Foundation Fighting Blindness

Spotlight on Choroideremia 👁️🗨️ Today, we’re highlighting the symptoms to expect with choroideremia. In childhood, night blindness is the most common first symptom. As the disease progresses, there is a loss of peripheral vision or “tunnel vision” and, later, a loss of central vision. Progression of the disease continues throughout the individual’s life, although both the rate and the degree of visual loss can vary, even within the same family. To learn more about choroideremia, visit our website at: https://lnkd.in/emix3BwK Image Descriptions: [Image 1] Dark blue background with the Spotlight on Choroideremia logo at the top with the text, “What To Expect with Choroideremia” below. Underneath is an arrow pointing to the right and the Foundation logo in the bottom left corner. [Image 2] Dark blue background with the Spotlight on Choroideremia logo at the top with a dark view of a house at night, and text below that says, “Night blindness is the most common first symptom.” [Image 3] Dark blue background with the Spotlight on Choroideremia logo at the top with a view of a house blurred on the peripheral, and text below that says, “As the disease progresses, there is loss of peripheral vision.” [Image 4] Dark blue background with the Spotlight on Choroideremia logo at the top with a view of a grocery store aisle blurred in the center, and text below that says, “Later there is a loss of central vision as well.”

Missed our March webinar on Dry AMD? Watch the recording now to hear directly from patients about their experiences and insights. Find the webinar recording and full Voice of the Patient report at: https://bit.ly/3YbG8Pk

Don't miss out on the Fall #VisionWalk Challenge! Register your team by July 31 for the chance to win lunch with Foundation Fighting Blindness CEO, Jason Menzo! Register now at: www.VisionWalk.org Image Description: Eight members of Team Ava posing with their Top Fundraising Team certificate at the 2023 Philadelphia VisionWalk. A blue banner across the top with the VisionWalk logo and text that reads "Join our fall #VisionWalk challenge!"

Have you ever wondered about the challenges that scientists encounter when developing treatments and cures for retinal diseases? This week's episode of Eye on the Cure covers just that. Join Francois Paquet-Durand, PhD, a professor from the University of Tübingen and co-founder of the company Mireca, as he talks to host Ben Shaberman about the long journey of an emerging, Foundation-funded drug for the treatment of certain forms of retinitis pigmentosa. Learn more about streaming at: https://bit.ly/4cdtJxN Image Description: Eye on the Cure Podcast logo at the top with a headshot of Francois Paquet-Durand below and text to the right that says, "EPISODE 69: Dr. Francois Paquet-Durand" with more text below that says, "Listen to the Latest Podcast Episode Out Now."

Join our Fall #VisionWalk Challenge by registering your team by the end of this month. Not only will you be supporting groundbreaking research for retinal disease, but you'll also have the chance to win an exclusive lunch with our CEO, Jason Menzo! ✨ Form your team, spread the word, and let's walk together towards a brighter future. Register now at: www.VisionWalk.org Image Description: Two women walking with their hands excitedly in the air. A blue banner across the top with the VisionWalk logo and text that reads "Join our fall #VisionWalk challenge!"

Congratulations to our SAB Vice Chair Dr. José-Alain Sahel of UPMC who has been awarded the 2024 Wolf Prize in Medicine! Awarded annually, this prestigious award honors exceptional individuals who transcend barriers of religion, gender, race, geography, and political stance, acknowledging scientists and artists worldwide for their outstanding achievements in advancing science and the arts for the betterment of humanity. Read more at: https://lnkd.in/eSwdmB27

Chris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness. Watch Chris’ full Beacon Story on our website at: https://lnkd.in/eBRvuz7R This Beacon Story is sponsored by Johnson & Johnson. Video Description: Various clips of Chris riding his mountain bike discussing his journey with Stargardt and his fundraising race for the Foundation.

Attention VisionWalkers! 📢 Are you ready to make a difference this fall? Gather your friends, family, and colleagues, and register your team for your local Fall VisionWalk by the end of this month! When you sign your team up by July 31, you’ll not only join us in taking important steps toward treatments and cures, but you'll also have a chance to win an unforgettable experience: lunch with our very own CEO, Jason Menzo! 🍽️��� Don’t miss out on this amazing opportunity to connect, have fun, and support a great cause. Register today at: www.VisionWalk.org #VisionWalk #FightBlindness #JasonMenzo Image Description: Jason Menzo speaking into a microphone and holding a paper in his hand. A dark blue banner in the right corner with text that says "Join our fall #VisionWalk challenge!" and the VisionWalk logo in the bottom right corner.

In June, over 500 individuals worldwide came together in Chicago, IL, for the #VISIONS2024 Conference. Follow Jessie as she meets and shares about a few of our attendees! Two Blind Brothers Flight for Sight Eyes Like Mine Inc. Cure Usher Video Description: Begins with a clip of six individuals dancing in front of a backdrop with the Foundation Fighting Blindness logo while holding white canes, followed by clips of each individual speaking directly to the camera.

July is UV Safety Awareness Month! ☀️ Did you know that UV rays can be harmful to your eyes and increase your risk of developing eye conditions, including age-related macular degeneration (AMD)? By wearing sunglasses and seeking shade during peak sun hours, you can help safeguard your eyes and reduce the risk of vision loss. Keep your eyes safe and enjoy the sunshine responsibly this summer. #UVSafetyAwarenessMonth #ProtectYourVision #StaySunSafe #EyeHealth #AMDawareness Image Description: A young child with curly hair smiles while wearing heart-shaped sunglasses. The Foundation Fighting Blindness logo is in the top left corner with text to the right that reads "July is Ultraviolet (UV) Safety Month" on a blue and teal background.