We hope the advancements that happen on our campuses will impact the world, but we also want to impact our communities, too. Our San Diego team—along with our brokers at JLL—joined forces for an afternoon of service to support the RARE Science RARE bear initiative, a grassroots volunteer-driven program that makes one-of-a-kind teddy bears for children fighting rare diseases. RARE Science is a nonprofit that works with patient families and foundations to ID therapeutic solutions for kids, often through repurposing existing treatments. Our team was able to create 20 bears and are excited to send them home!
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Genetic Counselor | Clinical Marketer | Certified Career/Life Coach | Rare Disease Patient Advocate | Program Manager
PSA to all those #raredisease and #patientadvocacy organizations out there! Are you interested in having #geneticcounselingstudents intern for your community... aka a credible/invested resource to support, create, and deliver various projects that align with your mission?! Take our survey so we can learn more of YOUR NEEDS and see how we can support you! TODAY IS THE LAST DAY to take the survey! Don't miss out on this great opportunity and check out the link below!
Thanks to the more than 50 nonprofits in rare disease who participated in our Genetic Counselor Intern survey. We are grateful for the insight and thrilled to be piloting this effort in our Lab to be of service to our rare disease nonprofit colleagues. Today, October 31st, is the LAST DAY to participate in the survey. We look forward to sharing what we're learning soon! https://buff.ly/3SeZcZS #surveysays #rarediseaseintern #rarediseasepartnership
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September is Muscular Dystrophy Awareness Month, and it is only fitting to recognize our Transition2Work nonprofit partner, Muscular Dystrophy Association, in this month's Nonprofit Spotlight. We believe that every action has the power to benefit a person in need, and thanks to our partnership with MDA, we can provide a great service to people living with muscular dystrophy, ALS (aka Lou Gehrig’s disease), and related neuromuscular diseases. Read the full article at https://lnkd.in/envdbHDN
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🐾🧊 Transform Team Building with a Splash of Purpose! 🧊🐾 📢 Calling all Cincinnati area folks! We’re thrilled to introduce Cincy Polar Bears – a new wave of charity-driven team building that's as exhilarating as it is meaningful. 🌟 What’s the Buzz? Imagine combining the thrill of a cold plunge with the warmth of giving back! Our unique events are designed to not only foster team spirit and resilience but also to support a noble cause: pediatric cancer research. 🎗️ 💪 Build Resilience, Foster Unity: Dive into the chilling embrace of cold water and emerge rejuvenated, unified, and ready to conquer challenges. Perfect for corporate teams, community groups, or anyone looking to add an impactful twist to their gatherings. 🙌 Make Your Next Event Unforgettable: Let’s transform your upcoming team-building session into an unforgettable journey of strength, solidarity, and social impact. Together, we can create waves of positive change, one plunge at a time! 📣 Join the Movement: We’re on a mission to make a splash in the fight against pediatric cancer, and every participant, every event, every cold plunge counts towards a future of hope and healing. ❤️ Let’s Connect & Amplify Our Impact: We invite our local community to dive deep, not just into icy waters, but into the heart of giving. Like, comment, and share to spread the word, elevate our mission, and magnify our impact. Your engagement can lead to transformative experiences and life-changing support for those in need. 👍 Ready to Plunge for a Cause? Contact us to make your next team-building event not only memorable but profoundly impactful. Together, let’s chill for change! #CincyPolarBears #TeamBuilding #Charity #ColdPlunge #PediatricCancerResearch #Cincinnati #MakeASplash
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"🎗️ On #WorldCancerDay, let's stand together in solidarity with those fighting, survivors, and the loved ones lost. 💙 Let's raise awareness, support research, and foster hope for a cancer-free world. Together, we can make a difference. 🌍💪 Visit:- https://lnkd.in/dU85VUYN #ilovenehlia #nehliarealtors #nehlia #CancerAwareness #FightTogether"
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"🎗️ On #WorldCancerDay, let's stand together in solidarity with those fighting, survivors, and the loved ones lost. 💙 Let's raise awareness, support research, and foster hope for a cancer-free world. Together, we can make a difference. 🌍💪 Visit:- https://lnkd.in/gU-NNs7F #ilovenehlia #nehliarealtors #nehlia #CancerAwareness #FightTogether"
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Did you know that stroke is the 5th leading cause of death in the United States & a leading cause of disability? How about that it can happen at any age, to anyone or that symptoms appear differently in males versus females? Join me at this year's CycleNation by American Stroke Association where I have the privilege of sharing my stroke story in hopes of increasing awareness for preventive measures, recognizing symptoms, and raising support for research & my fellow stroke survivors. https://lnkd.in/eZerhi5a
CycleNation
www2.heart.org
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🌟 Stop What You're Doing and Make a Difference Today! 🌟 Right now, you have the power to change lives. By registering with Salute to Life or contacting us to learn how easy it is to host a DoD Level Event, you can make an incredible impact for families in need. Hosting a drive is not only a fulfilling experience for you, but it’s also a beacon of hope for men, women, and children waiting for their life-saving match. Imagine being the reason a family like Baby Milena’s can finally find relief from the stress and heartache of battling a rare blood disease like Diamond-Blackfan Anemia. Here’s how you can help: Register with Salute to Life: It takes just a few minutes to become a potential bone marrow donor. Host a Drive: Contact us to see how easy it is to organize a DoD Level Event. We’ll guide you every step of the way. Your involvement can bring hope, healing, and independence to families facing incredible challenges. Don’t wait—take action now and be a hero in someone’s life. Let’s come together to support our fellow men, women, and children. Your simple act of kindness can make all the difference. #SaluteToLife #BoneMarrowDonor #HostADrive #LifeSavingHeroes #CommunitySupport #HopeAndHealing
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Did you know that we have invested 17.73 million dollars in global Duchenne #musculardystrophy research throughout the past 29 years? Research is the only way to stop #Duchenne, and it's only through the gifts from our donors and supporters that we can fund essential initiatives focused on prevention, improved treatments, and ultimately a cure. Learn more about our impact on research over the years: https://bit.ly/3xujumk.
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Immunology and Genetics Research Associate affiliated with BWH, Harvard Medical School, & the Broad Institute of MIT & Harvard.
The Myasthenia Gravis Foundation of America (MGFA) hosted its first MG walk in Boston since the COVID-19 pandemic. It was a pleasure to volunteer, organize, and be part of it and meet the amazing people in this community. This walk was a great opportunity to connect with MG patients, caregivers, and advocates. For those who don’t know, Myasthenia Gravis is a rare autoimmune disease where autoantibodies attack different receptors in the skeletal neuromuscular junction. In short, Myasthenia Gravis patients experience rapid fatigue of muscles that affects their everyday lives. We also surpassed our $15,000 fundraising goal. These fundraisers are critical for advancing research and treatments for Myasthenia Gravis. As Kevin O’Connor, a Yale principal investigator focused on Myasthenia Gravis and rare disease research, said: “The work that MGFA does is important not only for patients but also for researchers, as it provides us with the funds needed to understand the disease and better target it for treatment.” #AWorldWithoutMG #MGStrong #Research #PatientAdvocacy
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Fundraisers and nonprofit leaders: learn more about converting clients into donors.
Come join us on March 20th for our next luncheon: From Supported to Supporter: Converting Those Served by Our Mission to Donors Whether we are treating patients, molding minds or working to improve lives generally, the work we do often means our constituents move through our organization and come out better on the other side. Having experienced our missions first-hand, these individuals can be some of our most likely donors. Join us for a panel discussion about converting those we serve into donors to our mission.
Lunch Program - From Supported to Supporter: Converting Those Served
community.afpglobal.org
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