Stroke Foundation’s Post

Dear Community,   We want to share a heartfelt video with you titled "Recognize ME." This powerful piece, delivered by Doctor of Physical Therapy Clayton Powers, PT, DPT, recognizes myalgic encephalomyelitis (ME/CFS), a condition often misunderstood and overlooked despite its profound impact on millions worldwide. The video delves into the daily struggles faced by individuals battling ME/CFS or post-COVID related ME/CFS, emphasizing the immense challenges posed by extreme and all consuming fatigue, metabolic, neurologic, and immune impairments, to name a few. https://lnkd.in/g4bPdkQh   ME/CFS ranks lower in terms of quality of life compared to major diseases like cancer, stroke, and debilitating autoimmune conditions. Yet, it's a condition that's unrecognized by many and often misdiagnosed or dismissed. We want you to know that you are not alone in this fight. Your experiences are valid, and your voices matter.   If you're living with ME/CFS, remember that your symptoms are not a result of laziness or deconditioning. It's crucial to listen to your body and prioritize self-care, even when faced with disbelief or skepticism from others. And if you know someone battling ME/CFS or long COVID, consider sharing this message and supporting the Bateman Horne Center of Excellence, as we engage in clinical research, equip medical providers with knowledge and care management tools, offer support and resources to caregivers and the community, and advocate for systemic change.   You are valued, and your experiences deserve recognition and support. Let's come together, raise awareness, and work towards accurate understanding and informed care for the ME/CFS community.   With empathy and solidarity, Team BHC We extend a special thank you to Open Medicine Foundation (OMF) for their generous support of our Medical Education Resource Center.   #MECFS #MECFSAwareness #PEM #PostExertionalMalaise #NeuroInflammation #InternalMedicine #Autoimmune #RecognizeME #MyalgicEncephalomyelitis #MECFSCaregiver #MECFSSupport

At the #AHA23 late-breaking session “Heart Failure – VADS, Kids, and Money,” Stephen Greene discussed how patient outcomes can be improved by treating heart failure with a greater sense of urgency, more efficient trial enrollment, and a focus on implementation. Read more on his and other DCRI faculty’s time at AHA 2023 here: https://lnkd.in/gTzBWcCY #clinicaltrials #clinicalresearch #heartfailure #hearthealth

May is #StrokeAwareness month! Did you know that every year in the US, nearly 800,000 people have a stroke? Of those who survive, 1 in 4 will have another stroke within 5 years. Blood pressure is the most modifiable risk factor for stroke. The TEAMS-BP Trial, funded by PCORI and slated to enroll patients at 11 clinical sites in the Stroke Belt, offers innovative ways to support post-stroke patients to monitor and lower their BP to support secondary prevention. I am honored to serve as the Director of TEAMS-BP at the Clinical Coordinating Center (Wake Forest University School of Medicine). Click below to read more about the TEAMS-BP trial, and feel free to reach out if you want to learn more! https://lnkd.in/e_9SuvVJ

New research in print! Our study showed clinical decline in shock index associated with prolonged time to care and will allow us to optimize pre-hospital care and transport in regions with prolonged arrival times. Bakhshi K, Rhodes-Lyons H, Ahmed A. Rural vascular trauma: Time to care. Am Surg. 2024. DOI: 10.1177/00031348241241684 https://lnkd.in/gSgJ4AUe

A groundbreaking new tool from Vanderbilt University Medical Center researchers intends to help pediatricians identify babies at high risk for Respiratory Syncytial Virus (RSV). As described by one of the tool's developers, second-year #VandyMPH student and VUMC pediatric pulmonology fellow Ferdinand Cacho, MD, "This tool can help providers, health care institutions, and policymakers prioritize a limited resource so that the most vulnerable babies receive it.” Learn more about this tool and Dr. Cacho's work: https://bit.ly/3R3mOiA

Elevating Stroke Care: Best Practices & Framework : In the ever-evolving landscape of healthcare, it’s crucial to ensure that stroke services are delivered at their best. Here’s a framework of best practices to keep in mind: 1️⃣ Timeliness is Paramount: Rapid response time is critical in stroke care. The “Time is Brain” mantra emphasizes the importance of swift action. 2️⃣ Multidisciplinary Approach: Collaborative teamwork involving neurologists, nurses, radiologists, and rehabilitation specialists ensures comprehensive care. 3️⃣ Cutting-edge Technology: Invest in state-of-the-art imaging and treatment options to enhance diagnostic accuracy and patient outcomes. 4️⃣ Patient-Centered Care: Customize treatment plans to individual needs, considering age, comorbidities, and preferences. 5️⃣ Community Education: Raise awareness about stroke risk factors, symptoms, and prevention within the community. 6️⃣ Continuous Training: Keep healthcare professionals updated with the latest advancements in stroke care through regular training and certifications. 7️⃣ Quality Assurance: Establish rigorous quality control measures to maintain high standards of care. 8️⃣ Data-Driven Decision Making: Leverage data analytics to optimize resource allocation and improve care delivery. Remember, effective stroke services can make a life-changing difference. Let’s continue to advance our efforts in this crucial area of healthcare. 💪💙 #StrokeCare #HealthcareExcellence

Beyond superlative care in times of crisis, what makes patient care unique at academic medical centers? First, the full spectrum of health is addressed, starting with primary care, which means routine and preventative medicine, mental health, and social support. It also encompasses highly specialized critical and complex care — AAMC member teaching hospitals include 65% of level-one trauma centers, 63% of all pediatric intensive care beds, and 98% of all NCI-designated comprehensive cancer centers.

Time to be bold about brain health! Join Raj Shah, MD (Rush) and Eukesh Ranjit, MD (SIU) along with Elaine T. Jurkowski, Ph.D, M.S.W., Professor Social Work at Southern Illinois University and the "Dare To Care" radio show. Learn how her unique show connects and informs social workers, community members and primary care physicians on the efforts being made across the state in the early detection and treatment of Alzheimer’s disease and related dementias. The Alzheimer's Association found that 82% of primary care physicians said they're on the front line of providing care for dementia care, but nearly two in five of them reported that they're never, or only sometimes, comfortable with making a diagnosis of dementia. Early detection is important, and also education about what to expect and what to do in order to help both the caregiver and the individual with dementia. Listen at https://lnkd.in/gnUiWESX and also find resources, toolkits and more!

🌟 A big thank you to Emergency Department Anne Healy and Stroke CNS Mary Murphy at Mercy University Hospital for inviting me to help facilitate their inter-departmental stroke simulations! 🌟 With guidance from the well-established simulation program at CUH, we successfully ran a comprehensive standardised patient FAST call simulation that covered the entire journey from pre-alert at the ED all the way through to Thrombectomy. Simulations like these are incredibly valuable, as they have the potential to significantly enhance patient care. By improving our time to decision in stroke patients, we can make the entire treatment process smoother and more efficient. As we know, time is brain, and every second counts when dealing with stroke patients. 🧠⏱️ Being part of such initiatives is truly rewarding. It allows us to provide critical guidance, foster interdisciplinary teamwork, and witness firsthand the benefits that well-executed simulations can bring to clinical practice. These exercises not only help refine skills but also ensure that all team members are well-prepared to handle real-life emergencies with confidence and precision. I am thrilled to see how these simulations contribute to improving outcomes for patients and am excited about the progress that will be achieve together in the coming months. Here’s to more successful simulations and continued advancements in the program! #HealthcareSimulation #PatientCare #StrokeAwareness #EmergencyMedicine #Interdepartmental #Interdisciplinary #ContinuousImprovement

TLI Investigator and Interim CEO Dr. Marianne Gausche-Hill Co-authors New Study Revealing Cost-Effectiveness of Pediatric Readiness Becoming highly pediatric-ready could decrease child mortality rates by up to 76%. A groundbreaking study published in the Journal of the American College of Emergency Physicians Open demonstrates that adhering to national pediatric care guidelines in emergency departments (EDs) saves children’s lives and is cost-effective, ranging from $4 to $48 per patient. The study emphasizes past research showing that becoming highly pediatric-ready could decrease child mortality rates by up to 76%. Marianne Gausche-Hill, MD, FACEP, FAAP, co-first author and also an emergency physician at Harbor-UCLA Medical Center, emphasized the importance of these results: "This study confirms what we've observed over the years—enhancing pediatric readiness not only saves lives but is also an achievable goal for every ED, regardless of their size or resources. It's an investment worth making." Study is available here: https://lnkd.in/gg_QtMFA