Donna Cryer

Washington, District of Columbia, United States Contact Info
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Global Liver Institute

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Award-winning, published , entrepreneurial organization leader, patient, patient…

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Experience & Education

  • Global Liver Institute

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Volunteer Experience

  • Member, Patient & Consumer Representative

    Health IT Policy Committee

    - 1 year 9 months

    Health

    Appointed by the GAO to advise the National Coordinator for HIT on the policy framework for the development and adoption of a nationwide health information infrastructure

  • FDA Graphic

    Patient Representative

    FDA

    - Present 14 years 7 months

    Health

    Provide the patient voice and perspective on advisory committees, workshops, and other matters related to drug development and approval

  • Sibley Memorial Hospital Graphic

    Member Board Of Trustees

    Sibley Memorial Hospital

    - Present 7 years 1 month

    Health

    Affiliated with Johns Hopkins Medicine

  • Member Board Of Directors

    People centered reseach foundation

    - 2 years 8 months

    Health

    Scale person center comparative effectiveness research across health systems, claims data, and patient registries

  • The Taft School Graphic

    Member Board Of Trustees

    The Taft School

    - 1 year 9 months

    Education

    Elite boarding and Day school known for rigor, warmth, and beautiful campus

  • Personalized Medicine Coalition Graphic

    Member Board Of Directors

    Personalized Medicine Coalition

    - 5 years 8 months

    Health

    Advancing policies that support development and adoption of genomic diagnostics and targeted therapies

  • Clinical Trials Transformation Initiative (CTTI) Graphic

    Executive Committee Member

    Clinical Trials Transformation Initiative (CTTI)

    - Present 6 years 4 months

    Health

    The Clinical Trials Transformation Initiative (CTTI) is a public-private partnership to develop and drive adoption of practices that will increase the quality and efficiency of clinical trials.

  • Council of Medical Specialty Societies Graphic

    Member Board Of Directors

    Council of Medical Specialty Societies

    - Present 3 years 9 months

    Health

    Serve as Public Member improving the health and growth of professional medical societies as they serve the health of the nation

  • The Innovation and Value Initiative (IVI) Graphic

    Member Board Of Directors

    The Innovation and Value Initiative (IVI)

    - Present 3 years 9 months

    Health

    Serve to help define and communicate multiple frameworks for evaluating and assessing innovative health and medical therapies, with an emphasis and expertise on patient-centered value frameworks

Publications

  • Is the QALY Fit For Purpose?

    American Journal of Managed Care

    ABSTRACT

    Most value assessment research uses the quality-adjusted life-year (QALY) to measure health gain within a cost-utility framework. The many scientific and ethical flaws of the QALY have been described previously, but it continues to be used because it seems to provide a methodological bridge to a policy goal: resource allocation. Our aim in this paper is to assess whether the QALY is an adequate proxy measure of health value for the purposes of health care priority setting or…

    ABSTRACT

    Most value assessment research uses the quality-adjusted life-year (QALY) to measure health gain within a cost-utility framework. The many scientific and ethical flaws of the QALY have been described previously, but it continues to be used because it seems to provide a methodological bridge to a policy goal: resource allocation. Our aim in this paper is to assess whether the QALY is an adequate proxy measure of health value for the purposes of health care priority setting or whether the limitations inherent in how it is calculated and used in cost-utility analysis have the potential to be harmful. To do this we pose 3 questions. First, does the QALY accurately measure what it purports to measure? Second, does it value the health of all people equally and avoid the ethical and economic harms that arise when this is not the case? Third, does the QALY manage to fairly balance the needs of individuals and society as a whole? We argue that the QALY does not currently pass these 3 tests to an acceptable standard. We argue for methods to achieve incremental improvement in both the scientific and ethical standards used in constructing measures such as the QALY and for an end to the inertia in improving a measurement system that is widely considered inadequate. We point to solutions that are growing in popularity and highlight some of the key challenges that remain.

    Am J Accountable Care. 2021;9(2):8-13

    Other authors
    • John Browne
    • Warren Stevens
    See publication

  • NASH: Connecting the dots with patients in mind

    Endocrinology, Diabetology and Metabolism

    Cryer DR. NASH: Connecting the dots with patients in mind. Endocrinol Diabetes Metab. 2020 Oct 21;3(4):e00109. doi: 10.1002/edm2.109. PMID: 33102792; PMCID: PMC7576233.

    See publication

  • Hepatitis B Virus Screening and Management for Patients With Cancer Prior to Therapy: ASCO Provisional Clinical Opinion Update

    Journal of Clinical Oncology

    Hwang, Jessica & Feld, Jordan & Hammond, Sarah & Wang, Su & Alston-Johnson, Devena & Cryer, Donna & Hershman, Dawn & Loehrer, Andrew & Sabichi, Anita & Symington, Banu & Terrault, Norah & Wong, Melisa & Somerfield, Mark & Artz, Andrew. (2020). Hepatitis B Virus Screening and Management for Patients With Cancer Prior to Therapy: ASCO Provisional Clinical Opinion Update. Journal of Clinical Oncology. 38. JCO.20.01757. 10.1200/JCO.20.01757.

    Other authors

  • An Important Step Toward Increasing the 5-Year Survival Rate of Liver Cancer Patients

    American Journal of Managed Care

    Unlike many other cancer rates that have been on the decline, liver cancer rates for new liver and intrahepatic bile duct cancer cases have been rising. This October, which is Liver Cancer Awareness Month, Global Liver Institute is joining with more than 30 other leading health and medical organizations, to issue a global call-to-action to increase the 5-year survival rates for patients with liver cancer from 18% to 36% by 2030.

    See publication

  • Mutual mentorship: Patient-partnered care starts at the patient-CEO level

    Quality Management in Healthcare

    Patient-developed mentorship program for hospital CEOs

    Other authors
    See publication

Projects

  • The Future of Value Assessment in a Post-Pandemic United States

    - Present


    Editor’s Note

    This post kicks off the Health Affairs Blog short series, “Value Assessment: Where Do We Go Post-COVID?” The series explores what we have learned about value assessment and related issues during the coronavirus pandemic, how we might think about value in health care going forward, and how these ideas might translate into policy. The series is produced with the support of the Innovation and Value Initiative (IVI) and grew out of a group of webinars hosted jointly by IVI…


    Editor’s Note

    This post kicks off the Health Affairs Blog short series, “Value Assessment: Where Do We Go Post-COVID?” The series explores what we have learned about value assessment and related issues during the coronavirus pandemic, how we might think about value in health care going forward, and how these ideas might translate into policy. The series is produced with the support of the Innovation and Value Initiative (IVI) and grew out of a group of webinars hosted jointly by IVI and ISPOR—The Professional Society for Health Economics and Outcomes Research. Included posts are reviewed and edited by Health Affairs Blog staff; the opinions expressed are those of the authors.

    See project

  • Speaker: BIO International Convention 2017

    Panel 1: A World Without Disease: Can We Get There
    Panel 2: The Whole PIcture: Consideration of Personalized Medicine in Value Frameworks

    See project

  • Speaker: NCQA Quality Talks - Who Defines Quality

    Keynote stage presentation video on patient perceptions of healthcare quality

    See project

  • Speaker: Health 2.0 - Patients as Partners Across the Clinical Spectrum

    Video of plenary stage presentation on personal patient journey transformation into professional patient advocacy, outreach to multiple stakeholders to partner with patients

    See project

Honors & Awards

  • AASLD Distinguished Advocacy Service Award

    American Association for the Study of the Liver

    The Distinguished Advocacy Service Award is given to an advocacy organization or individual in honor of sustained service to the liver disease community in general. The award recognizes service provided to the hepatology community over an extended period that raises awareness or garners public and federal legislative support and promotes liver health and quality patient care.

  • RARE Champions of Hope Founders Award

    Global Genes

    The RARE Founder’s Award recognizes individuals who have demonstrated a devotion to the ideals of the founder of Global Genes. These individual nominees exhibit their commitment to connecting, empowering and inspiring the rare disease community through their lifetime contributions and achievements advocating for people living with rare disease.

  • 2017 Top Blacks in Healthcare Award

    BlackDoctor.org and Milken Institute School of Public Health at George Washington University

    http://www.prweb.com/releases/2017/04/prweb14231793.htm

    The awards gala, hosted by radio and television legend Donnie Simpson, will honor 16 individuals who have made outstanding contributions to medicine and health. These highly esteemed and accomplished individuals not only maintain a demanding work/life balance, but they are also progressively moving their communities forward.

    “These individuals have reached the highest levels in their careers, despite the challenges, and…

    http://www.prweb.com/releases/2017/04/prweb14231793.htm

    The awards gala, hosted by radio and television legend Donnie Simpson, will honor 16 individuals who have made outstanding contributions to medicine and health. These highly esteemed and accomplished individuals not only maintain a demanding work/life balance, but they are also progressively moving their communities forward.

    “These individuals have reached the highest levels in their careers, despite the challenges, and BlackDoctor.org is honored to celebrate their success. Their trailblazing work ensures that everyone has access to quality healthcare,” said Reggie Ware, President and CEO of BlackDoctor.org.

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