Thank you The Health Policy Partnership for your work on this #advocacy toolkit to help improve access, care and awareness for #Wilsondisease. It’s global in scope and offered in various languages. #raredisease #liverdisease
People with Wilson’s disease face unacceptable gaps in their care, with systemic barriers often preventing them from accessing support the need. The Wilson’s disease advocacy toolkit provides resources and guidance to support engagement with policymakers in calling for change that will improve life for people with Wilson’s disease. Alongside case studies from around the world demonstrating successful advocacy for people with Wilson’s disease, the toolkit offers information, templates and other resources to help communicate the need for change to policymakers. Share the toolkit with your networks today ⬇ https://lnkd.in/esrBqJ7y