Rob Goldstein-Mahon

Greater Boston Contact Info
2K followers 500+ connections

Join to view profile

About

As Patient Advocacy Director at Ionis, I leverage my 20+ years of experience in strategic…

Activity

Join now to see all activity

Experience & Education

  • Ionis Pharmaceuticals, Inc.

View Rob’s full experience

See their title, tenure and more.

or

By clicking Continue to join or sign in, you agree to LinkedIn’s User Agreement, Privacy Policy, and Cookie Policy.

Licenses & Certifications

  • Advanced Google Analytics Graphic

    Advanced Google Analytics

    Google

    Issued Expires
  • Google Analytics Individual Qualification Graphic

    Google Analytics Individual Qualification

    Google

    Issued Expires
    Credential ID 47874183
  • Google Display Ads Graphic

    Google Display Ads

    Skillsoft

    Issued Expires
    Credential ID 47599702
  • Google Search Ads Graphic

    Google Search Ads

    Skillsoft

    Issued Expires
    Credential ID 47606178

Volunteer Experience

  • South Shore Elder Services Graphic

    Meals on Wheels Volunteer

    South Shore Elder Services

    - 3 years 1 month

    Social Services

    Deliver meals as part of a growth in community need, resulting, in part, from COVID19 pandemic. Also, regularly drive as part of the “Better Together” program in partnership with Wellsprings.

  • The International Alliance of ALS/MND Associations Graphic

    Board Member

    The International Alliance of ALS/MND Associations

    - 2 years 1 month

    Health

    - Led the creation and establishment of the organization's first Patient and Caregiver Advisory Council
    - Led the creation and establishment of the organization's first Scientific Advisory Council
    - Served as co-chair/member of the Allied Health Professionals Conference selection committee
    - Partnered with Staff on Corporate Sponsorship asks related to the annual meeting
    - Led Global ALS/MND Day Committee and other committees related to marketing/PR of the Alliance.
    FMI:…

    - Led the creation and establishment of the organization's first Patient and Caregiver Advisory Council
    - Led the creation and establishment of the organization's first Scientific Advisory Council
    - Served as co-chair/member of the Allied Health Professionals Conference selection committee
    - Partnered with Staff on Corporate Sponsorship asks related to the annual meeting
    - Led Global ALS/MND Day Committee and other committees related to marketing/PR of the Alliance.
    FMI: https://www.alsmndalliance.org/

  • MassBio Graphic

    Patient Advocacy Summit Steering Committee

    MassBio

    - 4 years 1 month

    Health

    - Helped in the establishment of the event.
    - Sourced keynote speakers for several events
    - Served as panel chair for sessions
    - FMI: https://www.massbio.org/overview-of-events/

  • Sira Naturals Graphic

    Board Member

    Sira Naturals

    - 3 years 1 month

    Health

    - Facilitated in the merger of several community organizations together to form Sira
    - Assisted in the development of community engagement and patient engagement plans
    - Provided strategic counsel to Board Chair and CEO
    - FMI: https://www.siranaturals.org/

  • Big Brothers Big Sisters of Eastern Massachusetts Graphic

    Volunteer

    Big Brothers Big Sisters of Eastern Massachusetts

    - 1 year 1 month

    Children

  • Co-Founder

    ALS/MND Patient Fellows

    - 1 year 10 months

    Civil Rights and Social Action

    - Partnered with other patient advocates from Iceland, the USA and UK to create a new program that brought people with ALS and caregivers deeper into the conversation at the largest international congress of ALS/MND clinicians and researchers.
    - Successfully launched the program, creating websites, marketing, and securing funding.
    - FMI: https://www.alssymp.org/

  • TOWN OF HULL Graphic

    Council on Aging

    TOWN OF HULL

    - 2 years 9 months

    Social Services

    Honored to have been appointed by Town Select Board in 2021. Elected Chair in 2023, served as Vice Chair in 2021 and 2022.

    2023: Elected as chair. Reorganized Council to address the short and long term goals of community needs assessment.

    2021/2022: Supported the creation, deployment and analysis of the Town's first town-wide Needs Assessment of people over the age of 55, resulting in more than 1500 survey responses and series of focus groups with community leaders and…

    Honored to have been appointed by Town Select Board in 2021. Elected Chair in 2023, served as Vice Chair in 2021 and 2022.

    2023: Elected as chair. Reorganized Council to address the short and long term goals of community needs assessment.

    2021/2022: Supported the creation, deployment and analysis of the Town's first town-wide Needs Assessment of people over the age of 55, resulting in more than 1500 survey responses and series of focus groups with community leaders and citizens.

    FMI: https://www.town.hull.ma.us/council-aging

Honors & Awards

  • CEO Elements Award (3)

    Biogen

    I received three 'CEO Elements Awards' in 2022 at Biogen. Award winners are selected by the Executive Committee and given to team members who went above and beyond to help Biogen deliver on its strategy for patients, while demonstrating our core values of how we work together to achieve success.  I am proud to have been part of three teams recognized with an Element Award. I am also proud that one of the awards was associated with my work leading patient advocacy efforts in SMA with the USO…

    I received three 'CEO Elements Awards' in 2022 at Biogen. Award winners are selected by the Executive Committee and given to team members who went above and beyond to help Biogen deliver on its strategy for patients, while demonstrating our core values of how we work together to achieve success.  I am proud to have been part of three teams recognized with an Element Award. I am also proud that one of the awards was associated with my work leading patient advocacy efforts in SMA with the USO, another was related to an FDA filing associated with tofersen (an investigational drug for ALS), and the third was associated with a project with Biogen Digital Health which crossed TAs and regions.

Recommendations received

1 person has recommended Rob

Join now to view

More activity by Rob

View Rob’s full profile

  • See who you know in common
  • Get introduced
  • Contact Rob directly
Join to view full profile

People also viewed

Explore collaborative articles

We’re unlocking community knowledge in a new way. Experts add insights directly into each article, started with the help of AI.

Explore More

Add new skills with these courses

See all courses