National Scleroderma Foundation’s Post

On #WorldGlaucomaDay, we celebrate the advancements that have helped people like Jaxon, Pat and Trinh preserve vision. Our thanks to advocacy organizations like Glaucoma Research Foundation that push for better education, resources and a cure for this disease.   Learn about glaucoma: https://bit.ly/4386QbS   #SeeBetterLiveBetter

Cardiac Rehab: Improving saved Lives and restoring hope through passionate education and scientific conditioning.

Do you or your family know about Von Willebrand Disorder? Did you know? It affects 1% of the population. Most common inherited bleeding disorder. If you or your child frequently experience bruising, nosebleeds, or if you or your daughter have heavy menstrual bleeding, it's possible that VWD could be the underlying cause. This will impact the quality of life of you and your child. Remember, there's often more to a story than what meets the eye. Many women and men are silently suffering, unaware that they might be dealing with VWD. Our mission is to change this by raising awareness and improving lives. Join the conversation using #VWD. If you'd like to discuss anything personal, feel free to direct message me. Your well-being is important.

🎗️🌟✨ Congratulations to Brooke McKeever of LightMD, Inc.'s exciting initiative to advocate for brain health and photobiomodulation therapy (PBM) on Capitol Hill with the Brain Injury Association of America! 🇺🇸🧠 It's fantastic to see such #dedication to advancing awareness and support for this innovative treatment. ✨🎉🌿 PBM therapy, previously known as low-level laser therapy, uses visible or near-infrared light to stimulate #healing, relieve #pain, and reduce #inflammation, making significant strides in #neuroprotection and #brainhealth . 🧠💡🔬🌟 Its anti-inflammatory, antioxidative, and mitochondrial protective properties are particularly promising for treating and preventing various brain disorders, including neurodegenerative diseases, brain injuries, and psychiatric conditions. 📚🔍🧪 A review on #PBM therapy highlighted its innovative approach for a wide array of #neurological and #psychological conditions. 📖💫🌈 By enhancing the metabolic capacity of neurons and stimulating anti-inflammatory, anti-apoptotic, antioxidant responses, as well as neurogenesis and synaptogenesis, PBM therapy shows potential in treating disorders like #dementia, #Parkinson's disease, #stroke, #braintrauma, and #depression. 🧠 It's encouraging to know that Brooke will be representing such a powerful technology and sharing her success story as a thriving survivor, potentially paving the way for broader acceptance and usage of PBM in clinical practice. 💼🌟🙌👏 Brooke's efforts to shine a light on the benefits of PBM therapy could lead to significant advancements in brain health and recovery for many. 💡🧠🌍🌱 Best wishes for a successful and impactful visit to Capitol Hill! Obviously I love to keep spreading the word about the transformative potential of PBM therapy, as I can speak FIRST HAND on its amazing healing powers. 🚀📣🗣️ Steve Ardire Rochelle G Prosser RN, CLNC Traci Lamb #BrainHealth #PBM #InnovationInHealing #Neuroprotection #Photobiomodulation #BrainRecovery #NeurodegenerativeDiseases #BrainInjury #MentalWellness #ClinicalPractice #HealthcareInnovation #PatientAdvocacy #CapitolHill #BrainInjuryAssociation #HealingTechnology

I try to keep up with my professional reading of articles and sources of all kinds to stay up to date on current conversations, news, science etc. Sometimes I share something I found insightful, interesting, or just entertaining on social media. I thought in 2024 I might just bookmark some articles that caught my interest and may interest others and share and the end of the week. So, here goes the first #weeklyreading curated list of 2024. How a fight over data made South Dakota’s bad syphilis outbreak worse (Just go read it if you have any interest at in data, data sharing, community needs, and how policies are/are not implemented in reality.) https://lnkd.in/eSwf9V3S   Redefining the future of rural health: School of Medicine Columbia’s Kevin Bennett leads National Rural Health Association https://lnkd.in/eZpGeeY4 More patients are losing their doctors – and their trust in the primary care system. https://lnkd.in/exA_eRmM   Child Care Gaps in Rural America Threaten to Undercut Small Communities (This quote sums it up, “The dearth of child care in many rural communities exacerbates workforce shortages by forcing parents, including those who work in health care locally, to stay home as full-time caregivers, and by preventing younger workers and families from putting down roots there.”) https://lnkd.in/e2GwbAJJ   What a Bison Goring Can Teach Us About Rural Emergency Care (B https://lnkd.in/eAVtPnfN   Can Family Doctors Deliver Rural America From Its Maternal Health Crisis? https://lnkd.in/eunZcajP   #ruralhealth #ruralhealthcare #publichealth #weeklyreading

Palliative Care ECHO Lunch & Learn with Brittany D’Angelo, Julie Diner & Natalie McGuigan Wednesday May 15 12noon-1pm on ZOOM https://lnkd.in/gJX6Kwke In this session, members of the Palliative Advocacy Care Team (PACT) & Palliative Carelink will discuss how health and social care workers can adopt approaches to care that recognize and adapt to the social and structural determinants of health. The goal of this session is to challenge providers to re-think traditional models of care, and pursue practices that meet unmet needs of structurally vulnerable populations. Learning objectives: Explore what it means to take an equity-informed approach to care Review the concepts of harm reduction, trauma-informed care, and cultural safety Identify barriers to care and resources for vulnerably housed clients who could benefit from a palliative approach to care

Next week, August 28, 2023 – September 1, 2023, is the first ever National Community Health Center Awareness Week. According to the American Public Health Association, a community health worker is a frontline public health worker who is a trusted member of and/or has an unusually close understanding of the community served. This trusting relationship enables the worker to serve as a liaison/link/intermediary between health/social services and the community to facilitate access to services and improve the quality and cultural competence of service delivery. A community health worker also builds individual and community capacity by increasing health knowledge and self-sufficiency through a range of activities such as outreach, community education, informal counseling, social support, and advocacy. Although, community health worker is a general term that includes a wide range of titles including outreach workers, health coaches, patient navigators, and promotores de salud, they are valuable member of the healthcare workforce. Research shows that community health workers improve health outcomes for people with conditions including diabetes, asthma, cardiovascular disease risks, and HIV. They help ensure people receive preventive care. Community health worker interventions save money by leading people to use more appropriate health care services and reducing the need for emergency care. However, despite extensive research demonstrating their value, community health worker services are not regularly integrated into the health care system and are not currently financed in a sustainable way. ((https://lnkd.in/g9aFSNA6) Join us in raising awareness and celebrating our community health workers! Click here to  access the community health worker awareness week toolkit and kick off webinar. https://nachw.org/nchwaw/

🌍 Today, on International Stroke Day, let's raise awareness about the importance of stroke prevention and support for survivors. Together, we can make strides in research, education, and community outreach to combat this life-changing condition. Let's work towards a world where strokes are preventable, treatable, and survivable. If you have not heard about ABAStroke yet, it’s the best day, to take a look at what they’re doing. #StrokeAwareness #HealthcareAdvocacy 🧠💙

NCDs not only cause immense suffering but also place a heavy burden on healthcare systems worldwide. They can lead to disability, decreased quality of life, and premature death. However, many NCDs can be prevented or managed through early detection and healthy lifestyle choices. 🤝 Let's Raise Awareness: Share this post and spread the word about NCDs! By educating ourselves and others, we can make a difference in preventing and managing these diseases. Together, we can build a healthier future for ourselves and our loved ones! 💪 To know more about NCD Management, Visit us: www.actioncd.org https://lnkd.in/gCP7YUin Contact: +41796628370 Email: info@actioncd.org Linkedin: https://lnkd.in/g2stQwAz Instagram: @actionncdinternational Facebook: @actionncdinternational #noncommunicabledisease #ncd #ActioNCDInternational #ActionOnNCD #tuberculosis #cancer #diabetes  #NCDs #NoncommunicableDiseases #HealthAwareness #PreventionIsKey #StayHealthy #WellnessMatters

📅 Mark Your Calendars! Join us for the SCD Policy Forum, a pivotal 2-day event uniting sickle cell advocates nationwide. Hosted by Sick Cells & Sickle Cell Community Consortium. 🗓️ Day 1: Dive into federal advocacy with educational sessions on SCD policy. Hone your skills in workshops, connect in breakout sessions, and engage in mock meetings. 🗓️ Day 2: Take action on Virtual Hill Day! Engage directly with legislators, share your insights, and advocate for sickle cell disease policy changes. 🔜 More details coming soon! #SCDPolicyForum #SickleCellAdvocacy