Summary Sheets

Aromatic L-amino acid decarboxylase (AADC) deficiency is a rare, inherited, non-progressive neurological disorder that typically manifests in the first year of life. Most patients have a severe, sometimes life-threatening, phenotype.

(PDF 317 KB)

You or a family member have been diagnosed with follicular lymphoma (FL). This leaflet gives you some basic information about the condition and helps answer some of your questions.

(PDF 1552 KB)

Nutrition and healthy eating – for people living with cancer.

(PDF 3203 KB)

MZL is a slow-growing blood cancer that involves the lymphatic system and a type of white blood cell called a lymphocyte.

(PDF 2038 KB)

Urogenital atrophy (UGA) is a condition caused by a drop in the level of oestrogen.

(PDF 360 KB)

Le cancer de la peau peut toucher tous les types de peau.

(PDF 338 KB)

Skin cancer can affect people of all skin types. Even if you have a dark skin tone, you can develop skin cancer.

(PDF 192 KB)

You or a family member have been diagnosed with chronic lymphocytic leukemia (CLL). This leaflet gives you some basic information about the condition and may help answer some of your questions.

(PDF 1,2 MB)

Hautkrebs ist die häufigste und zugleich am meisten vermeidbare Krebsart. Anleitung zur Selbstuntersuchung und Ratschläge zur Vermeidung von Hautschäden.

(PDF 365 KB)

You or a family member have been diagnosed with Waldenström macroglobulinemia (WM). This leaflet gives you some basic information about the condition and helps answer some of your questions.

(PDF 2,2 MB)

Inflammatory bowel disease (IBD) is two different disorders with overlapping features: ulcerative colitis and Crohn’s disease.

(PDF 4,8 MB)

Skin cancer is the most common type of cancer. It is also the most preventable cancer.

(PDF 275 KB)

Asthma is a long-term (chronic) condition in which your airways become inflamed and swollen, often with too much mucus production.

(PDF 607 KB)

El asma es un trastorno crónico (de duración prolongada) en que sus vías respiratorias se inflaman e hinchan, a menudo con una producción excesiva de moco.

(PDF 2,8 MB)

This leaflet aims to help nurses answer patients’ questions so that they can support patients using a vacuum erection device (VED) for penile rehabilitation after complex pelvic surgery or pelvic radiotherapy, or to prevent shrinkage due to lack of erections.

(PDF 7,5 MB)

You or a family member have been diagnosed with alpha thalassemia (AT). This leaflet will give you some basic information about the condition and help answer some of your questions.

(PDF 3 MB)

You or a family member have been diagnosed with beta thalassemia (BT). This leaflet will give you some basic information about the condition and help answer some of your questions.

(PDF 3 MB)

This leaflet informs you about thalassemia screening. Screening means doing laboratory tests to look for a condition before it is noticeable or to see if you are at risk of having a child who is affected with a condition.

(PDF 2,6 MB)

There are three main types of non-small cell lung cancer (NSCLC): adenocarcinoma, squamous cell carcinoma, and large cell carcinoma. In any of these, cancer cells can break away from the lung, travel to another part of the body, and form another tumor.

(PDF 7 MB)

This is a type of immunotherapy, using the body’s immune system to fight cancer. It’s sometimes called immuno-oncology (I-O) treatment.

(PDF 5,8 MB)

Cancers are named after the type of cell that becomes cancerous. There are many different cell types in the lungs, so there is more than one type of lung cancer.

(PDF 6,6 MB)

Acute myeloid leukemia, also known as AML, is a cancer of myeloid blood stem cells. ‘Myelo’ means bone marrow and ‘acute’ means that it develops quickly. Normal myeloid stem cells go on to develop into red blood cells, white blood cells and platelets that circulate in your blood. So, AML affects the production of all these blood cells.

(PDF 7,3 MB)

Cholangiocarcinoma is a bile duct cancer. It starts in the lining of the ducts inside and leaving the liver. The hepatic ducts and common bile duct drain bile from the liver to the first section of the small intestine. Bile duct cancers are different from cancers of the gallbladder.

(PDF 12,6 MB)

Myelodysplastic syndrome (MDS) is a rare blood condition. It is most often diagnosed in people over 65 and more often in men than women. There are several different types of MDS, affecting one or more of the different types of blood cell. MDS can sometimes run in families but most people don’t have a family history.

(PDF 6,2 MB)

50% of women go through the menopause transition without consulting a health professional, yet 4 out of 5 women have symptoms. Don’t struggle in silence. Use this sheet to inform yourself, make a note of your symptoms and talk to a doctor. There are lots of treatment options for troublesome symptoms.

(PDF 3,4 MB)

Metastatic prostate cancer is advanced disease that has spread beyond the prostate gland. Prostate cancer starts in the prostate gland, which surrounds the urethra.

(PDF 1,7 MB)

Myeloma is a cancer of the plasma cells, a type of white blood cell that resides in the bone marrow.

(PDF 4,8 MB)

Pyruvate kinase (PK) deficiency is a rare genetic disease that affects red blood cells.

(PDF 4,8 MB)

The prostate gland is below the bladder. It surrounds the urethra – the tube that carries urine from the bladder to the penis.

(PDF 7,3 MB)

A total of 1,912 abstracts presenting the latest advances in cancer treatment were presented at the congress.

(PDF 119 KB)

Advances in breast cancer research and therapeutics were the conference topics attracting broadest interest.

(PDF 93 KB)

Cardiac imaging, most commonly echocardiography, is used to aid the diagnosis of HCM and to monitor patients after diagnosis.

(PDF 5,6 MB)

Hypertrophic cardiomyopathy (HCM) is a myocardial disorder defined by ventricular hypertrophy that cannot be explained by another cardiac or systemic disease.

(PDF 6,5 MB)