We are looking for Sponsors 👀 🗓️ Friday 18th October 2024 we will be hosting our first Golf Day in Barnet, North London. But we need your help. Can you or your worksplace… ⛳️ Sponsor a Hole 💷 £250 fee 🪧 Have your name/organisation on a plague at the hole for all to see To sponsor, please click the link below. More information on the event to follow 🧡 https://lnkd.in/eCZWrU_Q
About us
We are a UK registered charity (1201650) focus on supporting families with Angelman Syndrome, funding research and providing opportunities for physical activity for the Angelman community. Angelman Syndrome (AS) is a rare neurogenetic condition affecting around 1 in 15,000 people, about 500,000 in the world. It affects the nervous system causing severe physical and learning disabilities, little or no speech and issues with movement and balance. A person with Angelman will have near normal life expectancy, but they will require support throughout their life. AS is caused by one of several different types of disruptions of a region of Chromosome 15, all involving a single gene, UBE3A. AS was given its name by a British paediatrician, Harry Angelman, who first identified it in 1965. At first, little was known of the disorder and few other cases were identified. During the 1980s advances in genetic medicine made it possible to diagnose increasing numbers of cases and also to start identifying the cause. The name Angelman Syndrome was adopted in 1982. Most children with Angelman will be able to communicate using gestures, signs or other systems and may have a few words. They have difficulty walking because of poor balance and co-ordination. Seizures, feeding difficulties and poor sleep patterns are all a common feature of Angelman. The most endearing feature though, is their frequent smiling and laughing.
- Website
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https://spreadyourwingsuk.com
External link for Spread Your Wings UK
- Industry
- Non-profit Organizations
- Company size
- 1 employee
- Headquarters
- London
- Type
- Nonprofit
- Founded
- 2022
Locations
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Primary
Get directions
London , GB
Employees at Spread Your Wings UK
Updates
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🌟Celebrating this Angels Acheivement… Meet Hudson, he’s 3.5 years old and has been having physio every 2-3 weeks since he was 18 months old. He has a walker, which has really helped with his progression. But this week he took his first independent steps 👏🏼👏🏼👏🏼 He’s one determined little boy…keep going Hudson 🧡
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We’re thrilled to be nominated for the Community Organisation Award for Disability! 🌟 Please show your support and vote for us by clicking the link below. Thank you so much for your support! 🙏 #VoteForUs #CommunityAwards https://lnkd.in/epRVu2UP
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💙 LEO’S WALKING JOURNEY It’s been a long, hard and often emotional journey, and whilst Leo still needs support it’s clear he’s making progress! From leg gaiters, standing frames, harnesses and now his new supportive walker…Leo is finally getting more grounded and using weight through his legs and feet. 💭 His determination and resilience are the fuel that keeps him, and us, focused on the goals despite the challenges! Watch till the end…👀🧡 #inspiration #determination #resilience #thisboy #learningtowalk #angelmansyndromeawareness #riftonpacer #gaitertrainer
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Follow the link to read our bio and find out why you should vote for Spread Your Wings UK
We are so honoured to be nominated for the National Diversity Awards 2024. Please take a minute to support and vote for Spread Your Wings! https://lnkd.in/epRVu2UP Spread Your Wings is in the Community Organisation Award for Disability category. Please do spread the word and share this link. Thank you in advance. 🧡🧡🧡
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We are so honoured to be nominated for the National Diversity Awards 2024. Please take a minute to support and vote for Spread Your Wings! https://lnkd.in/epRVu2UP Spread Your Wings is in the Community Organisation Award for Disability category. Please do spread the word and share this link. Thank you in advance. 🧡🧡🧡
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The Safety Sleeper 💤 We are so happy that Leo finally has a safe, secure and comfortable bed! Meaning we too can finally sleep knowing that he is not going to climb out of his cot and hurt himself. After a long battle with the services to help provide him with a safe sleeping space at night (that wasn’t just a mattress on the floor) they finally agreed to get The Safety Sleeper for us. For anyone looking for a safe space at night, we would definitely recommend looking at this option. It comes in a lovely 4-wheel suitcase, with a very easy set up. It has an air-mattress which is perfect for travelling and additional coverlets to protect your mattress. All zips are secured from the outside, it has breathable netting and can either sit on the floor or be secured onto a bed frame. Perfect for at home use and travel, associating the space with SLEEP! At the moment we have positioned the bed on the floor to try and help Leo transition himself in and out of the bed. This is great for his development and he already knows how to pull himself up into bed. As you can see, he loves it and so do we! We used @murrays.ie so check them out if you’re looking. Here’s to a great nights sleep….🤞🏼 #thesafetysleeper #safesleep #sleep #safeandsecure #angelmansyndrome
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HOLLYWOOD CALLING 🎥 We are soooo excited to share with you a special video from the amazingly talented actor, Colin Farrell 💙 When this landed in our inbox, we couldn’t believe it! For those of you who don’t know, Colin also has a son with Angelman Syndrome. Since James was diagnosed, Colin has been a massive advocate for AS. “The struggles of a child with special needs can be so brutal that they can tear at the very fabric of your heart, but the love shared and the pure strength and heroism observed is the needle and thread that mends all tears,” - _Colin_ Thank you so much for the beautiful message, we truly appreciate it and hope that one day Leo can meet Colin and James 🧡
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🪩 A special birthday message from the lovely Vito Coppola - Winner of Strictly Come Dancing 2023 We really appreciate all that you have done for us and look forward to seeing you soon 🧡 In the meantime…We’ll Keep Dancing 🕺🏻 #specialbirthday #birthdaymessage #strictlycomedancing