Emmes’ Post

Using video assessment for clinical trials for rare diseases- Easy, Effective, and in the Comfort of Your Own Home! This is a patient friendly way:) I love this lady! She is so hardworking and passionate about rare disease patients and the work she does:) #rarediseases #videoassessment #clinicaltrials #patientfriendly #patientcentered #rarediseaseresearch

CPD ALERT🚨 Next week I’ll be attending the Life Rebalanced Live virtual conference, sponsored by the Vestibular Disorders Association. As a translator working in the medical field (and also as a patient) I have a particular interest in a couple of topics such as: ✅Vestibular Migraine ✅Tinnitus ✅Chronic Imbalance ✅Neurologic Rehabilitation Staying up-to-date with the latest developments is key to enhancing your knowledge and expertise. Attending the conference is also a great way to network with healthcare professionals and industry insiders. 👉Who’s going to join me? 🌐🌐🌐🌐 For translation into Portuguese & Portuguese language and culture-related content: ✔️follow my hashtag 🔥#PortugueseForYou🔥 ✔️ring the bell🔔below my banner  ✔️connect with me. #medicaltranslation  #litranslators #health #patients #balance

This June, I want to take a moment to raise awareness about scoliosis, a condition that affects millions of people worldwide, including myself. Scoliosis is an abnormal curvature of the spine that can cause physical and emotional challenges if left untreated. As someone living with scoliosis, I understand the importance of early detection and proper treatment. My journey with this condition has been a rollercoaster, but I've learned that with the right support and resources, it is possible to manage scoliosis and live a fulfilling life. Scoliosis can develop at any age, and its causes can vary from genetic factors to neuromuscular conditions or unknown origins. What's crucial is to be aware of the signs and seek medical attention if you suspect you or a loved one may have scoliosis. This National Scoliosis Awareness Month, I encourage everyone to educate themselves about this condition and the available treatment options. Let's break down the stigma and misconceptions surrounding scoliosis and create a more inclusive and understanding environment for those affected. If you or someone you know is living with scoliosis, know that you are not alone. There are support groups, resources, and communities dedicated to providing guidance and encouragement throughout this journey. Together, we can make a difference by raising awareness, advocating for improved access to care, and supporting those affected by scoliosis. #ScoliosisAwareness #SpineHealth #ScoliosisWarriors #ScoliosisSupport #EarlyDetection #ScoliosisTreatment #ScoliosisAwarenessMonth #ScoliosisAdvocacy #NationalScoliosisAwarenessMonth

Courageous organization and members! Growing stronger for over thirty years.

LIVING LIFE TO THE FULL WITH MULTIPLE SCLEROSIS. In the recent webinar led by Dr.Vikram A, the focus was on empowering individuals living with Multiple Sclerosis (MS) to lead fulfilling lives. The Doctor began by shedding light on the lesser-known aspects of MS, emphasizing that it’s more than just an autoimmune condition. Read the full events activity : https://lnkd.in/gGuMABAi

Raise your hand if you've ever heard this before! 🤚 One of the most daunting challenges many dystonia patients face isn't just managing the symptoms but securing a correct diagnosis in the first place. Navigating through the healthcare system can be a maze of misinformation, with too many grappling with misconceptions and judgements from those who are unacquainted with this complex condition. It's disheartening, to say the least, when patients are told, "It's all in your head." Such statements not only trivialize the very real physical manifestations of dystonia but also imply it's a mere fabrication or a mental condition. This not only adds layers of unnecessary guilt and self-doubt but delays the crucial process of identifying and managing the disorder. Here's the truth: Dystonia is a neurological condition, deeply rooted in brain functioning. It's not 'made up', nor is it a manifestation of one's psyche. It’s about misfiring neurons, not imagined symptoms. This underscores the pressing need for more education among medical professionals and the broader community. Every time a dystonia patient is misunderstood or misdiagnosed, it's a missed opportunity for early intervention and management. To all those living with dystonia: Your experiences are valid. Your symptoms are real. And to those still searching for answers, don't lose hope. Your strength, resilience, and advocacy are paving the way for a future where dystonia is understood and recognized as it should be. To everyone else: Let's be allies. Let's educate ourselves and break down these barriers of misconception. Understanding is the first step towards empathy, support, and better care. Join the cause! Like, share, comment, and subscribe. Every little action helps raise awareness!!! #dam23 #dystoniaawarenessmonth2023 #dystonialife #dystoniaawareness #dystoniaawarenessmonth #dystonia #dystoniaeurope #dystoniafighter #cervicaldystonia #generalizeddystonia #blepharospasm #braindisporder #movementdisorder #fightfordystonia

Muscular atrophy, also known as muscle wasting, is a medical condition characterized by the loss of muscle mass and strength. It can occur as a result of various factors, including the disuse of muscles due to immobility or lack of physical activity, neurological disorders, aging, and certain diseases like muscular dystrophy or amyotrophic lateral sclerosis (ALS). Join us this Muscular Atrophy Awareness Month as we shine a light on the courage and resilience of those battling this challenging condition. Let's spread awareness, share knowledge, and extend our support to individuals and families affected by muscular atrophy. Together, we can make a difference by promoting research, understanding, and empathy. Help us build a more inclusive and compassionate world for those living with muscular atrophy. www.elegantcarevilla.org #MuscularAtrophyAwareness #GoldenYears #SeniorHealth

Empowerment through knowledge 🧠✨ Did you know that more than every second person is affected by a neurological disease? In Europe, almost 60% of the population is impacted by strokes, parkinson, epilepsy or other neurological diseases. They are the third most common cause of disability and premature death. Tendency rising as society continues to age. Yet, the general knowledge of these conditions remains surprisingly low, and finding reliable information can be a daunting task.   This is why we decided to establish a blog on our product website teora-xr.de. It is designed to empower by providing valuable insights into different neurological conditions. We're kicking off with a weekly series, starting with a deep dive into strokes: https://lnkd.in/gPRnpZR2   If you want to keep up to date on the topics of our weekly series, follow our product page teora.   #NeuroHealth #Blog #EmpowerThroughKnowledge #brainhealth

#worldspineday #16October #4dayslate The aims of WSD: 1. To raise awareness about spinal health and spine disorders among individuals, communities, professionals and all stakeholders associated with spine care; 2. To provide a forum for ongoing discussion about the burden of spinal disorders and the sharing of best practices; and 3. To promote an interdisciplinary, collaborative approach to easing the burden of spinal disorders.

Every Share Matters: June is Myasthenia Gravis (MG) Awareness Month, a time when the global MG community comes together to educate people on the challenges faced by those living with this chronic autoimmune disorder. MG can impact a person’s nervous system and muscle function, as brain signals are blocked, affecting their ability to see, swallow, walk, breathe, and more. The Myasthenia Gravis Foundation of America supports those living with this rare neuromuscular, autoimmune disorder, funding research to explore potential new treatments and seek a cure. Share this post and help raise awareness for those living with MG this June. Visit https://myasthenia.org/ for more ways you can help all year. #MGAwareness #MyastheniaGravis #WorldWithoutMG