British Heart Foundation’s Post

Below is an example of the hard work at Living with XXY every day behind the scenes. As we are all aware, image searches for Klinefelter syndrome are about the worst. Sadly, most images provide all the worst-case scenarios inaccurately on a single illustration without regard to the spectrum and treatments that can alleviate many symptoms. These images unnecessarily traumatize parents-to-be and males and families recently diagnosed. We take seriously changing the way the world views XXY. Over the last several months, the nonprofit team of Jennifer, Ryan, and Dr. Shanlee Davis collaborated with Leslie from Nucleus Medical Media, and positive change happened! They teamed up and produced an accurate representation of our community. Not only does it include compassionate illustrations, but it also accurately portrays the common symptoms and insightful support available to mitigate them. It also highlights the positive traits this community brings to the world. This work will save lives. If you donated to the nonprofit, please know that changes like this would not be possible without your support! If you haven't, please consider donating. Your contributions will help us sustain the momentum and create even more significant positive impacts for this community. https://lnkd.in/exjBUcc4

Below is an example of the hard work at Living with XXY every day behind the scenes. As we know, image searches for Klinefelter syndrome are about the worst. Sadly, most images provide all the worst-case scenarios inaccurately on a single illustration without regard to the spectrum and treatments that can alleviate many symptoms. These images unnecessarily traumatize parents-to-be and males and families recently diagnosed. We take seriously changing the way the world views XXY. Over the last several months, the nonprofit team of Jennifer, Ryan, and Dr. Shanlee Davis collaborated with Leslie from Nucleus Medical Media, and positive change happened! They teamed up and produced an accurate representation of our community. Not only does it include compassionate illustrations, but it also accurately portrays the common symptoms and insightful support available to mitigate them. It also highlights the positive traits this community brings to the world. This work will save lives. If you haven't, please consider donating. Your contributions will help us sustain the momentum and create even more significant positive impacts for this community. https://lnkd.in/eBzgEYEZ

📢 Attention, everyone! Did you know that every 3.14 minutes, someone loses their life to a stroke? It's a staggering statistic, but together, we make a difference! 💙 Join us in supporting stroke advocates who work tirelessly to raise awareness, provide resources, and offer support to those affected by this devastating condition. Your donation, no matter the size, can contribute to saving lives and improving the quality of life for stroke survivors. 🙌 Let's come together and be the change we wish to see in the world. Click the link below to donate and make a lasting impact: [insert donation link] ✨ Together, we can rewrite the statistics and create a future free from the impacts of strokes. Please share this post to spread the word and encourage others to support this worthy cause. Together, we can save lives! 💪 #StrokeAdvocates #MakeADifference #DonateForACause

Today, August 31st, marks a day of both remembrance and action – International Overdose Awareness Day. Our BirdieLight team joined in on this commemoration at The Ohio State University, where we distributed hundreds of FREE fentanyl strips and Narcan to students, and the response has been nothing short of incredible. And now, we want to encourage you to make a meaningful impact today too. Join the movement by honoring a loved one lost to overdose with a heartfelt donation. Your support fuels BirdieLight’s mission of free education and harm reduction tools – a pivotal step in preventing further tragedies. #fentanylawareness #ioad2023 #harmreduction #harmreductionsaveslives #fentanylcrisis #overdoseawareness

We now have a LinkedIn page for MoCrazy Strong Foundation! Follow along on what MoCrazy Strong is doing for brain injury awareness and to strengthen opportunities!

OK, I'm the writer in our family, so I hope my brother, Mark, and sister, Dawn, (both high school math teachers) don't make fun of my attempt at a mathematic equation. Here it is: In three days, I will join my wife, Jennifer, and her team – Team MonsterS – for Walk MS in Frankenmuth. This will be my 25th time participating in Walk MS since I was diagnosed in 2000. With this, I'm calculating what it will take to encourage you to support my efforts to benefit me, Jennifer, and the nearly 1 million other people in the United States living with this chronic progressive disease. Here is the breakdown of what it will take to raise the remaining $2,000 to reach my $2,600 goal: • 200 people to donate $10 (there is strength in numbers!) • 80 people to donate $25 ($1 for each year I’ve lived with MS) • 40 people to donate $50 • 20 people to match my $100 donation • 10 people to donate $200 • 4 people to donate $500 • 1 person to donate $2,000 (it never hurts to ask!) As many of my connections to donate whatever they can to help find a cure for this unpredictable disease. Too many numbers? Yeah, you're right. I'll stick to writing a clear and concise message. Here it is: I am asking you to please donate today and support my efforts in ending MS forever. https://lnkd.in/gKaSrU6A #multiplesclerosis #walkms #empowerment

There's only 5 days left to double your donation to MQ! That's double our opportunity to create more life-changing discoveries and support for those who need it most. Double the research, double the impact. Since 2013, we have invested £30m into 65 research projects across six continents; for every £1 MQ invests in supporting research, an additional £5.78 is generated. With your help, we will drive new discoveries, including a new intervention, with a 90% recovery rate preventing PTSD from taking hold in healthcare workers, and new school guidelines on bullying and #MentalHealth in England and Wales. Help change the future for millions of people: https://lnkd.in/gH-cTvQr

How could we support

How would you live your life differently if you knew it was only a matter of time before you went completely deaf and blind? For many, living with Usher syndrome means living with a sense of urgency to experience as much as you possibly can with the vision and hearing you still have, while also recognizing that every second has the potential to bring us closer to finding treatment to stop further progression and even towards finding a cure. Rebecca Alexander, the face of the Every Second Counts campaign, is the embodiment of this sentiment. She reminds us that we can live deeply meaningful lives while losing two vital senses AND keep advocating and fundraising for research and treatments. How can you help? ⬇ 1. Raise Awareness - Get the word out and amplify the voices of those living with the condition and sharing their lived experiences. 2. Donate - All donations to the Usher Syndrome Society go directly to research projects around the world seeking treatments and a cure for Usher Syndrome. Help us make Every Second Count: https://lnkd.in/eVEeQu4F A huge THANK YOU to the Endeavor5 team and Ryan S. Porush, who dedicated their time, expertise, and enthusiasm to the creation of this remarkable film. [VD: A 30 second commercial starring a woman, Rebecca Alexander. The commercial shows the woman waking up, putting on her cochlear implants, using a cane in the streets of New York, taking the subway, working out at the gym, and getting her eyes examined. The video zooms to a close up image of her eye at the end and white text says “When You are Living with Usher syndrome. Every Second Counts. You Can Help: https://lnkd.in/eacyRHyz” with the Usher Syndrome Society Logo” #EverySecondCounts #UsherSyndrome #USH #DeafBlind #RareDisease #Awareness #Commercial #Nonprofit #Help #Support #Donate #Research 

Today is $$ match day!! Any donations made will be matched dollar for dollar! All money raised helps to aid: Babies at Risk: Identifying babies at risk of cerebral palsy and offering early intervention therapies during the crucial initial days of development. Essential Research: This covers early detection and diagnosis of cerebral palsy, regenerative medicine, epidemiology, and the development of innovative mobility and communication technologies. Rural & Regional: Setting up state-of-the-art therapy centres that support children with disabilities and their families in rural and regional areas. Youth Programs: Curated programs that empower teenagers and young adults with disabilities to tackle new challenges and experience the best life possible. +more! Approximately 34,000 Australians have cerebral palsy, and our goal of $1000 will go towards these courageous men and women.