Pulmonary Fibrosis Foundation

✅ 🔬 Research can ONLY move forward with patient volunteers. Courageous patient participation has helped scientists answer some of the most pressing questions about pulmonary fibrosis — and they want to continue answering more! 💭 This month, we’re highlighting three trials that are actively recruiting for the following conditions: 🔹 Myositis associated interstitial lung disease 🔹 Idiopathic pulmonary fibrosis Join a clinical trial to help researchers find new and improved treatments for pulmonary fibrosis. Learn about current trial highlights and how you can find a trial! 📌 Get started at https://conta.cc/3WAfOx4

☀️ It's summertime, and pools and hot tubs are in full swing. But did you know that long term exposure to contaminated water droplets can lead to hypersensitivity pneumonitis, or HP? HP is one of the more than 200 types of pulmonary fibrosis. Learn all about "hot tub lung" at bit.ly/pff-factsheets

Host a Facebook fundraiser for the PFF and use our PFF Bingo card to win t-shirts, tote bags, and tumblers! 👕🛍️🥤 Stay tuned, as we’ll be posting pics of the merch soon. In the meantime, get started on your Facebook fundraiser! It’s a great way to share your story, raise awareness, and support the pulmonary fibrosis community. Download the bingo cards and get started at https://lnkd.in/g5SV_GXp

Our first-ever PFF Walk began in 2017, right here in Chicago where we’re headquartered. 🏙️ We created this Walk because we know that walking and uniting together as one is a powerful experience. The PFF Walk - Chicago has continued to welcome hundreds of participants to Diversey Harbor each year from states all over the midwest and Great Lakes area. 🌟 Will we see you in Chicago or at another of our six sites? Register to Walk today at PFFWalkChicago.org.💙 Do you have memories of a PFF Walk? Use the hashtag #PFFWalk and tag us for your chance to be featured on our page! #PFFWalk #PulmonaryFibrosis #TogetherTowardACure

💙 Every breath, every story. We are proud to unveil this year’s Pulmonary Fibrosis Awareness Month (PFAM) theme! 📣 Beginning September 1, the PFF will be posting content every day on social media — and we want a lot of the content to come from YOU! Submissions for our Portraits of PF series and the new Lung Pose are now open. Don’t delay — submissions will close on August 15! Here’s a breakdown of the two activities we’re collecting submissions for: 🔹 Portraits of PF: Tell us your story. Submit a photo of yourself or your loved one and tell the world about your journey with PF and how it has impacted you. Storytelling is one of the most powerful ways to raise awareness. 🔹 Lung Pose: Strike a pose! Take a selfie following our instructions and we’ll drop your photo into our official PFAM template. Then, share the photo on your social media accounts with your friends and family to tell the world you support the PF community. There’s so much more to PFAM than these two activities. Visit pulmonaryfibrosis.org/PFAM to take a look at what we have planned for you. We'll be posting a lot about PFAM, so keep following! Join us this September as we stand together to raise awareness of pulmonary fibrosis.

Thank you, Congressman Bill Posey, for cosponsoring the SOAR Act (H.R. 7829) and supporting individuals who require supplemental oxygen at home and in their communities! #SOARActO2 #PatientAdvocacy

🔔 Don't forget! In just two days, we'll be hosting this webinar all about lung transplants. Tune in to learn something new! ❌ Can't make it? No problem. Register anyway, and you'll get notified when you can watch it on YouTube. https://lnkd.in/eXGasEGM

Thank you to our PFF Walk - Pittsburgh sponsors! 🌟 Your support has been instrumental in making our event a success and bringing us closer to our goal of finding a cure for pulmonary fibrosis. You can still join the PF community this summer and fall to walk together toward a cure, you can find dates, locations, and more at PFFWalk.org. 💙 #PFFWalk #PulmonaryFibrosis #TogetherTowardACure

All of the community sessions from PFF Summit 2023 are now on YouTube! Over the past few months, we’ve been rolling out sessions that are tailored to patients, caregivers, lung transplant recipients, and those who have lost a loved one. Every single session is now available in full right on YouTube. Check out our official playlist, and below, you’ll find images of just some of the great topics last year’s conference covered. https://lnkd.in/ggT2xE8s

Join us this weekend as we walk together toward a cure! 🌟 Held at North Shore Riverfront Park, the PFF Walk - Pittsburgh offers two course options – 1-mile or 2-mile – along a gorgeous waterfront pathway with spectacular views of the downtown skyline. After the Walk, we invite you to stay for a celebration with family-friendly activities and light refreshments. The PFF Walk unites everyone impacted by pulmonary fibrosis and provides a special opportunity to raise funds and awareness for the Pulmonary Fibrosis Foundation. Everyone who participates in the PFF Walk is making a valuable contribution to our collective effort toward a cure for pulmonary fibrosis. 💙 Registration is free and every dollar raised makes a difference in the lives of people with PF. Raise $100 or more and receive our official, commemorative t-shirt.🎉 Register now at PFFWalkPittsburgh.org! #PFFWalk #PulmonaryFibrosis #TogetherTowardACure