Nick Rapley’s Post

To coincide with #RareDiseaseDay we are delighted to release the findings of a year-long research project into the mental health impact of a rare disease diagnosis.    As part of our ongoing commitment to support patient-focused initiatives, in 2021 we fully funded the project led by Rare Disease Research Partners, an organisation focused specifically on supporting research and access to treatment for people living with rare conditions.    Following an extensive literature review, a panel of experts developed a statement of good practice, designed to raise awareness of the core issues and importantly, provide guidance and support for healthcare professionals and organisations working in this area. Both of these are now available to view on our website:   https://lnkd.in/dbTsz-by   The resources are being actively disseminated within the rare disease community and we hope they will be used to support the future development of services, initiatives, and programmes delivered by the wide range of organisations involved - providing both a strong evidence base and practical advice too.   If you have any feedback on the project or would like to discuss the research with us or any of our partners, we warmly invite you to get in touch.  Below are some of the thoughts we have received on the project so far 👇 #RareDiseaseDay2022 #NewResearch #MentalHealth

💥 As the sun sets on another record quarter at RBW, we are continuing to look for the right people to invest in. If a strong culture, unlimited growth potential and working for a company that does things the right way is what you are after, we should have a conversation! 💥 #RBWBoston

Rare Disease Research Partners have been beavering away and I am pleased to say our panel have met and the project is progressing! Here's an update.

We are delighted to announce that RBW Consulting and Thorp Associates UK are merging. Emma Thorp is joining the board as the company’s Chief Growth Officer to expand and lead the executive consultancy services for the new group.  At Thorp Associates, Emma established herself as a trusted advisor to her clients, demonstrated by long standing client relationships and a strong reputation in the industry. We are thrilled to have someone of Emma’s calibre work with us and help challenge the way recruitment and search are thought about in the life sciences industry. https://lnkd.in/dChBcBB