We're mourning the loss of an incredible rare cancer advocate and extraordinary person, Kathy Wallman. We're grateful for all her contributions and will continue to honor her legacy by working to accelerate research on appendiceal cancer, and other rare cancers:
Rare Cancer Research Foundation
Biotechnology Research
Durham, North Carolina 1,088 followers
501(c)3 dedicated to finding cures for rare cancers by facilitating patient-centric research at Pattern.org
About us
The Rare Cancer Research Foundation is a 501(c)3 nonprofit organization dedicated to curing rare cancers through strategic investments and innovative collaborations that facilitate effective research and accelerate deployment of promising therapies. The flagship initiative of the Rare Cancer Research Foundation is Pattern.org, a patient-driven platform to rapidly improve rare cancer research and provide personalized and actionable data and treatment options for rare cancer patients anywhere in the country.
- Website
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rarecancer.org
External link for Rare Cancer Research Foundation
- Industry
- Biotechnology Research
- Company size
- 2-10 employees
- Headquarters
- Durham, North Carolina
- Type
- Nonprofit
- Founded
- 2013
- Specialties
- Rare Cancers, Medical Research, and Strategy
Locations
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Primary
Get directions
703 Foster St
Durham, North Carolina 27701, US
Employees at Rare Cancer Research Foundation
Updates
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Huge news from our partner Parker Institute for Cancer Immunotherapy - we're excited to see more knowledge and better treatments for #rarecancer patients come from this incredible investment.
Parker Institute Commits Additional $125M for Audacious Mission to Cure Cancer - Parker Institute for Cancer Immunotherapy
https://www.parkerici.org
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July is #SarcomaAwarenessMonth! There's a lot of exciting research going on across sarcomas and we see the incredible sarcoma patient community driving progress and research every step of the way. Learn more by checking out this great article from American Association for Cancer Research:
Profiling Sarcomas—The Search for a Matching Therapy
https://www.aacr.org
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In this month's newsletter, read about a tissue donation success story, ways to get involved, and conference updates from the RCRF team!
Tissue donation success story!
myemail-api.constantcontact.com
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The North America Rare Diseases Summit is July 11! Come hear RCRF's Barbara Van Hare who will be speaking on a panel during the patient advocacy session titled “Thriving Through Diagnostic Uncertainty”. Register here:
North America Rare Diseases Summit 2024
bamberghealth.com
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Proud to be featured by the V Foundation today! Read more about how we support researchers like Dr. Pavlos Msaouel, MD, PhD at MD Anderson Cancer Center and his incredible work on rare kidney cancer here:
A Collaborative Approach to Rare Cancers: Dr. Pavlos Msaouel - V Foundation
https://www.v.org
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Rare Cancer Research Foundation reposted this
Teamwork makes the dream work – really. We are proud to work with organizations like Rare Cancer Research Foundation to help our researchers like Dr. Pavlos Msaouel further their research. Dr. Msaouel focuses his research on a rare kidney cancer. RCRF offers a unique opportunity for scientists to continue their work directly through patient support. Click the link to see how we’ve helped Dr. Msaouel to discover a new avenue for treatment. https://lnkd.in/gKk5JxUn
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This article just posted by Cancer Today explores the role of COVID-19 in #rarecancer (we're hearing a huge need to connect data about rare cancers across the country!) Learn more:
June 14: The Week in Cancer News | Cancer Today
https://www.cancertodaymag.org
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Our partners at Broad Institute of MIT and Harvard just posted a great article about why CRISPR screens are missing targets (hint: ancestry bias) and highlighting why diversity in cancer research is so essential.
Some CRISPR screens may be missing cancer drug targets
broadinstitute.org
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It was great to see National Cancer Institute (NCI) Director Dr. Rathmell inspire the room at #ASCO24 sharing the power of advocacy to bring patients and researchers closer together to accelerate research and progress!
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