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Laughing at My Nightmare
With acerbic wit and a hilarious voice, Shane Burcaw's Laughing at My Nightmare describes the challenges he faces as a twenty-one-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.
256 pages, ebook
First published October 14, 2014
About the author
Shane Burcaw
5 books485 followersShane Burcaw grew up in Bethlehem, Pennsylvania and graduated from Moravian College with an English degree. He is the author of several award-winning books about disability. He is the President of a nonprofit organization called Laughing At My Nightmare, Inc. and a renowned public speaker who has performed across the country from universities to elementary schools to Fortune 500 companies. On his YouTube channel, Squirmy and Grubs, which has gained 1,000,000+ subscribers and worldwide media attention, he and his wife, Hannah, share a hilarious and authentic examination of what it’s like to be in an interabled relationship. They live in Minneapolis, MN with their fluffy labradoodle, Chloe.
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Displaying 1 - 30 of 781 reviews
May 12, 2019
I picked this book up because I love Shane and his current girlfriend's youtube channel, so for what this is, I had a really great time learning about Shane's history and childhood and the way his disease has progressed over the years. This book is told in Shane's famed humorous style, as he uses that sarcasm and joking manner to spin what others see his life as a tragedy into something more meaningful. Although I enjoyed my time reading this book, there are two major hindrances that caught my eye. First, I don't know how interesting this book would be for someone who doesn't know Shane from YouTube, unless you're interested in an ownvoices book that talks about disability. Second, this book has three chapters that talk about mentally disabled people in a disturbing light. In these chapters, he attempts to separate himself from mentally disabled people even though he was lumped together with them a lot in school and activities due to them being in a wheelchair, which is fair. But this book used those other disabled students he was around as an insult or a joke far too often, sometimes even making fun of them for things they couldn't help or things that were normal about them. It reads as highly uncomfortable and wrong like he thinks he's above other disabled students because of how highly functional he is, so if you're sensitive to reading negativity about people with mental disabilities, I would avoid this one.
Despite that, I began his second book of essays after finishing this one and it's already so much better in terms of talking more widely about disability in a way that doesn't shame other members of the community. I definitely think some of his jokes were just in bad taste, where otherwise his book did a great job discussing that living in a wheelchair with a terminal disease isn't the tragic and mopey lifestyle a lot of strangers assume it is. Although this book wasn't my favorite, I did like reading more about Shane and it was actually super quick.
Despite that, I began his second book of essays after finishing this one and it's already so much better in terms of talking more widely about disability in a way that doesn't shame other members of the community. I definitely think some of his jokes were just in bad taste, where otherwise his book did a great job discussing that living in a wheelchair with a terminal disease isn't the tragic and mopey lifestyle a lot of strangers assume it is. Although this book wasn't my favorite, I did like reading more about Shane and it was actually super quick.
June 2, 2015
Twenty-one year old Shane Burcaw's acerbic, raunchy, cussing look at life from a person with a debilitating disease, is written to teenagers with an authentic voice and good message, but it is flawed by its negative stereotype and insensitivity toward people that suffer from mental challenges. Shane is only affected physically and ironically he perpetuates stereotypes in his comments about those with mental disabilities. Shane is a courageous kid who uses humor to deal with his spinal muscular atrophy, a disease that causes the muscles to waste away. He weighs about sixty pounds and shows how he has slowly lost control of the muscles that help him hold his head up, chew, and talk. He has never walked and relies on others to help him every day, but this doesn't keep him from living a full life. He reveals in his biography how he has made friends and lived as normal a life as possible playing sports, dating, and starting a nonprofit organization. It is obvious he is living a full life.
Shane's family is loving and supportive. They all use humor as a way to deal with Shane's disease and they are very positive. They have taught Shane that life is what you make of it and that being in a wheelchair does not mean you cannot live and dream like everyone else. It does mean that obstacles will be different and normalcy will take on a different meaning. The book describes Shane's painful surgeries and need for help with sleeping, dressing, eating, and moving around. He does not dwell on the fact that he will not live a long life or that he cannot walk.
As someone trying to help others, I am baffled by the instances where Shane separates himself from others with disabilities that affect social or mental skills and perpetuates stereotypes that this type of person is outside of society and "not like him". In a world that has problems with intolerance and persecution of marginalized people, I was offended several times by his stance. And as a person with a nephew who has autism, I find the book insensitive to my nephew's value of being a member of society. He implies that people like this are not worth his time. Shane does not go after any one disease, but instead refers to kids with mental challenges as having tantrums or drooling and being so different from him that he can't fit in with them. In his quest to be considered normal he unintentionally puts down others with disabilities. The result is it keeps the book from reaching its potential even though for the most part I liked his authentic viewpoint and humor.
I liked the book most when Shane stuck with describing the challenges of having his disease. I laughed pretty hard with his description at the doctor's office yelling football commentaries at the top of his lungs to deal with the pain of getting monthly shots. He uses some good figurative language and captures the terror of not being able to breathe. The budding romance at the end loses this writing style and he sounds more like a hormonal boy out of his mind that he has a girlfriend with most of the descriptions being "fucking awesome." I have a bias where I think authors or characters in movies that resort to a pattern of swearing are being lazy. It is easier to swear than come up with a metaphor or simile describing feelings. I suppose you could argue the swearing goes with his character. He does swear excessively throughout the book. Of course, I work with kids every day all day long and swearing is not in my vocabulary.
Shane spends much of the book convincing himself and other people that he is normal even though he is in a wheelchair. He shows how adults can be patronizing and pitying toward people in wheelchairs. The struggles he has with relying on others to help him all the time are poignant and revealing. Even his terror at a college event and wondering if someone was going to break his neck by hitting his chair so hard running to the stage show how fragile his body is. But he also shows great courage in trying things. He has discovered that through his positive dealings with spinal muscular atrophy, he has helped others through his blog and organization deal with their own struggles in life. His life is valuable and he is contributing to society in a terrific way. You go Shane. Just clean up your mouth a little, would ya?
Shane's family is loving and supportive. They all use humor as a way to deal with Shane's disease and they are very positive. They have taught Shane that life is what you make of it and that being in a wheelchair does not mean you cannot live and dream like everyone else. It does mean that obstacles will be different and normalcy will take on a different meaning. The book describes Shane's painful surgeries and need for help with sleeping, dressing, eating, and moving around. He does not dwell on the fact that he will not live a long life or that he cannot walk.
As someone trying to help others, I am baffled by the instances where Shane separates himself from others with disabilities that affect social or mental skills and perpetuates stereotypes that this type of person is outside of society and "not like him". In a world that has problems with intolerance and persecution of marginalized people, I was offended several times by his stance. And as a person with a nephew who has autism, I find the book insensitive to my nephew's value of being a member of society. He implies that people like this are not worth his time. Shane does not go after any one disease, but instead refers to kids with mental challenges as having tantrums or drooling and being so different from him that he can't fit in with them. In his quest to be considered normal he unintentionally puts down others with disabilities. The result is it keeps the book from reaching its potential even though for the most part I liked his authentic viewpoint and humor.
I liked the book most when Shane stuck with describing the challenges of having his disease. I laughed pretty hard with his description at the doctor's office yelling football commentaries at the top of his lungs to deal with the pain of getting monthly shots. He uses some good figurative language and captures the terror of not being able to breathe. The budding romance at the end loses this writing style and he sounds more like a hormonal boy out of his mind that he has a girlfriend with most of the descriptions being "fucking awesome." I have a bias where I think authors or characters in movies that resort to a pattern of swearing are being lazy. It is easier to swear than come up with a metaphor or simile describing feelings. I suppose you could argue the swearing goes with his character. He does swear excessively throughout the book. Of course, I work with kids every day all day long and swearing is not in my vocabulary.
Shane spends much of the book convincing himself and other people that he is normal even though he is in a wheelchair. He shows how adults can be patronizing and pitying toward people in wheelchairs. The struggles he has with relying on others to help him all the time are poignant and revealing. Even his terror at a college event and wondering if someone was going to break his neck by hitting his chair so hard running to the stage show how fragile his body is. But he also shows great courage in trying things. He has discovered that through his positive dealings with spinal muscular atrophy, he has helped others through his blog and organization deal with their own struggles in life. His life is valuable and he is contributing to society in a terrific way. You go Shane. Just clean up your mouth a little, would ya?
May 18, 2016
It took me a few days to let this one marinate before writing a review. I know that my opinion of it is different than most others here on goodreads, but it left a sour taste in my mouth. Shane (and friends) considers himself to be a champion for disabled people, a breath of fresh air, etc. But throughout the book, he reiterates that he does not like other disabled people. In fact, they sicken him. After a little internet searching, I found that the feeling is mutual. His "fresh air" actually works to steal the legitimate voices of those fighting for their rights. By pushing so hard to make "normal" the "cool" way for disabled people to act, he makes others look like whiners to the outside world, when they have real, important concerns. And, when they can't come off as "cool" as he does, he makes them seem sickening to others as well.
It's incredibly sad. If he could have paired his insightful, funny, candid style with real compassion, this book would have been a home run. As it stands, he is Regina George for people with disabilities. And that is decidedly uncool.
It's incredibly sad. If he could have paired his insightful, funny, candid style with real compassion, this book would have been a home run. As it stands, he is Regina George for people with disabilities. And that is decidedly uncool.
June 12, 2014
I was able to get an advanced copy of this book through netgalley in exchange for my honest opinion.
Being a person with MD, I could relate to many of the things Shane discussed in his book. While I am still able to do many things for myself I do have to rely on other people for help sometimes and know how frustrating it is. I also deal with people staring because of the way I sit in my chair or being talked to like I'm 3. So much of his book hit home. I loved his humor and I too find that laughing about things makes it so much easier to deal it. This book was well written and even though there was some language (he uses the f-bomb several times) I still enjoyed the book. I think anyone dealing with issues should read this. I love his message that laughter is the best medicine and I am so glad that someone like him is willing to share the scary experience of MD and its progression. I highly recommend this book.
Being a person with MD, I could relate to many of the things Shane discussed in his book. While I am still able to do many things for myself I do have to rely on other people for help sometimes and know how frustrating it is. I also deal with people staring because of the way I sit in my chair or being talked to like I'm 3. So much of his book hit home. I loved his humor and I too find that laughing about things makes it so much easier to deal it. This book was well written and even though there was some language (he uses the f-bomb several times) I still enjoyed the book. I think anyone dealing with issues should read this. I love his message that laughter is the best medicine and I am so glad that someone like him is willing to share the scary experience of MD and its progression. I highly recommend this book.
June 13, 2014
Got this from Netgalley!
So, first I have to say that this book would definitely be rated R for profanity and some sexual situations. As a middle-aged Mormon pediatric nurse with five kids, this is not particularly my cup of tea. Despite those things, I loved this book for it's message of using humor and optimism to enjoy life and be thankful for it no matter what your circumstance.
Shane was born with spinal muscular atrophy, which is when the body fails to produce a particular enzyme required for making and maintaining muscle tissue. Aside from having some physical abnormalities, Shane's body slowly and steadily gets weaker. Mentally, he's completely "normal," and above average intelligence, above average sense of humor. He describes his life, from the day to day where he can barely chew or move his head, to the friendships and relationships he forms. It's definitely a "faith in humanity restored" books. Shane started a blog, Laughing at My Nightmare on tumblr, and eventually it morphed into a foundation for spreading laughter to overcome adversity, which lead to a documentary, and also writing this book. I was ignorant of any of that, so this was my first exposure to Shane.
I distinctly remember this one part. He describes how he deals with problems as they arise. He asks himself, basically, if it will matter in ten years. This includes breaking up with someone, breaking a femur, etc. Most problems won't, so there's no reason to worry about them. The second question is, can he do anything about the problem? These type of problems include becoming weaker each year, losing a loved one, etc. Since the answer to the second question is almost invariably NO, he says his solution is not rocket science. He just doesn't think about those things. Instead he focuses on laughing, on doing thing important to him, being with his friends, family, girlfriend. This type of attitude is almost unheard of in this world. Already when I was cleaning up my daughter's barf when she was sick, this little tip made me smile and realize there's no use being in a bad mood about it.
I think anyone can benefit from reading this book. Shane is an amazing person. I personally could have done without some of the cruder elements, but real life isn't always PG.
So, first I have to say that this book would definitely be rated R for profanity and some sexual situations. As a middle-aged Mormon pediatric nurse with five kids, this is not particularly my cup of tea. Despite those things, I loved this book for it's message of using humor and optimism to enjoy life and be thankful for it no matter what your circumstance.
Shane was born with spinal muscular atrophy, which is when the body fails to produce a particular enzyme required for making and maintaining muscle tissue. Aside from having some physical abnormalities, Shane's body slowly and steadily gets weaker. Mentally, he's completely "normal," and above average intelligence, above average sense of humor. He describes his life, from the day to day where he can barely chew or move his head, to the friendships and relationships he forms. It's definitely a "faith in humanity restored" books. Shane started a blog, Laughing at My Nightmare on tumblr, and eventually it morphed into a foundation for spreading laughter to overcome adversity, which lead to a documentary, and also writing this book. I was ignorant of any of that, so this was my first exposure to Shane.
I distinctly remember this one part. He describes how he deals with problems as they arise. He asks himself, basically, if it will matter in ten years. This includes breaking up with someone, breaking a femur, etc. Most problems won't, so there's no reason to worry about them. The second question is, can he do anything about the problem? These type of problems include becoming weaker each year, losing a loved one, etc. Since the answer to the second question is almost invariably NO, he says his solution is not rocket science. He just doesn't think about those things. Instead he focuses on laughing, on doing thing important to him, being with his friends, family, girlfriend. This type of attitude is almost unheard of in this world. Already when I was cleaning up my daughter's barf when she was sick, this little tip made me smile and realize there's no use being in a bad mood about it.
I think anyone can benefit from reading this book. Shane is an amazing person. I personally could have done without some of the cruder elements, but real life isn't always PG.
January 28, 2015
Okay, I wasn't going to review this book, but several days after reading it I still feel aggravated, so I'm going to reduce my review by a star and say why.
I'd probably have liked this book if the author wasn't a jerk. Now, I'm an equal-opportunity jerk-hater, so his disability shouldn't enter into it... But the way he treats other people, particularly the other kids he's been in close contact with who have mental disability, place him squarely in the douchebag category that I reserve for people who can't see beyond themselves.
Comedy is one of those things that you have to be careful with - to caricature others in a way that debases their humanity is going a step too far - and to do it with some knowledge of their difficulty is two steps too far. I'd say something about maturity, but sadly there are plenty of people of all ages whose value of other human beings is pretty low, so it's really not that.
It's a problem of entitlement - and some poor taste in humour.
That said, I do have to give the book stars for a raw portrayal of some of the hard things about having a disease like SMA. I just think he could have done a better job.
I'd probably have liked this book if the author wasn't a jerk. Now, I'm an equal-opportunity jerk-hater, so his disability shouldn't enter into it... But the way he treats other people, particularly the other kids he's been in close contact with who have mental disability, place him squarely in the douchebag category that I reserve for people who can't see beyond themselves.
Comedy is one of those things that you have to be careful with - to caricature others in a way that debases their humanity is going a step too far - and to do it with some knowledge of their difficulty is two steps too far. I'd say something about maturity, but sadly there are plenty of people of all ages whose value of other human beings is pretty low, so it's really not that.
It's a problem of entitlement - and some poor taste in humour.
That said, I do have to give the book stars for a raw portrayal of some of the hard things about having a disease like SMA. I just think he could have done a better job.
December 16, 2014
This will certainly be the most usual YA in your collection. The author, 21-years-young, has spinal muscular atrophy (SMA) and has been wheelchair-bound all of his life. He started a blog and, the Internet being the wonderful world that it is, the blog took off. Why? Shane Burcaw has a sense of humor, AND he puts his predicament in perspective.
For some, the book might cross well into TMI territory -- you know, way too much information, from the logistics of peeing and pooping to the quest for a girl and, you know, sex. On the other hand, given the success of Adam Sandler movies with the teen crowd, you might say, "So what's new? It's age-inappropriate, every graphic bit of it."
The book, episodic in nature, follows Shane from toddler years to the present day and his "Laughing at My Nightmare" tour, complete with speaking engagements. Is the writing stellar? Well, no. Are there any poetic insights into the nature of life? Shane flirts with such moments, and that's when the book is at it's best -- not so much when it's going for belly laughs as when it's looking at the big picture and being self-reflective.
Overall, though, looking past the f-bombs and occasionally gratuitous fart jokes, I think it'd be a great thing for teens to read, especially if they act "afraid" or "nervous" when they are around handicapped people. People are people, no matter what their situation or what they look like. If the book has one solid message to make, that's it, and on that score, Burcaw makes his point well.
For some, the book might cross well into TMI territory -- you know, way too much information, from the logistics of peeing and pooping to the quest for a girl and, you know, sex. On the other hand, given the success of Adam Sandler movies with the teen crowd, you might say, "So what's new? It's age-inappropriate, every graphic bit of it."
The book, episodic in nature, follows Shane from toddler years to the present day and his "Laughing at My Nightmare" tour, complete with speaking engagements. Is the writing stellar? Well, no. Are there any poetic insights into the nature of life? Shane flirts with such moments, and that's when the book is at it's best -- not so much when it's going for belly laughs as when it's looking at the big picture and being self-reflective.
Overall, though, looking past the f-bombs and occasionally gratuitous fart jokes, I think it'd be a great thing for teens to read, especially if they act "afraid" or "nervous" when they are around handicapped people. People are people, no matter what their situation or what they look like. If the book has one solid message to make, that's it, and on that score, Burcaw makes his point well.
May 16, 2020
Having only "discovered" Shane Burcaw and his work fairly recently, I'm a bit late to the party of Laughing At My Nightmare (I mean he's already written an entirely new book, Strangers Assume My Girlfriend Is My Nurse, its already out and looks awesome, just FYI). Since I've enjoyed his work on Youtube and Instagram, I thought to pick up a copy of Laughing At My Nightmare and give it a go. I went with the Audiobook version, and listened a lot in the evenings before bed.
I enjoyed the lighthearted and humorous way that Burcaw writes in, it was definitely fun. Shane and I actually share the same rare condition; Spinal Muscular Atrophy. Because it's a rare condition, I often feel a bit of an affinity when hearing stories of people with SMA, and this book was no exception. Though Shane and I appear to be different types on the SMA spectrum, I had so many "yep, I know how that feels" moments while reading. Growing up in Muscular Dystrophy communities, I understood the culture of the childhood MD camps he went on, as I went to many myself over the years. I know the frustration of getting measured up for new wheelchairs or how SMA bodies work - the whole "I need my leg to be in this exact angle in order to hold myself in this particular position" was something I really related to. People who don't have a disability like that, just do not understand how delicate that balance can be when your muscles are weaker, especially when it comes to seating in a wheelchair.
The thing that I reflected a lot on in Laughing At My Nightmare, was how Shane understood himself as a person with a disability, and how he related to other people with a disability in the book. For me, as a disabled person, though I acknowledge all people with disability are different, as an adult person, I don't differentiate that much from other disabilities in my head. I see how we're different, but I also acknowledge we have some shared life experiences. In Laughing At My Nightmare, there is a lot of discussion in which he appears to differentiate himself from other types of disabilities and the people who experience them. Sometimes these experiences negatively frame a person with a vastly different disability to Shane - when I read some other reviews online, that was the one main issue I saw repeated from the disability community.
All people with disability experience disability differently. For Shane, I got a really clear sense he was trying to assure the reader he was not like this person or that, but entirely himself. It's not a bad thing, though given this book was written a few years ago now, it’s possible his views have changed. It's also important to note Shane was a young person himself and still trying to find his way in the world, so you can't really blame him for having views that are not entirely formed. I wonder if this view of himself in relation to disability has changed, or if at the time of writing he was aware of that perception. It's not a criticism by any stretch, merely an observation - we all change how we feel about ourselves and how we see others over time, and this may have happened for Shane too, I'll have to read his next book to find out (I definitely will be picking up a copy soon!).
I know for me, my experience and view of disability has adapted and changed over time. I used to see this same distance between me and other people with a disability when I was quite young, but more and more as I grew up, I saw the sense of community, of shared fights for access - fights for access socially, culturally, for support, for accessibility itself, the list goes on and on. Though we might have very different disabilities or impairments physically, the experience of disability in a socio-cultural sense is shared. The things we experience as a result of inaccessibility, of ableism, of discrimination, of unequal human rights - are shared. For me, though I acknowledge I am an individual, my individuality is not diminished because I share experiences with other marginalised people. If I diminish those experiences in a sense, I also diminish my own experience of disability.
I guess that point could go on an even deeper tangent, because it is a question essentially of what makes us the same vs what makes us individuals, and how should we embrace which aspect at a given time - but I think I'll leave it there for now for myself and others to ponder.
To read more reviews, head to my blog
I enjoyed the lighthearted and humorous way that Burcaw writes in, it was definitely fun. Shane and I actually share the same rare condition; Spinal Muscular Atrophy. Because it's a rare condition, I often feel a bit of an affinity when hearing stories of people with SMA, and this book was no exception. Though Shane and I appear to be different types on the SMA spectrum, I had so many "yep, I know how that feels" moments while reading. Growing up in Muscular Dystrophy communities, I understood the culture of the childhood MD camps he went on, as I went to many myself over the years. I know the frustration of getting measured up for new wheelchairs or how SMA bodies work - the whole "I need my leg to be in this exact angle in order to hold myself in this particular position" was something I really related to. People who don't have a disability like that, just do not understand how delicate that balance can be when your muscles are weaker, especially when it comes to seating in a wheelchair.
The thing that I reflected a lot on in Laughing At My Nightmare, was how Shane understood himself as a person with a disability, and how he related to other people with a disability in the book. For me, as a disabled person, though I acknowledge all people with disability are different, as an adult person, I don't differentiate that much from other disabilities in my head. I see how we're different, but I also acknowledge we have some shared life experiences. In Laughing At My Nightmare, there is a lot of discussion in which he appears to differentiate himself from other types of disabilities and the people who experience them. Sometimes these experiences negatively frame a person with a vastly different disability to Shane - when I read some other reviews online, that was the one main issue I saw repeated from the disability community.
All people with disability experience disability differently. For Shane, I got a really clear sense he was trying to assure the reader he was not like this person or that, but entirely himself. It's not a bad thing, though given this book was written a few years ago now, it’s possible his views have changed. It's also important to note Shane was a young person himself and still trying to find his way in the world, so you can't really blame him for having views that are not entirely formed. I wonder if this view of himself in relation to disability has changed, or if at the time of writing he was aware of that perception. It's not a criticism by any stretch, merely an observation - we all change how we feel about ourselves and how we see others over time, and this may have happened for Shane too, I'll have to read his next book to find out (I definitely will be picking up a copy soon!).
I know for me, my experience and view of disability has adapted and changed over time. I used to see this same distance between me and other people with a disability when I was quite young, but more and more as I grew up, I saw the sense of community, of shared fights for access - fights for access socially, culturally, for support, for accessibility itself, the list goes on and on. Though we might have very different disabilities or impairments physically, the experience of disability in a socio-cultural sense is shared. The things we experience as a result of inaccessibility, of ableism, of discrimination, of unequal human rights - are shared. For me, though I acknowledge I am an individual, my individuality is not diminished because I share experiences with other marginalised people. If I diminish those experiences in a sense, I also diminish my own experience of disability.
I guess that point could go on an even deeper tangent, because it is a question essentially of what makes us the same vs what makes us individuals, and how should we embrace which aspect at a given time - but I think I'll leave it there for now for myself and others to ponder.
To read more reviews, head to my blog
November 18, 2019
I picked up this since I subscribe to Shane and his fiancee's YT channel Squirmy and Grubs. Although this isn't his recent book published, I enjoyed reading more about Shane and his life, including attending High School and growing up with Spinal Muscular Atrophy. It does get a little foul-mouthed at times but overall, it was a good read!
July 26, 2016
I loved this very honest, if not raw autobiography of Shane Burcaw who is living with Spinal Muscular Atrophy. He details a life of very funny moments balanced by those scary, real life moments for a person living with this disease. His approach to life is refreshing. I would love to put this book in the hands of my mature middle school readers who seem to carry the weight of their problems and family problems around with them every day. He asks himself one question when he begins to worry about a problem. "Will his life be irreparably or negatively changed because of this problem?"
Shane has a blog where he writes about his life as well as a non-profit aptly called Laughing at my Nightmare.
I love the part in this autobiography where he describes how he started his blog and writes about one of his first blog posts. I will use this as a read aloud as we kick off our own blogs in my middle school classroom. He writes with pure honesty and voice. Something that is difficult for many middle schoolers to do.
I will end up purchasing this for my classroom library, but will need a parent permission due to language and the exploration of teen bodily functions and curiosity.
Shane has a blog where he writes about his life as well as a non-profit aptly called Laughing at my Nightmare.
I love the part in this autobiography where he describes how he started his blog and writes about one of his first blog posts. I will use this as a read aloud as we kick off our own blogs in my middle school classroom. He writes with pure honesty and voice. Something that is difficult for many middle schoolers to do.
I will end up purchasing this for my classroom library, but will need a parent permission due to language and the exploration of teen bodily functions and curiosity.
October 15, 2014
This wonderful memoir hit all the right notes. It wasn't super sad because Shane Burcaw is wicked funny. It wasn't full of platitudes because Shane's 100% honest and holds nothing back. It was a warm, funny, honest book about a really cool guy, his family, friends and girlfriend. It was about his ambitions and limitations and the way he lives his life. When Shane revealed his deepest fears and greatest joys, I related to all of it. After reading this satisfying book, I felt like I would enjoy chatting with the author over a cup of coffee. Of course, his would have a long, bendy straw. Don't miss this excellent memoir, this glimpse into the daily life a hilarious, remarkable young man.
September 8, 2017
"None of us are normal. I have a diseas that's causing my muscles to waste away. I don't know if I'l be alive in ten years. I'm afraid to die. There are tons of annoying, aggravating, onoxious, and difficult things about living with SMA. But you know what? Life is still f-ing awesome. Every single one of us has problems. That's part of being alive. The beauty begins when you connect with other people and realize that we're all in the same boat. Once we accept that life is inherently difficult, we can move on and focus on having a good time despite the tough stuff."--This exemplifies this book. A Great read, all about perspective. He swears a lot, knows how to tell a story, but gets to the point. I enjoyed this very much and would LOVE to see him on a book tour. :)
June 23, 2015
While I enjoyed the majority of this book, one thing that consistently bothered me was Shane's depiction of others with disabilities, especially those with mental disabilities. There didn't seem to be any point to his rude descriptions of the neurodivergent people he interacted with other than to put them down and describe them in a dehumanizing manner in order to distance himself from them and assure the reader that he's NOT LIKE THEM. This is unnecessary and cruel.
November 29, 2020
Trigger warnings: medical procedures, descriptions of physical injuries, some pretty horrifying attitudes towards people with mental disabilities, mentions of suicide, vomit.
I've seen a handful of Shane Burcaw's videos and so when I saw this on Scribd, I figured I'd give it a try because I was interested to learn more about his story. And the parts of the story that dealt with his disability and how he hasn't let it stop him from doing the things he wants to do in life? That was pretty great. He's got a very engaging writing style that I generally enjoyed.
But. I was definitely not okay with the way he talked about other disabled people. He says some incredibly offensive things about the kids he rode the short bus with in high school, and at a couple of points when he goes to a summer camp for kids with muscular atrophy or joins a baseball league for kids in wheelchairs, there's almost a sense of "I'm not like them" superiority that was unsettling, almost like he felt they were less human than him because they found joy in activities that he considers himself above.
I do wonder if part of that is that this was written as a young adult memoir and so he's trying to cater to the teenage worldview?? But also this was written nearly ten years ago now and he was only 21 when it came out, so it's equally possible that it was just his age combined with how old the book is now.
In summary, I liked what this was trying to do, but I wish he hadn't been quite so much of a dick at times.
I've seen a handful of Shane Burcaw's videos and so when I saw this on Scribd, I figured I'd give it a try because I was interested to learn more about his story. And the parts of the story that dealt with his disability and how he hasn't let it stop him from doing the things he wants to do in life? That was pretty great. He's got a very engaging writing style that I generally enjoyed.
But. I was definitely not okay with the way he talked about other disabled people. He says some incredibly offensive things about the kids he rode the short bus with in high school, and at a couple of points when he goes to a summer camp for kids with muscular atrophy or joins a baseball league for kids in wheelchairs, there's almost a sense of "I'm not like them" superiority that was unsettling, almost like he felt they were less human than him because they found joy in activities that he considers himself above.
I do wonder if part of that is that this was written as a young adult memoir and so he's trying to cater to the teenage worldview?? But also this was written nearly ten years ago now and he was only 21 when it came out, so it's equally possible that it was just his age combined with how old the book is now.
In summary, I liked what this was trying to do, but I wish he hadn't been quite so much of a dick at times.
September 13, 2022
What an awesome book! Anyone who has read things I write would recognize why I love this book so much. It's like he's describing my life in another disease.
Shane has a progressive muscular dystrophy in which he has slowly lost more and more function over the course of his life. He has never walked and has been fully dependent on others for his entire life.
In spite of the huge challenges he has faced, he has a great sense of humor and finds ways to make horrible situations humorous. Humor has always been one of my greatest ways of coping with everything I deal with. If I were to write a book, it would sound just like this. My old personal "monkeygirl" website and many of my writings take this same approach.
Without denying the reality of his challenges, and with full transparency and honestly, he manages to help readers view him as a normal person with great intellect and a passion for life. He has not let the challenges stop him. He graduated from college and moved on to create a non-profit organization to benefit the MDA, which provides resources and research for people who deal with muscular dystrophies. As a "Jerry's kid" myself, his work is inspiring and I love his outlook. We have a similar philosophy and we think so much alike. I was astounded to learn that this huge organization is located just 88 miles from my own home in Bethlehem, PA.
I relate well to him in that I also started a non-profit for a couple of my conditions, the frustrations of "lazy", yet healthy and capable, people dropping the ball when we have a passion to pursue. We approach life with the same viewpoint, we want to live in the "normal" society and find ways to be accepted and not viewed as "different." I felt like I was reading my own story...from feeding tubes, loss of muscle function, the fears and fight for life. The desire to exceed all expectations and not be defined by our conditions, and the attempt to avoid invasive treatments and learning to accept when you have no other options.
It's so cool to read a great memoir about something so serious, something that could be depressing, but being able to laugh through it because of how he thinks and approaches his disability. It's so fun to listen to someone who has been through much of what I have and has the same approach. It's refreshing to read a memoir which can be so honest about something very scary, yet still be able to laugh. What an inspiration. I am so glad I got this book. I read it all in one day, looked up his non-profit, and I am now following him and his work with a desire to support what he is doing.
This book will be enjoyable for people with disabilities, and very eye opening for people without. It's a must read for anyone who truly wants to understand that being disabled does not mean life has to be completely limited. There is so much we can do, even if we need help and our bodies don't always cooperate. It depends on attitude, acceptance, and a drive to not allow it to destroy us...and that through the challenges, we can overcome so much and become even stronger and better. And, we can be thankful we do have challenges so we can use them to help others and make a positive impact in the world.
Read this book. You will not regret it. You will learn so much. You will be inspired. It will change how you view those who are not "normal" by societal standards. Easily one of the best books I've read all year.
Shane has a progressive muscular dystrophy in which he has slowly lost more and more function over the course of his life. He has never walked and has been fully dependent on others for his entire life.
In spite of the huge challenges he has faced, he has a great sense of humor and finds ways to make horrible situations humorous. Humor has always been one of my greatest ways of coping with everything I deal with. If I were to write a book, it would sound just like this. My old personal "monkeygirl" website and many of my writings take this same approach.
Without denying the reality of his challenges, and with full transparency and honestly, he manages to help readers view him as a normal person with great intellect and a passion for life. He has not let the challenges stop him. He graduated from college and moved on to create a non-profit organization to benefit the MDA, which provides resources and research for people who deal with muscular dystrophies. As a "Jerry's kid" myself, his work is inspiring and I love his outlook. We have a similar philosophy and we think so much alike. I was astounded to learn that this huge organization is located just 88 miles from my own home in Bethlehem, PA.
I relate well to him in that I also started a non-profit for a couple of my conditions, the frustrations of "lazy", yet healthy and capable, people dropping the ball when we have a passion to pursue. We approach life with the same viewpoint, we want to live in the "normal" society and find ways to be accepted and not viewed as "different." I felt like I was reading my own story...from feeding tubes, loss of muscle function, the fears and fight for life. The desire to exceed all expectations and not be defined by our conditions, and the attempt to avoid invasive treatments and learning to accept when you have no other options.
It's so cool to read a great memoir about something so serious, something that could be depressing, but being able to laugh through it because of how he thinks and approaches his disability. It's so fun to listen to someone who has been through much of what I have and has the same approach. It's refreshing to read a memoir which can be so honest about something very scary, yet still be able to laugh. What an inspiration. I am so glad I got this book. I read it all in one day, looked up his non-profit, and I am now following him and his work with a desire to support what he is doing.
This book will be enjoyable for people with disabilities, and very eye opening for people without. It's a must read for anyone who truly wants to understand that being disabled does not mean life has to be completely limited. There is so much we can do, even if we need help and our bodies don't always cooperate. It depends on attitude, acceptance, and a drive to not allow it to destroy us...and that through the challenges, we can overcome so much and become even stronger and better. And, we can be thankful we do have challenges so we can use them to help others and make a positive impact in the world.
Read this book. You will not regret it. You will learn so much. You will be inspired. It will change how you view those who are not "normal" by societal standards. Easily one of the best books I've read all year.
August 10, 2020
I decided to read this book after about 10 of his YouTube videos were repeatedly suggested for me. Why? Idk.
Anyway, on to the review... For someone trying to be a voice for people with disabilities, he is very judgemental, rude, and insensitive. He makes a joke of cheating his way through school, and seems very proud of how he takes advantage of people's lack of knowledge about his disability to use people and cheat his way through life. Even worse, he makes fun of and belittles those with mental disabilities, more than once.
Throughout the book, he displays a chauvinistic attitude, and seems like he believes he is "better then you." I definitely got the feeling that he's not using his disability to bring awareness or normalcy to people with disabilities, but purely for the fame. I found zero redeeming qualities for this author or his book.
Anyway, on to the review... For someone trying to be a voice for people with disabilities, he is very judgemental, rude, and insensitive. He makes a joke of cheating his way through school, and seems very proud of how he takes advantage of people's lack of knowledge about his disability to use people and cheat his way through life. Even worse, he makes fun of and belittles those with mental disabilities, more than once.
Throughout the book, he displays a chauvinistic attitude, and seems like he believes he is "better then you." I definitely got the feeling that he's not using his disability to bring awareness or normalcy to people with disabilities, but purely for the fame. I found zero redeeming qualities for this author or his book.
December 29, 2016
You gotta admire his sense of humor, as he laughs at his nightmare.
Thank you Shane.
Thank you Shane.
February 12, 2019
Shane Burcaw is an inspiration, and this book can teach anyone to live their life in the way they want no matter what challenges (especially physical) they might face. The last half of these 256 pages had me entranced, and I felt really happy for Burcaw because he had been able to find love and give purpose to his life that even he did not have many aspirations for at a young age, but he didn't let his disease stop his ability to just be a genuinely good person. Aside from being inspirational, this book is hilarious. Almost every page is filled with laughter, which makes reading the book fly by and I wish it could be longer. Hoping for a follow-up if Burcaw ever finds the time, but he is a busy man.
November 21, 2023
I give this autobiography a 3/5🌟. Shane is a YouTuber I love, and he wrote this when he was 20 (a little over 10 years ago). Although it gave a lot of insight into the life of someone living with SMA (Spinal Muscular Atrophy), he would mention being compared to people with mental disabilities in a degrading way. He does not give off the same vibe as he does via his YouTube videos which shows hes grown and matured out of that "although im disabled im still smart and not mentally challenged" image. He wrote a 2nd book which I plan on reading and hope his views has changed on how he sees himself (physical disability vs mental ones).
April 30, 2022
Read during Dewey's 24-Hour Readathon!
October 30, 2014
I have to confess I approached this book--and the blog of the same name--with some mild trepidation. I feared Burcaw was exploiting his disability, i.e., currying praise for being inspirational when all he's doing is, you know, surviving. I don't like referring to a disability as a disease, either. It's like playing the pity card, emphasizing medicalization and portraying yourself as a victim of said disease.
BUT … as Shane himself says, he's just a normal guy. He doesn't want to be pitied and he doesn't want to be special. In fact, he's sort of making fun of all that, turning "aw" & "ow" on its head (to "wa-wo," I guess).
BUT … Shane is definitely a talented writer. He's funny and expressive and moving. He has a distinctive "literary voice."
BUT… this is a good, quick, and gripping read. It's unfortunate that the publishing pros have relegated it to the "teen" market because it would be good for anyone of any age.
Full disclosure: I, too, grew up with spinal muscular atrophy, just like Shane. I identify with many of the experiences he describes here. Some of it cuts so close to the bone that it makes me shiver. That's not funny, I want to scream, when for example he describes being herded to the wheelchair section at a talk Michelle Obama gave at his school, separated from his friends. That's tragic!
Yet isn't it also illegal to ghettoize wheelchair folks, to deprive them of at least one "companion" seat? I do wish Shane had a stronger sense of disability rights, of his place in a broad community with a proud and deep history. Not to make the book all serious-like and angry and boring. Just so he'd have some righteous anger. His mission to fit in, to undermine the sense of "tragedy" and "nightmare" that pervades disability, to blur the distinctions of what's considered "normal," is exactly what the movement is all about. It's not just about gaining acceptance for yourself, Shane, but about making the world more respectful of and good-natured toward alla God's chilluns, no matter how they roll.
Still, what's great about this book is it's not a rant. He's not on a soapbox (I guess soapboxes used to be big, or something). His candor is startling and refreshing. His humor is fresh and infectious. Yes, I did laugh out loud multiple times. But in some ways this is actually a very deep and serious book. At least to me. Maybe that's because I'm not a teen anymore.
So power to Shane! Read his book! Recommend his book! Give it as a gift this holiday season! Your friends will thank you. Maybe Shane himself will thank you. He seems like that kind of guy.
Even if he never did post a blurb for MY book.
BUT … as Shane himself says, he's just a normal guy. He doesn't want to be pitied and he doesn't want to be special. In fact, he's sort of making fun of all that, turning "aw" & "ow" on its head (to "wa-wo," I guess).
BUT … Shane is definitely a talented writer. He's funny and expressive and moving. He has a distinctive "literary voice."
BUT… this is a good, quick, and gripping read. It's unfortunate that the publishing pros have relegated it to the "teen" market because it would be good for anyone of any age.
Full disclosure: I, too, grew up with spinal muscular atrophy, just like Shane. I identify with many of the experiences he describes here. Some of it cuts so close to the bone that it makes me shiver. That's not funny, I want to scream, when for example he describes being herded to the wheelchair section at a talk Michelle Obama gave at his school, separated from his friends. That's tragic!
Yet isn't it also illegal to ghettoize wheelchair folks, to deprive them of at least one "companion" seat? I do wish Shane had a stronger sense of disability rights, of his place in a broad community with a proud and deep history. Not to make the book all serious-like and angry and boring. Just so he'd have some righteous anger. His mission to fit in, to undermine the sense of "tragedy" and "nightmare" that pervades disability, to blur the distinctions of what's considered "normal," is exactly what the movement is all about. It's not just about gaining acceptance for yourself, Shane, but about making the world more respectful of and good-natured toward alla God's chilluns, no matter how they roll.
Still, what's great about this book is it's not a rant. He's not on a soapbox (I guess soapboxes used to be big, or something). His candor is startling and refreshing. His humor is fresh and infectious. Yes, I did laugh out loud multiple times. But in some ways this is actually a very deep and serious book. At least to me. Maybe that's because I'm not a teen anymore.
So power to Shane! Read his book! Recommend his book! Give it as a gift this holiday season! Your friends will thank you. Maybe Shane himself will thank you. He seems like that kind of guy.
Even if he never did post a blurb for MY book.
May 17, 2019
I was a bit disappointed in this book for a couple of reasons. First off, the lengths Shane goes to to separate himself from the mentally disabled people he is sometimes grouped with (on the short bus or in adaptive sports programs). On the one hand I understand this, as someone who grew up with visible birth defects, I’ve felt the blow of being treated as mentally less-than by people who assume my physical differences equate to mental differences. I spent most of my school years staying as far away from other special-needs kids as possible, so as not to be associated with “them”. I get that. But as an adult I realize that that mentality is ignorant and immature. We are all who/what we are by the luck of the draw. One tweak to our DNA and any of us could have been that kid drooling on himself on the special bus. I think as a person with severe physical disabilities, Shane could be a LOT more empathetic to other disabled people.
I also had some issues with the tone of the book. Again, I felt like Shane comes off as pretty cocky and the bathroom humor is a bit much. I’m all for a good poop and fart joke here and there but there is a limit. I know he was like, 22 or whatever when he wrote it, so perhaps that is a big factor.
I listened to the audiobook and the narrators voice was weird. Since I’d seen Shane’s YouTube videos prior to reading the book, I knew what his voice sounded like. I’m sure narrating himself would have been too taxing, but they could have gotten someone younger and with a voice that matched the tone of the book. It just didn’t match.
Overall, I enjoyed the book because I was really interested to know what life is like for someone with SMA. He definitely puts a positive spin on things and is able to find humor in all the shitty situations he’s been through. I appreciate that and I did find it interesting and compelling, despite the fact that he kind of comes off as a jerk at times.
I also had some issues with the tone of the book. Again, I felt like Shane comes off as pretty cocky and the bathroom humor is a bit much. I’m all for a good poop and fart joke here and there but there is a limit. I know he was like, 22 or whatever when he wrote it, so perhaps that is a big factor.
I listened to the audiobook and the narrators voice was weird. Since I’d seen Shane’s YouTube videos prior to reading the book, I knew what his voice sounded like. I’m sure narrating himself would have been too taxing, but they could have gotten someone younger and with a voice that matched the tone of the book. It just didn’t match.
Overall, I enjoyed the book because I was really interested to know what life is like for someone with SMA. He definitely puts a positive spin on things and is able to find humor in all the shitty situations he’s been through. I appreciate that and I did find it interesting and compelling, despite the fact that he kind of comes off as a jerk at times.
August 1, 2023
“Life is still fucking awesome. Every single one of us has problems. That’s part of being alive. The beauty begins when you connect with other people and realize we’re all in the same boat. Once we accept that life is inherently difficult, we can move on and focus on having a good time despite the tough stuff.”
This book was funny and I loved the theme of making the best of life despite the challenges. However, I really disliked the insensitive way that the author spoke about other people with disabilities.
This book was funny and I loved the theme of making the best of life despite the challenges. However, I really disliked the insensitive way that the author spoke about other people with disabilities.
March 5, 2023
DNF'd at 60%. I feel really weird rating this so low, as I was a big fan of Shane and Hannah's youtube channel and have been watching from the start. I genuinely always thought they both seemed really cool and like great people, but there was a lot in here that really upset me. Like, on a deep level.
First, I'll say that I get that this was written 9 years ago and Shane is probably not the same person he was 9 years ago. However there is casual racism, an in-depth disdain (sometimes even hatred) towards other disabled people, a lot of sexism, and more than one chapter actively mocking people with mental disabilities. It feels like someone who is desperately trying to go "See?? I'm not weird and stupid like these other disabled people". A lot of it come across as incredibly condescending, like he sees others as below him, whilst preaching equal treatment.
I tapped out after the chapter about him and his friend manipulating a girl on chatroulette to show them her breasts, using Shane as a bargaining chip. Shane tries his best to look mentally disabled so that his friend can tell her how it would make his sad life if he could just see her breasts, etc. And they succeed. He describes how he did a good job looking mentally disabled cause he really knows how to look "deranged". This is just disgusting. On so many levels. Like, teens are messy and fuck up a lot... I was a VERY messed up mentally ill teen but even I can't imagine my teen self doing something like this.
I think I'm going to unsubscribe, now that I've really sat here and thought about it. I don't know how he can proudly still talk about his book when it comes up, whilst also preaching equality on his youtube channel. I've been a fan for years. What a sad day.
First, I'll say that I get that this was written 9 years ago and Shane is probably not the same person he was 9 years ago. However there is casual racism, an in-depth disdain (sometimes even hatred) towards other disabled people, a lot of sexism, and more than one chapter actively mocking people with mental disabilities. It feels like someone who is desperately trying to go "See?? I'm not weird and stupid like these other disabled people". A lot of it come across as incredibly condescending, like he sees others as below him, whilst preaching equal treatment.
I tapped out after the chapter about him and his friend manipulating a girl on chatroulette to show them her breasts, using Shane as a bargaining chip. Shane tries his best to look mentally disabled so that his friend can tell her how it would make his sad life if he could just see her breasts, etc. And they succeed. He describes how he did a good job looking mentally disabled cause he really knows how to look "deranged". This is just disgusting. On so many levels. Like, teens are messy and fuck up a lot... I was a VERY messed up mentally ill teen but even I can't imagine my teen self doing something like this.
I think I'm going to unsubscribe, now that I've really sat here and thought about it. I don't know how he can proudly still talk about his book when it comes up, whilst also preaching equality on his youtube channel. I've been a fan for years. What a sad day.
December 5, 2014
I was pleased to be a good reads first reads winner of the book "Laughing at My Nightmare" by Shane Burcaw. I have an "ARC" copy of this book. I am amazed at Shane. He was born with Spinal Muscular Atrophy. one of the Muscular Dystrophy. He was 21 when he wrote this book a year ago. Shane has a wonderful sense of humor that shows in this memoir. He has dealt with a lot his whole life. spent most of it in a wheel chair. SMA is a vicious neurological diagnosis that slowly attacks the muscles. it makes his muscles weaker every year. I was impressed with Shane's honesty about dealing with SMA.Yet he rarely feels sympathy for himself.he does not want other people's pity either. Instead has this outlook at his situation with a a sense of humor. this is why he calls his book "Laughing at my Nightmare" Shane shares with the readers, going to school, even going to college. Some bad situations such as broken bones. being rushed to the hospital when he could not breath. I am looking forward to visiting his website. I was so glad I got the chance to read his book. A big thumbs up to this inspirational book.
August 1, 2016
At first I felt kind of bad even wanting to read this book, because I didn't want to be disrespectful of anyone who deals with challenges that I can't even imagine, but once I started, I had a hard time stopping reading it! His voice is so strong and funny and insightful, and guess what...he is sharing it with us. He is a typical young man, with a heavy dose of muscular dystrophy, that is positive and fun-loving. He cusses, masturbates, falls in love, shares his experiences as a young man and one who is considered "other." I literally laughed out loud and then got misty-eyed. This is a must read for all therapists and teachers, in my opinion. Everyone can wait for their copy next. I am very interested in following his blog now...just as a person of age I will need to figure that out first. His parents and family are amazing too. Thank you Shane!
November 12, 2014
Laughing at my Nightmare by Shane Burcaw is a first reads win and I'm giving my honest opinion. Shane also has a blot with the same name as the title of the book. He has a form of muscular dystrophy. He's been in a wheelchair since he was three. This book tells of his attempts to live a normal life. Sometimes it works out, other times not so good. He had me laughing in parts but in tears at his frustrations at other times. I highly recommend this book.
November 30, 2014
This book stayed with me for a long time after I finished. Imagine a memoir by a regular teenage boy. He wants girls, he thinks about sex and other bodily functions, he hangs out with his friends. Now add a degenerative muscular disease, one he has essentially had for his entire life. Burcaw is inspirational in the most unsappy way possible and you WILL become invested in his story and life.
December 14, 2016
I wish I could give this book 6 stars! I have always wondered what people with disabilities that confine them to a wheelchair think and do. This book gave a great insight to what Shane goes through everyday. Shane lives with Spinal Muscular Atrophy and explain everything thing he has to do to make his life as normal as could be. But why would he want to be normal when he could change lives? Shane is able to talk to people and change their lives one blog post at a time!
February 12, 2015
A self deprecating humorous, excruciatingly honest story of a young man's life with spinal muscular atrophy. In my continued befuddlement about why one book and not another is labelled YA, I think this is a book for everyone.
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