & CEO @ Genetic Alliance | Advocate | Citizen Scientist | Honorary Professorship, Honorary Doctorate
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Molly Martzke
Senior Program Manager, National Genetics Education and Family Support Center at Expecting Health
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Ryan Taft
Precision medicine scientist | Genomic technologist | Rare disease advocate
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Ruth Child
Chief Financial Officer
Updates
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Are you in need of an #IRB to review your next research project? Look no further than the Genetic Alliance Institutional Review Board (IRB). Serving the rare disease and research community for over 20 years, our services are fast, affordable, and user-friendly. We provide self-guided templates for single and multisite research, simplifying the IRB process for newcomers. Contact us at irbadmin@geneticalliance.org for quick assistance. Beyond IRB review, we offer support services to kickstart your project: - Assist Principal Investigators (PIs) with articulating components required for IRB submission - Write a complete study protocol that outlines all crucial elements needed for successful IRB approval - Assist with the development of survey instruments - Assist with life cycle documents - progress reports, amendments, closures… etc. - Provide expert advice and best practice guidance Let us help you navigate the IRB process efficiently and effectively. Contact us today! https://lnkd.in/e8cr-jey #research #IRB #nonprofit #regulatory
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