TailorMed’s Post

We support #RareDiseaseDay! At #BSFE we believe that #digitalsolutions can facilitate #patientequity by breaking down geographical, financial, and informational barriers, supporting access to healthcare resources and services for all individuals living with a #raredisease. #raiseawareness for #RareDiseaseDay2024 #BostonScientificFoundationEurope

I’ve been mulling over something today—how do we define the essence of truly supporting patients?    Embracing a holistic approach to care is necessary. Sure, easing the financial burden plays a huge role in everyday life, but there’s really so much more to it.    Comprehensive support is the essence of our commitment at the PAN Foundation. We’re committed to recognizing and addressing the entire spectrum of a patient's needs. It's about acknowledging that every aspect of care is interconnected and vital because multifaceted efforts can make a world of difference. Assisting with the financial piece is just one component. Our alliance partnership model allows for patients to seek and receive the holistic support they may be in need of - from case management services to peer support. Have you ever been part of a support system that went beyond the conventional? 

In my current role, engaging patients in forms of support beyond financial assistance poses significant challenges. Despite efforts to provide empathy, validation, setting boundaries, and leveraging networks, some patients remain fixated on financial aid. When these efforts are met with frustration from patients and lack of direct financial support from the program, I resort to documenting approaches, following managerial guidance, practicing radical acceptance, and prioritizing self-care. Comment below what approaches have worked for you when facing patients who are only wanting financial assistance you are not able to provide directly? #PatientSupport #HealthcareChallenges #CaseManagement #HealthCare

The Care Quality Commission's annual "State of Care" assessment confirms what we all know - local authorities' "management" of funding priorities has created an inherently unfair system and yet another postcode lottery. National Care Forum's CEO Vic Rayner OBE has captured the picture perfectly: "The reality is that providers are not able to provide care at the rates that local authorities can pay, nor can they provide quality services at these unsustainable rates. They cannot staff services where they do not have enough funding to pay staff, nor can they innovate and invest in buildings and technology to ensure that we have care services we are proud of and are fit for the future, as well as for the present". At Acuity Law we are seeing a rapid increase in providers robustly challenging their commissioning authorities who are simply not paying enough to cover the basic costs of high quality care. https://lnkd.in/eYdeUXY7

End-of-Life Essentials' powerful new video shares a patient's experience in the healthcare system, and the importance of being treated as a person and an individual.

🎞️ Join us for the second 𝐯𝐢𝐝𝐞𝐨 𝐢𝐧𝐭𝐞𝐫𝐯𝐢𝐞𝐰 with Chair Professor Dieter Wolke and Vice Chair Dr Britta Hüning of the #ESCNH Topic Expert Group on “𝐅𝐨𝐥𝐥𝐨𝐰-𝐮𝐩 𝐚𝐧𝐝 𝐜𝐨𝐧𝐭𝐢𝐧𝐮𝐢𝐧𝐠 𝐜𝐚𝐫𝐞”. 💪 Dive into discussions on what is needed to 𝐢𝐦𝐩𝐥𝐞𝐦𝐞𝐧𝐭 𝐭𝐡𝐞𝐬𝐞 𝐬𝐭𝐚𝐧𝐝𝐚𝐫𝐝𝐬 effectively in the coming years. Learn about the crucial 𝐢𝐧𝐭𝐞𝐠𝐫𝐚𝐭𝐢𝐨𝐧 𝐨𝐟 𝐜𝐚𝐫𝐞 𝐬𝐲𝐬𝐭𝐞𝐦𝐬 from hospital to home to community, and the importance of accessible records, adequate 𝐟𝐮𝐧𝐝𝐢𝐧𝐠, and supportive 𝐥𝐞𝐠𝐚𝐥 𝐟𝐫𝐚𝐦𝐞𝐰𝐨𝐫𝐤𝐬. #ForTheBestStartInLife #NewbornHealth

These short interviews outline the vision of our updating the EFCNI standards for "Follow-up Care" with the help of many colleagues around Europe

💡 Do you have an improvement idea? 💡 Like the majority of NHS organisations, we are facing an unprecedented financial challenge which will impact upon our ability to deliver patient care, if together, we don’t do something about it. 💡 We have launched our 'I have an improvement idea' - and this is just one of the ways we need people to suggest how we can make savings and ensure we maintain quality. 👂 We want to hear from you! https://lnkd.in/epczCNCQ 🎯 Everyone can make improvements - ensure we're minimising waste, supporting exceptional patient care and even, improving our work environments. #TeamCRH

What is the first action a hospital can take to get started? How do we engage the workforce? How do you manage the financing? How do you take into account the needs of the community? So many important questions at Plenary 3 at #WHC2023 – a big thank you to the expert, international panel for sharing knowledge on these issues, and many more. #IHFLisbon #NetZeroHealthcare #SustainableHealthcare

#HCHBUC has a session for everyone! Take a look at some of the sessions we expect to be blockbusters this year and explore the full list of sessions on the HCHB Users Conference website. https://bit.ly/43VHwGG • Project Mustang: Check out the latest capabilities available within the Early Access version of Project Mustang and peek into what's coming next. • Personal Care: Learn best practices for hourly based care with the HCHB Personal Care solution. • Trailblazers for Smart Scheduling: Dive into real world examples of how smart scheduling has propelled customers to new heights of efficiency and effectiveness. • Looking Ahead: Emerging Changes in Revenue Cycle Services: Panel discussing emerging financial barriers in the home health and hospice marketplace and strategies to overcome them.