Mid-America Transplant’s Post

In this episode of Transplant Talks, we explore the remarkable journey of Barbara Gould, who, after a grueling battle with COVID-19 received a life-saving liver transplant from Casey Czerpak, a selfless living donor. We talk about their moving journey, the challenges they faced, and how their experience deeply affected their families, highlighting the incredible impact of organ donation. Join us to discover their inspiring tale of hope, resilience, and the powerful connection forged through this act of kindness. https://lnkd.in/ggqRihV5

💚It is September!! Muscular Dystrophy Awareness month! 💚 We wear green! What is MD - Muscular dystrophies are a group of muscle diseases caused by mutations in a person’s genes. Over time, muscle weakness decreases mobility, making everyday tasks difficult. There are many kinds of muscular dystrophy, each affecting specific muscle groups, with signs and symptoms appearing at different ages, and varying in severity. link here for more information. https://lnkd.in/e2ea9G3T

The EHE Foundation is proud to be one of 85 patient-led organizations in the Chan Zuckerberg Initiative's "Rare as One" project. CZI funding has contributed to the establishment of our Patient Registry and the EHE Biobank, both foundational research tools working toward treatments and a cure for EHE. Our patient and caregiver community has been empowered and educated by the EHE 360 Patient Conferences and Community Connections programming, both supported by CZI funding as well as private donations. Learn more about challenges faced by patient-led rare disease organizations and CZI's work to support them in this article by Tania Simoncelli: https://lnkd.in/eSGyMkyE

A kidney can be transplanted from a deceased donor or a living donor. A living donor can be either a related living donor or a non-related living donor. A related living donor is someone genetically related to the patient eg brother, mother, cousin and a non-related living donor is someone with no genetic link to the patient eg close friend, spouse. Currently in South Africa there are thousands of patients needing a kidney transplant and this need far outweighs the availability of deceased donor kidneys. Depending on a patient’s blood group, the waiting time for a deceased donor kidney can be up to 10 years. This can be devastating for a patient on dialysis and sometimes a patient will die whilst waiting for a deceased donor kidney. This current situation in South Africa therefore drives the need for living kidney donation. The decades of experience in living kidney donation shows a very high success rate and excellent outcomes for both the recipient and the living donor. To find out more about becoming a kidney donor, click on the following link: https://odf.org.za/ 🌐 www.dgmc.co.za #wdgmc #witsdonaldgordon #witsuniversity #kidneydonation #needakidney #kidney #donor #transplant #kidneytransplant

https://lnkd.in/gRpzVda8 GIVING TUESDAY IS NOVEMBER 28TH! As we reflect on Cure JM’s 20th anniversary, I am awed by the progress you, our friends, have made possible.   A task that seemed daunting 20 years ago – to change the world for patients diagnosed with juvenile myositis – is now within our reach. Children diagnosed today are doing much better than ever in history. And we are just getting started.  With the momentum coming out of our 20th anniversary year, we are doubling down on our crucial work to improve the lives of our patients.  Since last year's Giving Tuesday, we have made many recent research investments, resulting in better patient outcomes. Your support has allowed Cure JM to: ·    Expand the Cure JM Clinical Care Network of children’s hospitals to 22 locations across the United States, Canada, and the UK. This network of highly trained and experienced JM doctors is essential to our work to assure that our JM children receive only the best care. ·    Fund critical components of the clinical trial in JM for the drug abatacept. This trial was conducted at Cure JM’s Center of Excellence at George Washington University. The results showed that for JM children less responsive to traditional treatments, abatacept was safe and effective in improving muscle strength and stamina while reducing skin rash. Significantly, patients using abatacept improved at the same time prednisone dosage was reduced. I believe we can now expect that abatacept will take its place in a small but growing number of alternative drugs used to combat JM. ·    Fund 12 crucial research grants at institutions in the U.S. and around the world. Through this critical medical progress, we remain laser-focused on drug development and repurposing to improve treatments for JM patients. This is the good news. In fact, to be funding a global network of cutting-edge research is an enormous achievement, and we are very grateful. The difficult news is that, as you know, research is expensive and clinical trials even more so. We need your support to fund these important projects and upcoming clinical trials. We can’t leave potential critical breakthroughs on the table simply because the money isn’t there. Your Giving Tuesday gift will help ensure that we can leave no stone unturned. Our family’s goal is to raise $25,000 for juvenile myositis research, care, and support:  ·    Gifts can be made online at https://lnkd.in/gRpzVda8 ·    Checks can be made out to Cure JM and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297 with “Hume Family” Thank you for being so supportive. It takes an army of friends and family to make this work possible, and we are grateful to have you by our side. With appreciation, Tom & Shari Tom and Shari Hume Cure JM Co-Founders

Everything You Need to Know About Organ Donation This blog delves into the intricacies of organ donation, the process involved, the importance of medications for recipients, and how it impacts the immune system. Know more : https://lnkd.in/g2QqYagP #organdonation #transplant #immunesystem #onlinemedicine #healthguide #mrmed

While the potential for saving lives through deceased organ donation is immense, South Africa currently faces a challenge – a low organ donation rate. Despite the urgent need and the growing list of patients awaiting transplants, the number of available organs is insufficient. As a nation, we must come together to address this critical issue and bridge the gap between supply and demand. Together, we can turn this situation around and make a meaningful impact on the lives of those in need. To find out more about becoming and organ donor, please click here: https://odf.org.za/ 🌐 www.dgmc.co.za #wdgmc #witsdonaldgordon #witsuniversity #savinglives #organdonation #organdonor #transplants #transplant #donor

video#3 in living kidney donor series https://lnkd.in/g75MciB3 8:25 minutes This is on my YouTube channel: Dr. J's Kidney Hope Channel, which includes videos about living kidney donation for those considering it, and videos about kidney transplantation for patients with kidney failure

March is Kidney Month, which calls attention to kidney disease, impacting more than one in seven Americans. Today we're spotlighting  a rare genetic disorder causing blood clots in vessels, leading to kidney failure and other serious issues called atypical hemolytic uremic syndrome (aHUS). Genetic variants within several genes, including CFI, C3, CFH, and CFHR5, are the primary factors contributing to aHUS. While aHUS isn't curable, it can be managed with eculizumab, a frontline treatment. Genomenon has contributed to advancing the understanding of aHUS by curating three key genes associated with the disorder. Our analysis of over 400,000 scientific articles has led to the identification and classification of nearly 15,000 variants within CFI, C3 and CFH genes. Learn more about this disease: https://www.kidney.org/ Explore Genomenon's Mastermind® Genomic Intelligence Platform to access information on all three curated genes associated with atypical hemolytic uremic syndrome: https://lnkd.in/dmCu7taY #kidneymonth #kidneyhealth #protectyourkidneys #MastermindGIP #rarediseaseresearch

This is your friendly reminder to come on out on Saturday May 18th from 9am - 2pm at the American Red Cross - South Mississippi Chapter in Gulfport and join Morgan Legacy Group, LLC in donating blood for the sickle cell community. We need a diverse culture of community members to donate! Here are 3 sickle cell disease facts related to blood transfusions: 1. Blood transfusions can help manage complications of sickle cell disease. These complications include acute anemia, painful episodes called vaso occlusive crises, and organ damage. By infusing healthy red blood cells, transfusions can help increase oxygen flow, reduce pain, and prevent further complications. 2. Frequent blood transfusions can lead to iron overload. Red blood cells are rich in iron, and with repeated transfusions, excess iron can accumulate in the body. This iron overload can damage organs like the liver, heart, and endocrine system. To address this, iron chelation therapy is often used to remove excess iron from the body. 3. Finding compatible blood can be challenging. People with sickle cell disease often have complex blood types, making it difficult to find compatible blood for transfusions. This is why blood donation is especially important for sickle cell patients, as it helps ensure a readily available blood supply. Donate blood. Save a life. It really is that simple! Want to learn more? Let's connect. #MorganLegacyGroup #AdvocacyInAction #SickleCellAwareness https://lnkd.in/eRH5rQsF