The following rare diseases have awareness days in July: Craniometaphyseal Dysplasia, CTNNB1 Syndrome, Jansen Type Metaphyseal Chondrodysplsia, Rubinstein - Taybi Syndrome & Multiple Sulfatase Deficiency #rarediseases #rarediseaseawareness
Beyond the Diagnosis
Non-profit Organizations
Pawtucket, Rhode Island 554 followers
Advancing Medicine Through Art
About us
Beyond the Diagnosis unites art and science to inspire research and innovation of treatments for people living with orphan and neglected diseases.
- Website
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http://www.beyondthediagnosis.org
External link for Beyond the Diagnosis
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Pawtucket, Rhode Island
- Type
- Nonprofit
- Founded
- 2011
- Specialties
- Advocacy
Locations
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Primary
Get directions
1005 Main Street
8107
Pawtucket, Rhode Island 02860, US
Employees at Beyond the Diagnosis
Updates
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The following rare diseases have awareness days in June: SYNGAP1, Paternal Uniparental Chromosome 4, Apert Syndrome, KBG Syndrome, CLN2 Batten Disease & Arthrogryposis Multiplex Congenita. #rarediseases #rarediseaseawareness
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Did you know June is Apert Syndrome awareness month? Meet Giuliana painted by Vivian McNeeley #rarediseases #rarediseaseawareness
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May is Sturge-Weber Awareness Month. Meet Ashlyn, painted by Wolfgang Widmoser. Sound on! #rarediseases #rarediseaseawareness #portraitart
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May 23rd is International GM1 Gangliosidosis Awareness Day! Meet Iris, painted by Zohra Amarta! GM1 gangliosidosis is an inherited disorder that progressively destroys nerve cells in the brain and spinal cord. Some researchers classify this condition into three major types based on the age at which signs and symptoms first appear. Although the three types differ in severity, their features can overlap significantly. #GM1day #GM1 #art #portraitart
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May is Cystinosis Awareness Month. Meet Lily, lovingly painted by Debralee Iacobucci! Cystinosis is a rare, multisystem genetic disorder characterized by the accumulation of an amino acid called cystine in different tissues and organs of the body including the kidneys, eyes, muscles, liver, pancreas, and brain. #cystinosisresearch #cystinosis #art #portrait #portraitart #raredisease
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Jack & Charlotte, lovingly painted by Nathalie Godin!! This beautiful portrait was unveiled at Children's Hospital of Richmond at VCU! Jack has Warsaw Breakage Syndrome and twin sister, Charlotte, is a carrier. #rarediseases #raregeneticcondition #art #portraits #portraitart