Explore our online store for your favorite t-shirts, sweatshirts, stickers, and more! Upgrade your wardrobe with some HD Reach gear today😊 All purchased items include a $5 donation to HD Reach! Thank you for your support! https://buff.ly/4cyfBjw #OnlineShopping #OOTD #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
HD Reach
Non-profit Organizations
Cary, NC 113 followers
Working to improve the care and quality of life of those affected by Huntington’s disease.
About us
HD Reach is working to improve the care and quality of life of those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing. Huntington’s Disease (HD) is a progressive genetic disorder of the brain. HD causes great suffering not only in those it strikes, but also in their families. Despite promising research and unprecedented financial support for drug development, medical care for HD patients and their family across North Carolina has been poor, inaccessible, and poorly coordinated. HD sufferers and their families in North Carolina without access to expert HD clinicians receive little more than sympathy. After generations of misunderstanding and inadequate care, it is no wonder many families fear a loved one being identified with HD. A new diagnosis brings to mind the common misconception that there is nothing anyone can do to help. The North Carolina Center for the Care of Huntington’s Disease (NC-CCHD), now known as HD Reach, was formed in 2009 to address the pressing need for a communication network connecting HD patients and their families with experts and available resources. The mission to improve access to quality care, education and social assistance for North Carolinians has been achieved in urban areas associated with these tertiary care centers. The services provided include streamlined access to quality providers, crisis intervention services, case management, timely diagnosis and disability approval, family education and support, attention to the behavioral and psychiatric symptoms of HD and guidance through the long term and hospice care process. Improving quality of life through the delivery of these services has been achieved.
- Website
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http://www.hdreach.org
External link for HD Reach
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Cary, NC
- Type
- Nonprofit
- Founded
- 2009
Locations
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Primary
Get directions
2054 Kildaire Farm Road #427
Cary, NC 27518, US
Employees at HD Reach
Updates
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DURHAM & CHARLOTTE: Meetups next week! Sign up here: https://buff.ly/4bp6vnH * What is a Meet Up? * This is a casual environment for those impacted by HD to meet, socialize, and build community. 💙💜 For questions, contact Erika at eboulavsky@hdreach.org.#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
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Join us at the HD Educational Community Support Group this Saturday, July 20th from 11am-12pm ET. After this first hour, the group will divide in to support groups for another hour that you are more than welcome to stay for. This group provides an opportunity for people who are living with and impacted by HD to learn from presenters and share experiences together. The Teams link is below for you to connect to or dial in. Hope to see you there! https://buff.ly/4cLM9Gy #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
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15 Years Beside You! To celebrate HD Reach's 15th anniversary, we will be playing Who is Waldo! For $15, take your guess at Who is Waldo! Waldo will match all gifts and the winner will get a mystery prize! Here's the next clues... Waldo is a is proud husband and caregiver of an HD warrior, and tall enough to play basketball but didn't! https://t.co/RqE7SCPOSn #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
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The VUMC Virtual Happy Hour is hosted today and Every Tuesday from 6 -7 p.m. ET and they would love to see you there. The Teams link is below for you to connect to or dial in. Hope to see you there! https://buff.ly/45Sd4hp #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
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It was show time! Members of our team, Erika Boulavsky and Betsey McFarland joined UNC Chapel Hill team, Latorius Adams, Dr. Claudia Testa, and Hans Nettesheim to speak with Heather Altman from the Aging Well Together show on WCOM 103.5 on July 11th. We talked about our beginnings as a nonprofit, educated on Huntington’s disease, and shed light on where to seek support. Please take a listen as we enjoyed every second of LIVE radio! #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd https://buff.ly/466X5fE
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We are seeking sponsors for the Drive Hope Home Golf Tournament! If you have anyone in mind please share the brochure or request letter on our website or send them our way. We are looking forward to our best year yet in a new location at 12 Oaks in Holly Springs, NC! *Please also note we have a special opportunity to honor loved ones with an In Honor / Memory Sign at the Clubhouse. Come team up together to make a lasting impact. 💙⛳️🏌️♀️ https://buff.ly/3VqZFs1
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Project AWARE 2.0 is a pivotal study aimed at enhancing the design and implementation of drug trials and observational studies for Huntington’s disease (HD). By participating, you contribute valuable insights that help researchers understand the factors influencing participation in such critical research efforts. To take part in the Project AWARE 2.0 Survey, visit myhdstory.org. @huntingtonstudygroup #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
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Excited to introduce Susan Cosby, our valued Family Advisory Board member! The FAB collaborates with us to shape our programs and amplify community voices. #FamilyAdvisory #CommunityEngagement #JoinOurTeam #CommunityInvolvement #VoiceMatters #FAB #ReachForHope #Huntingtonsdisease https://buff.ly/3Xhk3hy
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#REACHFORAWARENESS: Let's shine a light and come together to raise awareness for Huntington's disease! Sharing quick facts about HD can provide valuable insights into what it's like living with HD. https://buff.ly/3XxkgNR #HuntingtonsDisease #AwarenessMonth #DidYouKnow #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
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