I am beyond proud to announce that last week, Otherside led the launch of a new brand and campaign for what is, I believe, the single most important initiative in the world of epilepsy. The National Plan for the Epilepsies. If you don’t know about The National Plan for the Epilepsies, you should. Once passed, it should mean the largest federal investment EVER in the epilepsies. Aligning with the goals of IGAP (the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorder), the National Plan will aim to: - Raise epilepsy policy prioritization and strengthen governance - Provide effective, timely and responsive epilepsy diagnosis, treatment, care - Implement epilepsy strategies for promotion and prevention - Foster epilepsy research and innovation and strengthen information systems - Strengthen the public health approach to epilepsy A National Plan for the Epilepsies will give us all – from advocates and caregivers to researchers and clinicians - a clear, direct, shared path toward a better future for people living with epilepsy. You can learn more about it here: https://lnkd.in/egAJ6URd And, as always, Otherside here: https://lnkd.in/eUkuxd7U #epilepsy, #epilepsyawareness, #epilepsyadvocacy, #epilepsyresearch, #epilepsycommunications, #epilepsynationalplan
Mark Slater transformed and professionalized this effort and we are grateful. For his talent, time, passion, compassion and voice. He is a true gift to our community and an absolute pleasure to know and work with. Words aren't enough - heartfelt thanks!
So exciting - this is long overdue!!
Absolutely incredible. So excited to see this move forward and make changes!
Exciting times!
Epilepsy Advocate | Founder | ECD | Board Member | Brand Strategist
4wAngelman Syndrome Foundation, @BAND Foundation, CACNA1A Foundation, @CFC International, The CASK Gene Foundation, CSNK2A1 Foundation, CTNNB1 Connect & Cure, CURE Epilepsy, CureSHANK, The Danny Did Foundation, DEE-P Connections, Dravet Syndrome Foundation, Dup15q Alliance, Epilepsy Alliance America, Epilepsy Foundation, @Epilepsy Learning Healthcare System, SCN2A- The FamilieSCN2A Foundation, Foundation for Angelman Syndrome Therapeutics, GABAA Receptor Alliance, Glut1 Deficiency Foundation, Hardy Handz Foundation, @HNRNP Family Foundation, Hope for HIE (Hypoxic Ischemic Encephalopathy), International Foundation for CDKL5 Research (IFCR), International SCN8A Alliance, Joey's Song, KCNQ2 Cure Alliance, KCNT1 Epilepsy Foundation, @Koolen-de Vries Syndrome Foundation, @Koolen-de vries, Lennox-Gastaut Syndrome (LGS) Foundation, The MED13L Foundation, norse institute norseinstitute.org, Partners Against Epilepsy Mortality (PAME), @Paul's Purple Warriors, Pediatric Epilepsy Surgery Alliance, Phelan-McDermid Syndrome Foundation, Rare Epilepsy Network (REN), RASopathies Network USA, Ring14 USA, @SNAP25 Foundation, The Sturge-Weber Foundation, STXBP1 Foundation, SYNGAP1 Foundation, @TBC1D24 Foundation, TESS Research Foundation, TSC Alliance