Cohasset, Massachusetts, United States
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Articles by Wendy
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We’re a Rare Disease Company in a People Business
We’re a Rare Disease Company in a People Business
By Wendy Erler
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Rare Disease Day 2021 – Creating Connection While Being Apart
Rare Disease Day 2021 – Creating Connection While Being Apart
By Wendy Erler
Contributions
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What do you do if you want to stand out as a Patient Advocate in a competitive market?
Listen, listen, listen, and believe what you hear from patients and caregivers. Create trust, be real. Patient Advocacy is about people. Meaningful Patient Advocacy drives change and impact only when we commit to the engagement process; to partner, collaborate and move in the same direction. We have to recognize that we are organized to deliver the results we get. If we do not resource and organize around patient and caregiver engagement and insights, we miss so many opportunities to work smarter and help improve health outcomes. Employee experience + patient experience = patient centricity. is deeply connected to patient experience when we do this right. Ensuring a seat at the table is a good start.
Activity
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What a great Chief Patient Officer Summit in Boston this week! I 🩷this community of patient advocates who “get” that including patients in early…
What a great Chief Patient Officer Summit in Boston this week! I 🩷this community of patient advocates who “get” that including patients in early…
Liked by Wendy Erler
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Powerhouse duo with experience, expertise and encouragement.
Powerhouse duo with experience, expertise and encouragement.
Shared by Wendy Erler
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Ensuring the experiences and opinions of young people living with rare and complex disorders is are heard is vital. Not only to be inclusive and…
Ensuring the experiences and opinions of young people living with rare and complex disorders is are heard is vital. Not only to be inclusive and…
Liked by Wendy Erler
More activity by Wendy
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In Patient Adcocacy, we talk a lot about the importance of community. One definition of community is: “ a feeling of fellowship with others, as a…
In Patient Adcocacy, we talk a lot about the importance of community. One definition of community is: “ a feeling of fellowship with others, as a…
Shared by Wendy Erler
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Our RAREcast podcast has officially hit 500 episodes! That’s 500 opportunities to: 🔊 learn more about the intersection of rare disease with…
Our RAREcast podcast has officially hit 500 episodes! That’s 500 opportunities to: 🔊 learn more about the intersection of rare disease with…
Liked by Wendy Erler
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This past weekend at our National Patient Meeting, we officially launched myHPP, our new app, which can be found in the Apple Store or Google Play…
This past weekend at our National Patient Meeting, we officially launched myHPP, our new app, which can be found in the Apple Store or Google Play…
Liked by Wendy Erler
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For some reason, I totally failed on selfies at the #CPOSummit, but the conference was awesome- up there as one of my faves. Great job Dynamic Global…
For some reason, I totally failed on selfies at the #CPOSummit, but the conference was awesome- up there as one of my faves. Great job Dynamic Global…
Liked by Wendy Erler
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The 4th Chief Patient Officer Summit is on day 2. From interactive panel sessions, luncheon table talks, and building new relationships, this week…
The 4th Chief Patient Officer Summit is on day 2. From interactive panel sessions, luncheon table talks, and building new relationships, this week…
Liked by Wendy Erler
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I am delighted to welcome our Amolyt colleagues at Alexion. It is a great opportunity for us to continue developing important drugs for patients…
I am delighted to welcome our Amolyt colleagues at Alexion. It is a great opportunity for us to continue developing important drugs for patients…
Liked by Wendy Erler
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For those living with #RareDiseases, the path to diagnosis can feel like an endless odyssey, marked by countless challenges. Millions navigate a maze…
For those living with #RareDiseases, the path to diagnosis can feel like an endless odyssey, marked by countless challenges. Millions navigate a maze…
Liked by Wendy Erler
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Yesterday, on behalf of the many voices of Rare Parenting and acting as the voice of my son, I moderated a panel discussing how to ensure the patient…
Yesterday, on behalf of the many voices of Rare Parenting and acting as the voice of my son, I moderated a panel discussing how to ensure the patient…
Liked by Wendy Erler
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