Travere Therapeutics’ Post

Jeff and his family, like others who have faced the diagnosis of a #RareKidneyDisease, were surprised to learn that he had IgA nephropathy. Over time and with the support of his community and care team, Jeff was empowered to take control of his health and advocate for more awareness of IgA nephropathy with The IgA Nephropathy Foundation. Jeff’s story is a powerful reminder of why we are #InRareForLife and committed to supporting people living with RKD of all backgrounds and their families as they navigate life with a rare disease. Watch this Medical Stories documentary of Jeff's experience, shedding light on what it’s like to live with #IgANephropathy. https://lnkd.in/gMgs7DEh Medical Stories is an Emmy-winning docuseries, airing via the PBS stations. Travere is a proud sponsor of this Medical Stories docuseries on IgA nephropathy. #RKDandMe

At the end of June we gathered with the homocystinuria community during the HCU Network America patient and expert conference in Colorado. We were moved to hear from Albert Freedman, Alex Orange Drink, leaders in #newbornscreening, diagnostics, and our very own Sagar Vaidya, VP of clinical development, who gave a talk about our Phase 3 clinical program examining an investigational enzyme replacement therapy for classical HCU. #MovingMountains2024 #InRareForLife

Congratulations to our president and CEO Eric Dube for being named an LGBTQ+ Leader in Biopharma by Endpoints News. In an interview with Endpoints, Eric reflects on the legacy of activists during the AIDS and HIV epidemic, and the impact of their work on patient advocacy and drug development today. He also talks about health equity, access to care, and the importance of listening to what patients need. Join us in celebrating Eric and all of this year's leaders for this impressive recognition. Access the full article at https://bit.ly/3VDCzyf #InRareForLife #TravereTherapeutics #PrideMonth #Pride #Pride2024

Today is #CystinuriaAwarenessDay. Cystinuria is a rare genetic disorder that causes the buildup of an amino acid called cystine in the urine. This can result in the formation of cystine kidney stones. Cystine stones are often larger, harder and form more frequently than other kinds of kidney stones. Due to the larger stone size, cystine stones may be more difficult to pass, often requiring surgical procedures to remove. At Travere, we continue to support the #cystinuria community because we are #InRareForLife.

Chris Harris was 14 years old when he had his first kidney stone attack. He was playing football, offensive center, and thought he’d pulled a muscle. The pain got worse, and his parents took him to the doctor where he was diagnosed with a rare genetic condition called cystinuria. Next week on June 24, we recognize all those who live with cystinuria on Cystinuria Awareness Day. Read Chris’ story and learn more about day-to-day life with this rare condition at https://lnkd.in/dWMqyer. #InRareForLife #CystinuriaDay20214

With #RKDandMe, we aim to bring awareness to the realities of life with #RareKidneyDisease through stories from people living with RKD and caregivers. Many people have shared their experiences as part of the campaign, helping to offer hope and empowerment to others in the RKD community. If you've wanted to reflect on and write about your rare kidney disease experience but aren’t sure where to start, journaling can be a helpful tool. Here are a few tips for inspiration! Explore RKDandMe.com to discover more and share your own story.

At Travere, many of us are rare patients and caregivers. When we are caregivers, we see caregivers all around us, and recognize them for their strength, sacrifice, and choices. In this video, Alap talks about the way he supports his wife since she was diagnosed with a #RareKidneyDisease (#RKD). Thank you to all the caregivers for everything you do. #InRareForLife

We are looking forward to attending The UK Kidney Association’s #UKKW2024 in Edinburgh, Scotland, this week. We will be sharing preclinical and clinical research in #IgAnephropathy (#IgAN), and new analyses of UK National Registry of Rare Kidney Diseases (RaDaR) data highlighting the need for new treatments for #FSGS and #NephroticSyndrome. Check out all our presentations at UK Kidney Week. #InRareForLife

At the National Organization for Rare Disorders Impact Awards ceremony, we were honored to be recognized among the dedicated advocacy leaders and rare disease scientific innovators who are focused on bringing hope to people living with #raredisease. In his remarks following receiving the Industry Innovation Award on behalf of Travere, our president and CEO Eric Dube said, “When we innovate, we change the status quo. We change our own and others’ perceptions of what can be achieved. We reset expectations for what’s acceptable. And raise the bar for the next generation of innovators to improve on what we accomplish.” In this photo Eric and other Travere leaders accept the award from Raiza Noelia, a person living with #IgANephropathy. #RareImpactAwards #InRareForLife