National Brain Tumor Society

For #GBMDay, we are honored to share this digital program highlighting the extraordinary challenges of #glioblastoma from the perspectives of patients and care partners. Watch their stories, hear their voices, and learn why it’s time for a better chance. You can champion breakthroughs for the #GBM community by making a gift today and doubling your impact thanks to a generous match from Deborah Newman Sharpe and Today is a Good Day Foundation: https://lnkd.in/esV-KgXQ

Registration is now open for Advocate From Your State, our virtual Head to the Hill event on Tuesday, September 10! This event provides participants with an opportunity to meet virtually with members of Congress and their staff to help policymakers better understand the brain tumor community’s urgent, unmet needs. Learn more and register today: https://lnkd.in/ezGjYvWv #AdvocatefromYourState #Head2Hill #braintumoradvocacy #braintumor #BTSM

It was wonderful to attend the National Brain Tumor Society's Glioblastoma Awareness Day Reception last night! It was great to hear from the bipartisan lawmakers who introduced the BRAIN Act (https://lnkd.in/g7w5Je5M), leaders from the National Cancer Institute, and fellow advocates. As a brain cancer survivor, it was truly impactful to see the NBTS community's work in action and hear from others who have been affected by these terrible diseases. I'm excited to see future progress in improving patient outcomes and survivorship experiences! #GBMDay

Tonight’s National Brain Tumor Society reception for Glioblastoma (GBM) Awareness Day on Capitol Hill brought together lawmakers from the Senate and House, the National Cancer Institute Director, legislative staff, leaders in the field of cancer research and advocates & members of the NBTS community. Thanks to CEO David Arons, Board Chair Edjah Nduom and the NBTS team for a great event. GBM is the most complex, treatment-resistant, and deadliest type of brain cancer. Tonight’s reception was an opportunity to honor impacted patients & families and raise awareness for the need for “better chances”, more effective treatments and a cure. Special thanks to Senators John Barrasso (R- WY) and Lindsey Graham (R- SC), and Representatives Roger Williams (R- TX 25) & Susan Wild (D-PA 7) for their leadership in Congress on this important issue. Thanks also to the team at National Brain Tumor Society for your amazing work! #GBMAwarenessDay

The 9th Annual Fight for the Brain supporting the National Brain Tumor Society is in less than two weeks - August 6th, 2024 virtually and at Circa in Clarendon!    We are excited to announce that this year we are opening the auction early. Head to the link below to review all of the items and start placing your bids NOW! With our online auction platform, you can easily bid from your phone now, at the event, or even from afar.  **Winners, please note that we ask you to contact us before completing payment online.    Place your bids: https://lnkd.in/e9XjKCmX   #AminadConsulting #NationalBrainTumorSociety #NBTS #FightfortheBrain #Fundraising #SilentAuction

What is the BRAIN Act and why is this groundbreaking legislation so important for the brain tumor community? Here’s an at-a-glance overview. For more information about the BRAIN Act, including how to advocate for its passage, visit BrainTumor.org/BRAINAct #BRAINAct #NationalBrainTumorSociety

We are pleased to share that today, Representative Susan Wild, Representative Brian Fitzpatrick, Representative Lori Trahan, Representative John Joyce, Senator Richard Blumenthal, Senator John Barrasso, Senator Jack Reed, and Senator Mike Rounds introduced the Bolstering Research And Innovation Now (BRAIN) Act in Congress. This landmark piece of legislation –– a historic first for the brain tumor community –– advances our mission to defeat brain tumors, once and for all, by strengthening and better funding research efforts, accelerating the quest for cures, fostering collaboration, promoting critical awareness efforts, and innovating the way health care is delivered for patients with brain tumors and survivors. Please join us in thanking the co-sponsors of this bill and in asking your own representatives to help make this urgently needed law a reality. Press release here: https://lnkd.in/e6bFeSpa #BRAINAct #NationalBrainTumorSociety

We are pleased to announce the appointment of Jigar Raythatha to National Brain Tumor Society’s Board of Directors. Jigar is a Partner at Third Rock Ventures. Prior to joining Third Rock Ventures in 2022, he served as President and Chief Executive Officer of Constellation Pharmaceuticals, Inc. from 2017 until its acquisition in 2021. In 2023, Jigar became a brain cancer survivor after being diagnosed with low grade glioma. He also brings prior experience to the cancer cause after serving on the American Cancer Society’s New England Chapter Board. We look forward to working with Jigar to move our shared mission forward! Welcome Jigar!

It was an honor to raise awareness for #GBMDay with National Brain Tumor Society in the form of a blog post, quick video, and attendance at a multidisciplinary research meeting!! Be sure you’re following NBTS and click through the link in the original post to read my thoughts on the important distinction: illness vs disease! #glioblastology #braincancer #braintumorawareness #philosophy #patientadvocacy #glioblastoma

On September 15, join NBTS and the New York brain tumor community on picturesque Jones Beach for the New York Brain Tumor Walk! This family-friendly event for all ages fosters community and helps raise awareness and funds to accelerate the urgently needed breakthroughs ahead. Register today to walk with us, share experiences, remember loved ones, and champion hope –– for everyone with a brain tumor diagnosis, it’s time for a better chance: www.BrainTumor.org/NewYork #NYBTWalk