In Their Words: “My son is only 2.5 years old, yet has shown so much courage and strength... He is super duper special. No matter what, he will always be amazing.” - Sara F., PWS Caregiver By sharing your #MyPWSstory, you too can give words of hope. Share your story & sign up for updates here: https://lnkd.in/essYtaRZ #PWSAwareness #RareDisease #Support4PWS #MyPWSstory
Soleno Therapeutics, Inc.
Pharmaceutical Manufacturing
Redwood City, California 4,810 followers
Inspired by patients and families around the world, we are advancing much needed therapies for rare genetic disorders.
About us
At Soleno, we are researching and developing medicines to treat rare genetic disorders, beginning with Prader-Willi syndrome (PWS), a life-threatening neurobehavioral, metabolic and endocrine disorder characterized by hyperphagia (insatiable hunger), neurocognitive and behavioral difficulties. Our lead candidate, DCCR, is a Phase 3, once-daily oral tablet under investigation as a potential treatment for PWS. Our priority is to bring the first approved treatment to patients to manage the most burdensome aspects of this devastating disorder.
- Website
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https://soleno.life/
External link for Soleno Therapeutics, Inc.
- Industry
- Pharmaceutical Manufacturing
- Company size
- 11-50 employees
- Headquarters
- Redwood City, California
- Type
- Public Company
- Specialties
- Biopharmaceuticals, Therapeutics for the treatment of rare diseases, and Pharmaceuticals
Locations
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Primary
203 Redwood Shores Parkway
Suite 500
Redwood City, California 94065, US
Employees at Soleno Therapeutics, Inc.
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Jim Mackaness
CFO & COO | Technology & Healthcare
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Lauren Budesheim, MSOD,SPHR
Strategic Human Resources Leader
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Mayank Misra
Advisory Board Member at New Enterprise Ventures, VP of Digital, Insights, & Analytics, Pharmaceutical Marketing Science | Digital Innovation |…
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Anish Bhatnagar
Updates
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Stay Informed, Stay Inspired—Sign Up for Updates! 💌 Stay connected and shine a light on #PraderWilliSyndrome. Visit https://lnkd.in/essYtaRZ to join us. #PWSAwareness #Support4PWS
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In Their Words: “I never ceased to be amazed by people with PWS and their tenacity, sense of humor, warmth, friendliness, and togetherness.” - Myles K., PWS Ally By sharing your #MyPWSstory, you too can give words of hope. Share your story & sign up for updates here: https://lnkd.in/essYtaRZ #PWSAwareness #RareDisease #Support4PWS
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Hyperphagia, the hallmark symptom of #PraderWilliSyndrome, is a chronic and life-threatening feeling of intense, persistent hunger, food pre-occupation, and extreme drive to seek and consume food that severely diminishes the quality of life for individuals with PWS and their families. Among many serious consequences, hyperphagia can lead to anxiety, difficulty concentrating, and an inability to regulate thinking and talking about food. Join us in raising awareness about the impact of hyperphagia in PWS by sharing your PWS story at https://lnkd.in/essYtaRZ #PWSAwareness #RareDisease #Support4PWS #MyPWSstory
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In Their Words: “Never lose your faith, hold on tight to your dreams, everything is possible. You’ll get there, maybe not as fast as others but you will get there.” - Ines P., PWS Caregiver By sharing your #MyPWSstory, you too can give words of hope. Share your story & sign up for updates here: https://lnkd.in/essYtaRZ #PWSAwareness #RareDisease #Support4PWS #MyPWSstory
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Soleno Therapeutics, Inc. reposted this
Congratulations Dr. Patrizia Cavazzoni and Dr. Peter Marks on the FDA's establishment of the Rare Disease Innovation Hub. This initiative underscores the FDA’s commitment to addressing the unique challenges in rare disease therapy development, sending a powerful message of hope to patients and caregivers. The focus on evaluating rare disease medicines is important for overcoming the complexities and hurdles inherent in developing treatments for rare conditions, like Prader-Willi syndrome, while acknowledging the complex regulatory process. This is not just a win for patients, but also for all innovators in the rare disease space, boosting confidence, fostering innovation and driving forward the mission to bring treatments to those who need them most. https://lnkd.in/gZV2Uake
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Every story from the #PraderWilliSyndrome community is a testament to strength and perseverance. Share your PWS story or sign up for updates at https://lnkd.in/essYtaRZ and help spread hope and awareness about the remarkable individuals living with this #raredisease. #PWSAwareness #RareDisease #Support4PWS #MyPWSstory
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The journey of living with #PraderWilliSyndrome (PWS) is filled with both challenges and triumphs. Stay informed and be inspired by the stories from the PWS community. Sign up for updates here: https://lnkd.in/essYtaRZ #PWSAwareness #RareDisease #Support4PWS #MyPWSstory
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Individuals and families with #PraderWilliSyndrome overcome challenges every day. If you’re living with PWS, share your story of resilience and give hope to others facing this #RareDisease. Share your story here: www.support4pws.com.
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