About
Patient and mother to two superheroes…
Articles by Dr. Neena
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SERVANT LEADERSHIP AND COLLABORATIVE PATHWAYS TO CURES
SERVANT LEADERSHIP AND COLLABORATIVE PATHWAYS TO CURES
By Dr. Neena Nizar
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Disability, Access, and Inclusive Practices in Event Planning
Disability, Access, and Inclusive Practices in Event Planning
By Dr. Neena Nizar
Contributions
Activity
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The PRV program is absolutely crucial to the ultra rare disease community.
The PRV program is absolutely crucial to the ultra rare disease community.
Liked by Dr. Neena Nizar
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"CRISPR as a standard of medical care" for the treatment of monogenic #rarediseases sounds great to me
"CRISPR as a standard of medical care" for the treatment of monogenic #rarediseases sounds great to me
Liked by Dr. Neena Nizar
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"No special treatment. Just equal access." Another day in the life of an inaccessible and indifferent society! #RareDiseaseTruth #DisabilityPride…
"No special treatment. Just equal access." Another day in the life of an inaccessible and indifferent society! #RareDiseaseTruth #DisabilityPride…
Shared by Dr. Neena Nizar
Experience & Education
More activity by Dr. Neena
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Experienced medicinal chemist? We are looking for an experienced medicinal chemistry research scientist to join one of our teams AT NCAYS - PhD or…
Experienced medicinal chemist? We are looking for an experienced medicinal chemistry research scientist to join one of our teams AT NCAYS - PhD or…
Liked by Dr. Neena Nizar
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So, what is it really like to have a disability? For Disability Pride Month and the anniversary of the ADA, NPR wants to hear from you. Share your…
So, what is it really like to have a disability? For Disability Pride Month and the anniversary of the ADA, NPR wants to hear from you. Share your…
Liked by Dr. Neena Nizar
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Phenomenal day in Washington with Orchard Therapeutics - U.S. colleagues Leslie Meltzer, Melanie Nelson (she/her) MHA and Kimberly Burlison! Thanks…
Phenomenal day in Washington with Orchard Therapeutics - U.S. colleagues Leslie Meltzer, Melanie Nelson (she/her) MHA and Kimberly Burlison! Thanks…
Liked by Dr. Neena Nizar
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During a workshop, I learned about the power of celebration and #recognition. After a campaign or project, it is important to pause, take time and…
During a workshop, I learned about the power of celebration and #recognition. After a campaign or project, it is important to pause, take time and…
Liked by Dr. Neena Nizar
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“We’ve done genetic testing already.” I hear this a lot from families. When I ask what kind, families often don’t know. It’s ok, just ask. Get a…
“We’ve done genetic testing already.” I hear this a lot from families. When I ask what kind, families often don’t know. It’s ok, just ask. Get a…
Liked by Dr. Neena Nizar
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Today's the day! We're kicking off our One Rare Experience in Albany, New York! 🎉 🎉 This afternoon, we're hearing from the incredible Mary…
Today's the day! We're kicking off our One Rare Experience in Albany, New York! 🎉 🎉 This afternoon, we're hearing from the incredible Mary…
Liked by Dr. Neena Nizar
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https://lnkd.in/eTNh_kDG When I go to rare disease conferences, I'm excited to see all the work being done to create treatments and even cures. But…
https://lnkd.in/eTNh_kDG When I go to rare disease conferences, I'm excited to see all the work being done to create treatments and even cures. But…
Liked by Dr. Neena Nizar
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Today, Ultragenyx Pharmaceuticals shared a press release announcing a “Successful End-of-Phase 2 Meeting with FDA for GTX-102 Angelman Syndrome…
Today, Ultragenyx Pharmaceuticals shared a press release announcing a “Successful End-of-Phase 2 Meeting with FDA for GTX-102 Angelman Syndrome…
Liked by Dr. Neena Nizar
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Last month, on June 19th, many of our colleagues in the US celebrated Juneteenth, a national holiday that honors the end of slavery in the United…
Last month, on June 19th, many of our colleagues in the US celebrated Juneteenth, a national holiday that honors the end of slavery in the United…
Liked by Dr. Neena Nizar
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