Vera Therapeutics, Inc.’s Post

ALS Awareness Month is observed every May to come together to raise awareness about Amyotrophic Lateral Sclerosis (ALS), a progressive disease that affects a person’s ability to walk, talk, eat, and eventually breathe. Here are some important facts about ALS: 💙Diagnoses: Approximately 5,000+ people are diagnosed with ALS every year, and every 90 minutes, someone is diagnosed with ALS while another person passes away from it. 💙Life Expectancy: The average life expectancy for someone with ALS is 2-5 years. 💙No Cure: Unfortunately, there is currently no cure for ALS, but there is hope. How You Can Get Involved: 💙Inform Others: Share information about ALS and its effects on those living with the disease and their families. 💙Advocate: Help change laws and policies that affect people with ALS and their families. 💙Support Research: Your support accelerates research and provides critical care for families impacted by ALS. 💙Join us in raising awareness and supporting those affected by ALS. And consider donating to causes that support awareness, advocacy and research efforts, like HOPE for Steve.🌟💙 #als #alsawareness #alsawarenessmonth

🦓💥Today marks #RareDiseaseDay! Join us in amplifying #RareVoices that contribute to the uniqueness of the Rare Disease Community. In a special Rare Disease Day column, Alithea Athans spotlights various Rare Disease Day campaigns, avenues for active participation, and significant advocacy groups. "Rare Disease Day is celebrated every year on the last day of February. Because 2024 is a Leap Year, it is celebrated on February 29. February was chosen as Rare Disease Month because it has the rarest calendar dates to honor those who live with a rare disease. There are many ways to get involved. You can donate directly to one of the few sites that are dedicated to our cause. You can also give the gift of time at EveryLife Foundation for Rare Diseases or by joining #RareDiseaseWeek on Capital Hill. This week allows advocates to be heard by members of the US Congress, where we can also learn about proposed policies that will affect the rare disease community. We can, in turn, discuss policy changes that we would like to see implemented." ➡️Click to read more: https://brnw.ch/21wHrte National Organization for Rare Disorders Rare Disease Day

Becoming a living kidney donor can have a profound impact on someone’s life while having no negative impact on the donor’s life in most cases. If you’re considering becoming a living kidney donor, here is the process you'll go through. https://lnkd.in/dtDrXinD #NKR #KidneyAwareness #DonatingAKidney #LivingKidneyDonation #LivingKidneyDonors

It's Giving Tuesday! When you give a gift to CHI today, you're contributing to a global generosity movement that amplifies the impact of our work and of other nonprofit organizations worldwide. CHI is dedicated to improving the lives of those with hyperinsulinism (HI) and continues to advocate for better care, treatments, and quality of life. Visit https://bit.ly/chidonate to learn how you can make a SWEET impact on HI. #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

*This post contains content that some users may find distressing.* 25% of #pwME are housebound or bedbound. They have severe or very severe M.E. #SevereMEDay is a day to remember everyone who is suffering or who has ever suffered from #SevereME and #VerySevereME, and to remember all of those who have died from M.E. It is a day to bring awareness to the devastating and isolating impact this illness has on a person’s life and how it takes away a person’s ability to do daily tasks such as personal hygiene, washing and socialising with friends and family. So many people with #SevereME and #VerySevereME have endured, and continue to endure, decades of suffering from this debilitating illness, with little or no recognition. Help us change this. We support people with #SevereME and #VerySevereME through our range of support services, including a dedicated team of healthcare professionals who support all #pwME. We need your help to enable us support to more people with #MECFS: • Donate now to enable us to help more people with #SevereME: https://ow.ly/Ls5Y50PpVxQ • Share the range of services we offer to provide support those with #SevereME: https://ow.ly/TzcU50PpVxP #EndMalnutritionInME #SevereME #VerySevereME #SevereMEDay #pwSevereME #pwVerySevereME #MECFS #MyalgicEncephalomyelitis #MyalgicE

Today is #WorldMSADay. MSA stands for #multiplesystematrophy, a rare and fatal neurodegenerative disease that attacks your autonomic system—basically all your major systems. It's the #raredisease that shortened my mom's life. It's terrible. And progress is slow. This community still lacks proper diagnostic tools, treatments, and the elusive cure. My mom, like many others, was first diagnosed with Parkinson's. So today, I'm sharing this good news that will help MSA families and the broader Parkinsonism community. In July, the National Plan to End Parkinson's Act (H.R.2365/S.1064) unanimously advanced out of the House Energy & Commerce Health Subcommittee. The bill is now moving on to the full House Energy and Commerce Committee, bringing us one step closer to its passage in the House of Representatives (provided they keep the government running!). *Rare disease communities need support and advocates; here are two ways to help. Donate: https://lnkd.in/dNaYJjsq Advocate (US): https://lnkd.in/eSRHMDN6

"When diagnosed with heart disease, I sought healthy sugar alternatives. But, after careful consideration, I realized my heart's health is essential. So, I'm opting for small quantities of sugar and whole fruits." Read more on the blog about Sherri's journey! Read now: https://lnkd.in/gaZHnBKS #womenheart #nonprofit #hearthealth #support #advocacy #womenshealth

It's vital to understand your unique risk factors. Talk to your family about their heart disease history. If heart disease is prevalent or found early in your family history, inform your doctor, as it's a significant individual risk factor. Also, for African American or Hispanic women, be aware of your increased vulnerability to cardiovascular events, stroke, kidney disease, and the need for dialysis. Generic blood pressure guidelines may not always apply, so seek advice! Want more heart tips? Learn more through our blog here: https://lnkd.in/eD3hxHS6 #womenheart #nonprofit #hearthealth #support #advocacy #womenshealth

Hey Connections, A Lifesaving Act: My Journey being a voluntary blood donor, "Excited to share that I've recently become a voluntary blood donor! Giving blood is a simple yet powerful way to save lives. I encourage my professional network to join me in this noble cause. Let's make a difference together! #BloodDonation #SaveLives" #snsinstitutions #snsdesignthinkers #designthinking