Project Sleep

🌠 During #SLEEP2024, #RisingVoices speaker Caitlin Kindberg shared her perspective as a #patientadvocate during the live CME-accredited symposium: “When Sleep Is Exhausting: Improving Diagnosis and Outcomes in Patients With Idiopathic Hypersomnia.” 💗 We are SO grateful for Caitlin's incredible energy, talent, and commitment to this project. She brings so much insight and passion to her story sharing! 📽️ The recording of this event is now available through PeerVoice! Those who watch will benefit from her perspective, as will their current and future patients: https://lnkd.in/eAs3bZCt

📢 Spread the word! Project Sleep cordially invites Members of Congress, staffers and interested stakeholders to attend "Awakening America: A Congressional Briefing on Sleep and Public Health" on Tuesday, July 16th, 2024 from 12:00pm - 12:45pm (Eastern) in the Rayburn House Office Building, Room 2075 in Washington, DC. ➡️ This event will cover new resources and tools now available to constituents nationwide. This briefing will also discuss gaps in early detection and diagnosis for the one in five Americans living with sleep disorders, along with legislative recommendations and updates on federal programs. ✨ Speakers Include: Dr. Michael Grandner, University of Arizona Dr. Kali Cyrus, Patient Advocate Julie Flygare, JD, President & CEO, Project Sleep 🏛️ Following the briefing, Project Sleep will invite Capitol staff to participate in a free educational sleep screening event to discuss concerns about their own sleep or wakefulness. Spread the word, learn more and RSVP: https://lnkd.in/gSQ8MvVw

📢 7/10 is #ChronicDiseaseDay! Today, we unite to raise awareness and celebrate the strength of those living with #chronicillnesses, amplify voices, share stories, and stand together for a healthier future. 💗 Show your support on Chronic Disease Day by sharing who motivates you to be your strongest self! Snap a pic and share it on Facebook and Instagram. 1️⃣ Fill in the blank: “I stay strong for _____” and write the word(s) on your hand (or a piece of paper works too!) 2️⃣ Snap a pic and share it on social media. 3️⃣ Don’t forget to add #ChronicDiseaseDay! ➡️ Chronic Disease Day is observed annually on July 10 to raise awareness that seven of the top 10 causes of death in the U.S. stem from chronic illnesses. 💯 This annual campaign, established by Good Days, underscores a commitment to lowering the number of preventable deaths caused by #chronicillness and the need to dedicate more resources to treat and cure unpreventable conditions.

🔖 Save this! Helpful ideas of questions to ask about your sleep healthcare provider. 🩺 This is the final part of our six-part series: Questions to Ask a Sleep Specialist. We have shared questions about diagnostic procedures, diagnosis, treatment, other health issues, and lifestyle & social concerns. ➡️ Find all of these anytime in our Questions to Ask a Sleep Healthcare Provider PDF, available for free to download, print, & bring to your appointment: https://lnkd.in/gfPE7erM

🎙️ In this episode of The Project Sleep Podcast, entrepreneur and web designer Katie Williamsen shares her story with type 1 #narcolepsy with #cataplexy. By sharing her story, she wants to raise awareness of this life-changing condition. ▶️ Listen now to Self-Employed Web Designer: Katie Williamsen’s Story With Narcolepsy - Rising Voices Ep. 22: project-sleep.com/podcast

🎉 Please join us in congratulating William from Thornton, CO, our final 2024 Jack & Julie Narcolepsy Scholarship recipient! ⭐ During high school, William’s diagnosis of #narcolepsy with #cataplexy made him acutely aware of the unseen struggles countless people face, leading him to focus his limited free time on helping others. He mentored junior varsity soccer players, assistant-coached his former middle school’s Academic Decathlon team, researched kidney disease at the University of Colorado Anschutz Medical Campus, and tutored fellow high school students. 🎓 William was recognized as a College Board National Hispanic Scholar, an AP Scholar with Distinction, and a member of the National Honor Society and Sociedad Honoraria Hispánica. He was also honored as Academic All-State 1st Team for varsity soccer and class valedictorian. William will study engineering at Northwestern University. ✨ This is our FINAL #scholarship highlight for 2024. We've absolutely loved introducing all 37 of this year's recipients. Meet all of the students and SHARE this to support them & raise critical awareness: https://lnkd.in/gw8EBT4p 💓HUGE THANKS for supporting these students and your donations and fundraising that makes these opportunities possible.

📚 Introducing avid reader Vivianne from Mobile, AL, a 2024 Jack & Julie Narcolepsy Scholarship recipient! ⭐ Vivianne was diagnosed with #narcolepsy with #cataplexy in her senior year of high school. Before diagnosis, her narcolepsy stayed under the radar until it began to interfere with her performance in marching band and soccer, as well as her academic performance. However, her diagnosis did not stop her from pursuing her dreams. Beyond her academic and athletic experience, she enjoys reading, writing, and spending time with friends and family. 🎓 Vivianne will attend Beloit College to study anthropology and creative writing. 💗 THANK YOU - your support makes these scholarship opportunities possible. Meet all 37 of the remarkable 2024 #scholarship recipients: https://lnkd.in/gw8EBT4p

🏈 Football fans, meet Tucker from Walkertown, NC, a 2024 Jack & Julie Narcolepsy Scholarship recipient! ⭐ Tucker was diagnosed with #narcolepsy with #cataplexy at the age of seven. Living with narcolepsy has taught him to focus on his goals, persevere through adversity, and that time management is key to his success. He played football for 13 years and was a three year varsity starter, and also competed in tennis and indoor track. He graduated third in his class with college credits. 🎓 Tucker will attend High Point University to study Mechanical Engineering. 💗 Share this post to support these incredible students and spread awareness! Meet the rest of the 2024 #scholarship recipients: https://lnkd.in/gw8EBT4p

💼 Meet entrepreneur Trinity from Watertown, WI, a 2024 Jack & Julie Narcolepsy Scholarship recipient! ⭐ Trinity started having symptoms of #idiopathic #hypersomnia at the end of her sophomore year, and was diagnosed in January of her junior year. She attended a project-based charter school, where she was involved with National Honor Society, received high honors, started an eSports team and a banner printing business, and participated in many clubs and volunteer opportunities. 🎓 Trinity will attend Carroll University to double major in animal behavior and business administration. 🌙 Special thanks to Hypersomnia Foundation whose generous support funded scholarships for the five recipients with idiopathic hypersomnia. 💗 Share this post to support these incredible students and spread awareness! Meet the rest of the 2024 #scholarship recipients: https://lnkd.in/gw8EBT4p

❣️Introducing Tatyana-Lulu from Cypress, TX, a 2024 Jack & Julie Narcolepsy Scholarship recipient! ⭐ Tatyana-Lulu is living with #narcolepsy with #cataplexy, and her biggest passion in life is uncovering the mysteries of the body. She hopes to work in pharmaceutical development and help make living with chronic illness easier for others. 🎓 Tatyana-Lulu will attend Texas A&M San Antonio to study chemistry. 💗 Share this post to support these incredible students and spread awareness! Meet the rest of our 2024 #scholarship recipients: https://lnkd.in/gw8EBT4p