Researcher Bjarne Udd, MD, PhD, provides a deeper understanding and details the latest developments in disorders related to the Titin (TTN) gene. Learn more in this Q&A from our #QuestMagazine: https://lnkd.in/eHxkCXPb
Muscular Dystrophy Association
Non-profit Organizations
Chicago, Illinois 23,736 followers
Faster breakthroughs, Stronger futures.
About us
If you’re seeking to start or advance your career with a purpose, Muscular Dystrophy Association is an employer that will enable you to thrive. The Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. Our mission is to empower the people we serve to live longer, more independent lives. #MDA #MuscularDystrophy #ALS #neuromuscuar. Apply now.
- Website
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http://www.mda.org
External link for Muscular Dystrophy Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Chicago, Illinois
- Type
- Nonprofit
- Founded
- 1950
- Specialties
- health, healthcare services, ALS research, care, advocacy, muscular dystrophy research, care, advocacy, disability inclusion advocacy, MDA Summer Camp, MDA Care Center Network, MDA Advocacy, Neuromuscular diseases, research, care, advocacy, and community and professional medical education
Locations
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Primary
1016 W Jackson Blvd
1073
Chicago, Illinois 60607, US
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Employees at Muscular Dystrophy Association
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Ankur Ghia
Senior Partner - Global Leader in Digital Transformations and Cloud Strategy
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Autumn Hume
National Account Director, Healthcare Partnerships at Muscular Dystrophy Association
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Marshall ("Mark") Smith, NACD.DC
Senior Executive Leader | Operations | Board Governance | Corporate Finance | Strategic Planning | M&A | IPO | Restructuring | Turnaround
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Pamela Norfleet
Accounts Payable/Account Receivables Manager at Bank Administration Institute
Updates
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Join us on Thursday, July 18 from 7-8pm ET for the MDA Advocacy Institute: Finishing 2024 Strong - Top Legislative Priorities. Learn about eliminating SSI savings penalty, urging treatments for pediatric rare disease, and helping kids access health care. These legislative priorities are vital for improving access to care and support for children with rare neuromuscular diseases, and your voice is crucial in pushing them forward. Registration is free here: https://lnkd.in/eUFnKH6p
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Join American Society of Gene & Cell Therapy and the Muscular Dystrophy Association in Chicago November 19-20, 2024, for an unparalleled opportunity to explore the latest advancements in research on #GeneticTherapies for #MuscularDystrophy. This inaugural meeting will bring together leading researchers and clinicians from the #neuromuscular disease community to discuss cutting-edge genetic therapies and technologies. Have research to share? Submit your muscular dystrophy related abstracts through August 9 at 11:59 p.m. ET for the opportunity to present your research in-person in Chicago. Register or learn more here: https://lnkd.in/efS_XEW9 #ScientificResearch #ClinicalResearch #Research
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Happy #IndependenceDay! MDA’s #AccessTheVote campaign aims to ensure voting is accessible for everyone. Let's celebrate our freedom and make our voices heard. 🔹 Register to Vote 🔹 Know Your Rights 🔹 Find Accessible Resources Visit MDA.org/Vote to learn more. #FourthOfJuly #DisabilityInclusion
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As #IndependenceDay approaches, we celebrate the spirit of independence and the power of freedom. At #MDA, we are committed to empowering families living with #neuromuscular diseases to achieve their own independence through our comprehensive programming, resources, and #advocacy. This election season, make your voice heard and support policies that help people living with #neuromuscular diseases live more independent lives. Your vote is your power! Together, we can build a future where everyone has the opportunity to thrive. Visit MDA.org/Vote to learn more and #AccessTheVote.
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As we gear up for Independence Day, let's celebrate the incredible stories of individuals with disabilities living independently, including Muscular Dystrophy Association National Ambassador Ira Walker. We offer practical tips on home safety, cooking, and more, showcasing true resilience and adaptability. Read more in our Quest blog. #DisabilityPrideMonth #IndependenceDay #FourthOfJuly #QuestBlog
Living Independently with a Disability - Quest | Muscular Dystrophy Association
https://mdaquest.org
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Thank you to Muscular Dystrophy Association volunteers Jayme and Rhys Hoskins and the Milwaukee Brewers for inviting MDA families to come together on the field last Friday night! There is so much strength in our community and the support for one another is always home run! Join MDA ➡ https://lnkd.in/eyRvAgEc 💙 💛 ⚾
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Today on National Postal Workers Day, we extend our heartfelt thanks to our partners at National Association of Letter Carriers (NALC). Since 1952, NALC has partnered with Muscular Dystrophy Association, raising millions to fund breakthroughs in research and advance care for people living with neuromuscular diseases. MDA National Ambassador Ira Walker shares how the NALC's efforts make a difference in our mission. Thank you, Letter Carriers for always supporting our mission to Deliver the Cure! #NationalPostalWorkersDay #LetterCarriers #ThankALetterCarrier #Fundraising #Partnership #DeliverTheCure
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Sponsors like the THE ALBERTSONS COMPANIES FOUNDATION play a crucial role in making MDA Summer Camp possible, providing national fundraising and engaging in local camp activities. Their support brings unforgettable adventures to campers across the country. Through their 'Boost Their Abilities' campaign, a national fundraising endeavor that includes pin-up and round-up campaigns throughout their grocery stores, The Albertsons Companies Foundation raised and donated more than one million dollars for MDA Summer Camp last year! But their commitment to camp didn’t stop on the dollar, as their teams from local divisions visited MDA Summer Camps to provide snacks, dinner spreads, ice cream socials, supplies, activities, manpower, and more. Partner programs not only benefit campers, but they can also see first-hand the impact of partnership with Muscular Dystrophy Association. “I’ve attended summer camps all around the country. They are memorable experiences where the kids can just be kids,” says Christy Duncan Anderson, the President and Executive Director at Albertsons Companies Foundation. “One year, I spent the day helping children get ready for a dance by making paper ties for them to wear. Each tie was designed to share the camper’s personality, and I helped make ties with everything from #Lego designs to one that was completely covered in googly eyes. Spending the time with the campers and getting to know them individually has always been a highlight of my summer.” Read more about their impact in this #QuestBlog. #MDA #SummerCamp #FundraisingPartnership
Sponsors Share in MDA Summer Camp Magic - Quest | Muscular Dystrophy Association
https://mdaquest.org
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Muscular Dystrophy Association reposted this
We can't wait to head to Chicago this fall with the Muscular Dystrophy Association and researchers + clinicians from the neuromuscular disease community! During our Breakthroughs in #MuscularDystrophy event, we'll explore new CGTs and technologies to treat this disease. Interested? Register to join us in person or virtually Nov. 19-20! If you have research to share, send us an abstract through Aug. 9! https://lnkd.in/gsE-ptS7
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