Children’s Hospital Association’s Post

Learn more about the state of pediatric palliative care, through this #Cardus report.

Public and patient involvement (#PPI) is crucial for conducting reliable #paediatric health research, but how do we know what good PPI looks like 🤔? This article explores the importance of reporting PPI activities in a transparent way so that we can share and learn from each other 🤝 Read about meaningful PPI here: https://ow.ly/aPbX50QifQs #knowledgesharing #conect4children #c4c

U.S. News Live Presents Webinar: Transforming Pediatric Care Delivery Through Value-Based Innovation How are children’s hospitals and health systems maximizing outcomes for patients while boosting efficiency in care coordination and delivery? For many, community partnerships are proving increasingly effective in leveraging the additional resources of stakeholders like schools, public health agencies and private companies to prioritize population health and social determinants of health like transportation and access to nutritious food. Institutions adopting a clinically integrated network approach are finding that they can better align programs, processes and incentives with payers and cross-sector partners to meet the ever-changing needs of their markets. By putting a premium on prevention, data-driven clinical initiatives and enhanced care coordination, systems are curbing costs while also seeing better outcomes and an improved patient and family experience. In this webinar, hear from a diverse group of health care leaders about the power of such partnerships and the reimagining of pediatric care delivery. Learn more at https://lnkd.in/gnTwWATW

Social Determinants of Health (SDOH) are essential to understanding overall health beyond clinical care. Recognizing the impact of socioeconomic factors, environment, and health behaviors can transform patient outcomes. While recent collection mandates have only applied to adults, many pediatric health systems recognize that SDOH plays a critical role in children’s development and health, and have already implemented SDOH initiatives. Read the takeaways from our latest Pediatric Leadership Cohort and join us to collaborate on best practices to address challenges in pediatric care. https://lnkd.in/eUnDMcSe

September is Disease Literacy Month. As healthcare becomes more complex and specialized, patient education is essential to improving treatment outcomes. The better patients understand their disease and its causes, the more willing and able they are to fully participate in their disease. This is especially important in managing complex conditions like chronic kidney disease (CKD). Patient education is fundamental to Healthmap’s Kidney Population Health Management Program. Our experienced Care Navigators work directly with members as their clinical coach outside the physician’s office. An important part of their job is to help members understand their disease and engage in its treatment. To learn more, click the links below. https://hubs.li/Q020_bD20 https://hubs.li/Q020_bKB0

Our study exploring role of telemedicine to improve pediatric care in LMIC is accepted for a poster in one of the most impactful child global health conferences! If you are attending, please pass by my poster and share your thoughts #CHOP #globalhealth #Under_5_mortality #innovation #equity

Dissecting the construct of care gaps (and fragmentation) from an MD's and Healthcare Operations / Clinical Informatics / Public Health perspectives - in the context of Population Health https://lnkd.in/gyfXfzi8

🩺 𝙅𝙪𝙣𝙚 𝙨𝙥𝙤𝙩𝙡𝙞𝙜𝙝𝙩: 𝙈𝙚𝙙𝙞𝙘𝙖𝙡 𝙘𝙖𝙧𝙚 𝙖𝙣𝙙 𝙘𝙡𝙞𝙣𝙞𝙘𝙖𝙡 𝙥𝙧𝙖𝙘𝙩𝙞𝙘𝙚! 🩺 As we conclude our focus on “Medical care & clinical practice” this June, it is important to reflect on the critical aspects highlighted throughout the month. Preterm and ill newborns often face a 𝙧𝙖𝙣𝙜𝙚 𝙤𝙛 𝙢𝙚𝙙𝙞𝙘𝙖𝙡 𝙘𝙝𝙖𝙡𝙡𝙚𝙣𝙜𝙚𝙨, from respiratory distress and neonatal jaundice to brain injuries and infections. Addressing these issues 𝙧𝙚𝙦𝙪𝙞𝙧𝙚𝙨 𝙨𝙩𝙖𝙣𝙙𝙖𝙧𝙙𝙞𝙨𝙚𝙙, 𝙝𝙞𝙜𝙝-𝙦𝙪𝙖𝙡𝙞𝙩𝙮 𝙘𝙖𝙧𝙚 𝙖𝙘𝙧𝙤𝙨𝙨 𝙀𝙪𝙧𝙤𝙥𝙚. 🌍🏥 📊 The development and implementation of European-wide reference standards are essential for 𝙝𝙖𝙧𝙢𝙤𝙣𝙞𝙨𝙞𝙣𝙜 𝙘𝙖𝙧𝙚, 𝙧𝙚𝙙𝙪𝙘𝙞𝙣𝙜 𝙞𝙣𝙚𝙦𝙪𝙖𝙡𝙞𝙩𝙞𝙚𝙨, 𝙖𝙣𝙙 𝙚𝙣𝙨𝙪𝙧𝙞𝙣𝙜 𝙩𝙝𝙚 𝙗𝙚𝙨𝙩 𝙤𝙪𝙩𝙘𝙤𝙢𝙚𝙨 𝙛𝙤𝙧 𝙖𝙡𝙡 𝙞𝙣𝙛𝙖𝙣𝙩𝙨. These standards provide a framework for consistent treatment, allow for outcome comparisons, and help identify areas needing improvement. 🤝 𝘾𝙤𝙡𝙡𝙖𝙗𝙤𝙧𝙖𝙩𝙞𝙤𝙣 among healthcare professionals, parent organisations, hospital administrators, and policymakers is crucial for 𝙚𝙛𝙛𝙚𝙘𝙩𝙞𝙫𝙚 𝙞𝙢𝙥𝙡𝙚𝙢𝙚𝙣𝙩𝙖𝙩𝙞𝙤𝙣. By equipping all stakeholders with the necessary 𝙩𝙤𝙤𝙡𝙨 𝙖𝙣𝙙 𝙠𝙣𝙤𝙬𝙡𝙚𝙙𝙜𝙚, we can enhance the quality of care for newborns across Europe. 𝙏𝙝𝙖𝙣𝙠 𝙮𝙤𝙪 to all who are dedicated to improving newborn health. Together, we can make a significant impact. 👉 Find out more at: https://lnkd.in/gP2AxqzV #ForTheBestStartInLife #NewbornHealth #BetterStandardsBetterOutcomes #act4babies

As I sit here and reflect on today's ACHDNC meeting, I am struck by how the newborn screening system is truly at a crossroads. Newborn screening exists because of advocacy - from families, scientists, policymakers, and clinicians. This is a fact that hasn't changed; in fact, it has grown as these groups come together more than ever with the shared goal of reducing the diagnostic odyssey to allow for early, potentially life-altering treatment. Today's discussion around whether to add Krabbe disease to the RUSP illustrated how what may seem like a no-brainer decision can be complicated by considerations around the mandated nature of NBS, benefits vs harms, access and equity, and limited public health/medical resources. These decisions aren't easy. And they aren't going to be getting any easier. Small tweaks to the decision-making process aren't going to cut it anymore. To bridge the gaps and address the nuanced (and often valid) considerations from various perspectives, a monumental shift in how we approach NBS in this country has to happen. It is the only way to meet the needs of the rare disease community while preserving this public health program. The time to be bold is now.

AVA Association for Vascular Access in collaboration with other individuals and organizations has created the Vascular Access Equity Patient Survey to study whether skin tone, body size, chronic illness, and other factors affect experiences with PIVC insertion. We hope with this survey we can make meaningful change in IV access and delivery of care. Be part of changing PIVC access care! https://lnkd.in/gd4DhZ7D Survey Information: The community is the expert. As a result, the survey committee is looking for individuals who have personal experience receiving a PIVC or caring for an individual who has received a PIVC. Anyone in the United States and Canada who has had a PIVC placed or cares for an individual (parent/guardian/caregiver) that has had a PIVC may complete this survey. It only takes 10 minutes. This research has been deemed exempt through IRB approval number S23.177 at Marian University, Indianapolis. Participation is voluntary and anonymous.