Mila’s mom, founder/co-founder Mila's Miracle Foundation, N=1 Collaborative, EveryONE Medicines
Henry Saladino can say a few words, but his mouth and tongue don’t cooperate with his thoughts. He understands everything other 4 year olds can, but his genetic disease, alternating hemiplegia of childhood, or AHC, has made life far more difficult, frustrating and scary than for the other kids his age. Like Henry, Mila struggled to tell us what she wanted to say. I can still feel the sadness of watching her try so hard to form the words, only to sigh, bow her head and give up. Henry’s parents find their way of connecting. They sit beside him and say, "how much do we love you?", waiting in silence as Henry responds by reaching one arm up high to say "Soooo much!!". Then they do the same to show him they understand. This Is Today - https://lnkd.in/dUUzDFB Photo Credit: Ulli Bonnekamp Mary Saladino - For Henry AHC Anthony Saladino
So very grateful to be a part of anything you are Julia Vitarello. Thank you for including our sweet guy.
Creative Director & Documentary Filmmaker with 20+ years experience creating content for broadcast, streaming + digital
1wThis photo is incredible. It says so much about their connection.