Mid-America Transplant’s Post

Blood analysis has uncovered potential underlying causes of Long Covid. A study in Science found significant differences in the complement system, part of the innate immune system, in patients who had recovered fully from SARS-CoV-2 infection compared to those with Long Covid. Dysregulation in the circulating proteins of the complement system led to issues with blood clotting and widespread inflammation in the cardiovascular system of Long Covid patients. This research sheds light on potential interventions for clinical testing and may open avenues for treatment options for Long Covid. #LongCovid #BloodAnalysis #ComplementSystem #SARSCoV2 #ImmuneSystem #Inflammation #HealthResearch #TreatmentOptions

Happy #nationalminoritydonorawareness Day! Today, on National Minority Donor Awareness Day, we stand together to shed light on the urgent need for organ donors within the rare kidney disease (RKD) community. Minority organ donors can make a huge difference in the lives of those affected by RKD. Here's how you can make a difference: 💚 Raise Awareness: Share your story, educate your friends and family, and spread the word about the importance of organ donation within the rare kidney disease community. Knowledge is power, and your voice can inspire action. 💚 Be a Champion: Encourage others to register as organ donors. By signing up, they have the potential to become heroes for patients awaiting transplants, giving the gift of life and hope. 💚 Advocate for Equity: Let's work together to bridge the gap in healthcare disparities. Advocating for equitable access to transplantation can transform lives and improve outcomes for those affected by rare kidney diseases. To learn more about the rare kidney disease journey, visit NephCure.org.

💜 November is Pancreatic Disease Awareness Month 💜 📓 Chronic pancreatitis is a persistent inflammation of the pancreas, affecting around 50 in every 100,000 adults, and 0.5 in every 100,000 children annually worldwide (including our remarkable little pancreatitis warrior 💖 ). 🚼 In children, chronic pancreatitis is often linked to genetic mutations, congenital anomalies in the pancreatic duct, or hereditary conditions, rather than lifestyle factors. ⚠ Chronic pancreatitis typically presents with severe abdominal pain and can lead to malnutrition, diabetes, and increased cancer risk. It carries significant risk of morbidity and mortality. ❗Currently there is no cure - Please help change that and consider reposting or donating:

Wilhelm Foundation can today proudly announce that we have signed a cooperation agreement with ERN ITHACA where we will be SUPPORTING PARTNER. ERN-ITHACA is a patient-centred network that meets the needs for highly specialized, multidisciplinary healthcare for patients with rare (multiple) malformation syndromes and rare intellectual and other neurodevelopmental disorders of genetic, genomic/chromosomal or environmental origin, both diagnosed and undiagnosed. ITHACA stands for Intellectual disability, TeleHealth, Autism and Congenital Anomalies. The name ITHACA also refers to the Odyssey that for many families the diagnostic journey of a child with a rare developmental disease represents. Together we can make a difference, help Wilhelm Foundation saves life! Donate now! https://lnkd.in/e_FPHN9P #undiagnosed #diagnosis #undiagnosedhackathon #children #rarediseases #savelives #UDP #raredisease #diagnosis #RDI #genetics #genetictesting #rarediseases #rarediseasesinternational #Ågrenska #ChanZuckerbergInitiative #RAO #RareAsOne #Hackathon #wilhelmfoundation EURORDIS UDNI Undiagnosed Diseases Network Foundation (UDNF) National Organization for Rare Disorders RARE DISEASES INTERNATIONAL UNIAMO Federazione Italiana Malattie Rare Onlus Rare and Undiagnosed Network (RUN) Illumina

"Sickle Cell Disease is a group of inherited red blood cell disorders. Healthy red blood cells are round, and they move through small blood vessels to carry oxygen to all parts of the body. In someone who has SCD, the red blood cells become hard and sticky and look like a C-shaped farm tool called a “sickle”. The sickle cells die early, which causes a constant shortage of red blood cells. Also, when they travel through small blood vessels, they get stuck and clog the blood flow. This can cause pain and other serious problems such infection, acute chest syndrome, and stroke."https://lnkd.in/ejtwKmN2. September is Sickle Cell Awareness Month, and the 19th is World Sickle Cell Day. Please help provide funds to spread awareness, increase healthy pregnancies, and ensure more screenings for sickle cell. I have included my team's page link. https://lnkd.in/eiPzNiem

Support the 'MCG Lucky 🍀' team fundraiser in the International Foundation for Gastrointestinal Disorders (IFFGD) 2024 Virtual Digestive Health Wellness Event. Digestive Health absolutely needs research $$$ and young, inspired 🧠 in the field. Why? Here's 4 reasons: 1. Digestive Health is not understood. 2. Digestive Health is the key to wellness. 3. Digestive Health is grossly overshadowed by cardiovascular health and cancer prevention. 4. Digestive Health is a driver for cancer, depression, dementia, recovery from stroke, and more. IFFGD is the nonprofit, patient organization to make it happen. Pitch in $5 or whatever you can, join our team, spread the word, and learn more https://lnkd.in/eCpBCdEQ. True independence starts with gut health. Event starts July 8. Happy 🇺🇸 Day! #Moves4GIHealth24 #guthealth #research #clinicalresearch #clinicaltrials #medicine #education #health #gastroenterology #neurogastroenterology #academicmedicine

Cardiovascular disease (CVD) is a leading cause of death worldwide, and its treatment requires accurate diagnosis, timely intervention, and personalized care. Artificial intelligence (AI) has the potential to significantly improve the treatment of cardiovascular disease by enhancing various aspects of patient care. In my opinion AI has the potential to revolutionize the treatment of cardiovascular disease. By improving early detection, enabling personalized medicine, and enhancing patient monitoring, AI can help healthcare professionals deliver more effective and efficient care, ultimately leading to better outcomes for patients with cardiovascular disease. #cardiovascularHealthCampaign2023 #worldheartday

#Day10 has arrived, and #ColliersYEGIndustrialTeam (Rod Connop, Evelyn Stolk, CCIM, Ning Good, Chance Thomas, and #AllieConnop) wanted to pay tribute to our long time valued relationship and dealings with PwC, and Sean Fleming, CIRP, who have selected Alberta Diabetes Foundation as their charity of choice. The Alberta Diabetes Foundation (ADF) has a vision for a world without diabetes. "We will do this by rapidly and strategically funding cutting edge diabetes research in Alberta for the world. For over 30 years, ADF has funded research that has improved lives for people with diabetes. The first 12 years focused on islet cell transplantation that led to the “Edmonton Protocol” - still an international standard of care. Today, ADF funds world-renowned research at the Alberta Diabetes Institute for the prevention and treatment of Type 1, Type 2 and pre-diabetes. We support developing researchers (studentships), emerging research, and innovations in research that disrupts traditional thinking, including inspiring commercialization. ADF is committed to finding a cure for diabetes in Alberta!" To make a donation or learn more about what Alberta Diabetes Foundation is doing, please check out their website: https://lnkd.in/ggnPc7GD #collierscanada #givingback #12DaysofGiving #ColliersYEGIndustrial #Day10

Welcome to rare disease day 2024. We want you to meet the real people affected by NF2 • 3.5 million people in the UK and 30 million people across Europe have a rare disease. • Rare diseases disproportionately impact children • In the UK as a whole around 1500 people have NF2, there are about 900 of us in England We are each affected differently but are linked together by our rare disorder NF2 related Schwannomatosis (NF2). Today we meet Hermienke she explains to us how her childhood seemed very abnormal with a diagnosis so young, but she is a great fighter to our cause, raising awareness matters dearly to her and she is a fabulous advocate. “ I had my first MRI when I was 12. At 13 my first vestibular schwannoma was radiated, and at 18 the other, along with radiation to a tumour on my brainstem and two surgeries to remove a tumour from my lumbar spine. I have a radiated tumour on my trigeminal nerve and last year I had four surgeries relating to vocal cord paralysis. I spent two weeks barely breathing through a hole in my neck and it was one of the worst experiences of my life. NF2 ensured I had a very unorthodox childhood, I inherited it from my father, so it’s the only life I’ve ever known. Completely abnormal, filled with doctors and tests and tumours since I had a mind to remember. Talking is also important for finding better treatments and maybe even a cure, Awareness matters, and none of our voices are too small to make a difference." NF2 is a life long genetic condition There is no beginning, middle or ending to any of our stories, no remission or breaks. Treatment options are surgery/radiosurgery/chemotherapy which often results in loss of function of the involved nerve. NF2 IS FOR LIFE Reading real life stories about how NF2 affects people helps others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness. You can donate here to our research #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

Get Help - Versus Arthritis are here for you: whether you're looking for information about your arthritis condition, or you want to support family and friends, we can help... https://lnkd.in/e_GsfUnu #arthritis #arthritisawareness #osteoarthritis #rheumatoidarthritis #helpline #fibromyalgia #charity #notforprofit #VersusArthritis