🎉 EXCITING NEWS! 🎉 We have received an amazing £20,000 donation from The National Lottery Community Fund to continue our counselling sessions for over the next 2 years!!! For more information about these sessions please visit our website https://lnkd.in/eaUgxB6N and sign up!!
PTEN UK & Ireland Patient Group
Hospitals and Health Care
London, England 106 followers
Improving the lives of PTEN patients in the UK & Ireland
About us
A patient group set up to improve the lives of patients, parents and carers of all ages, in the United Kingdom and Ireland, who are affected by PTEN genetic alterations, PTEN Hamartoma Tumour Syndrome (PHTS), Cowden Syndrome (CS), or Bannayan-Riley-Ruvalcaba Syndrome (BRRS) through better patient support, increased awareness, more accurate and accessible information, earlier diagnosis and intervention, greater research into treatment and prevention, and improved coordination of care.
- Website
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http://www.ptenuki.org
External link for PTEN UK & Ireland Patient Group
- Industry
- Hospitals and Health Care
- Company size
- 2-10 employees
- Headquarters
- London, England
- Type
- Nonprofit
- Founded
- 2017
- Specialties
- Patient Support
Locations
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Primary
Bishopsgate
London, England, GB
Employees at PTEN UK & Ireland Patient Group
Updates
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Join us TODAY for our next PTEN Power Hour! Sign up NOW and to hear from a leading PTEN researcher - Dr Priyanka Tibarewal! Learn about all things PTEN - you won't want to miss it! https://buff.ly/3KzxemK
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Just under a week left until our next PTEN Power Hour! Sign up today and to hear from a leading PTEN researcher - Dr Priyanka Tibarewal! Learn about all things PTEN - you won't want to miss it! https://buff.ly/3KzxemK
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PLAY OUR LOTTO TODAY & WIN BIG! The next draw is TOMORROW! We've had 30 people sign up already!! Can we make it to 50?! Each ticket will consist of 6 numbers and each number will be between 0 and 9. Match all 6 and you win the top prize of £25,000! Each ticket costs £1 per week. You can buy more than one ticket for each draw. At least 50p from every £1 ticket you buy will come back to PTENUKI! More information can be found on our about us page. BUY TICKETS NOW - https://buff.ly/4be14Zn
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One week left until our next PTEN Power Hour! Sign up today and to hear from a leading PTEN researcher - Dr Priyanka Tibarewal! Learn about all things PTEN - you won't want to miss it! https://buff.ly/3KzxemK
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Join the fun with our charity run!! There are lots of activities you can take part in this month for our charity! If not running but you prefer an adrenaline rush then a bungee jump could be for you. Please check out our run for charity page for more information: https://buff.ly/3tV99Bt We hope you feel inspired to take part in an event and raise money for our charity and contribute towards improving the lives of patients, parents and carers with PTEN!
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PLAY OUR LOTTO TODAY & WIN BIG! The next draw is TOMORROW! One Lottery is an exciting weekly lottery that raises money for small groups, clubs and charities. Play the lottery and support our good cause - it’s that simple! Each ticket will consist of 6 numbers and each number will be between 0 and 9. There will be a draw every Saturday night when a 6 digit winning combination will be picked. Match all 6 and you win the top prize of £25,000! Each ticket costs £1 per week. You can buy more than one ticket for each draw. At least 50p from every £1 ticket you buy will come back to PTENUKI! More information can be found on our about us page. The remainder is spent on prizes and the administration of the lottery. BUY TICKETS NOW - https://buff.ly/4be14Zn
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Join us for our next PTEN POWER HOUR with Dr. Tibarewal! This is a unique opportunity to learn all about the PTEN gene from a leading expert in the field and stay informed about the latest developments! Don't miss out on this informative session to broaden your knowledge about PTEN. Register now to secure your spot! https://buff.ly/3KzxemK
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PLAY OUR LOTTO TODAY & WIN BIG! The next draw is TOMORROW! One Lottery is an exciting weekly lottery that raises money for small groups, clubs and charities. Play the lottery and support our good cause - it’s that simple! Each ticket will consist of 6 numbers and each number will be between 0 and 9. There will be a draw every Saturday night when a 6 digit winning combination will be picked. Match all 6 and you win the top prize of £25,000! Each ticket costs £1 per week. You can buy more than one ticket for each draw. At least 50p from every £1 ticket you buy will come back to PTENUKI! More information can be found on our about us page. The remainder is spent on prizes and the administration of the lottery. BUY TICKETS NOW - https://buff.ly/4be14Zn
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EXCITING NEWS: WE HAVE LAUNCHED A LOTTERY! PLAY TODAY & WIN BIG! One Lottery is an exciting weekly lottery that raises money for small groups, clubs and charities. Play the lottery and support our good cause - it’s that simple! Each ticket will consist of 6 numbers and each number will be between 0 and 9. There will be a draw every Saturday night when a 6 digit winning combination will be picked. Match all 6 and you win the top prize of £25,000! Each ticket costs £1 per week. You can buy more than one ticket for each draw. At least 50p from every £1 ticket you buy will come back to PTENUKI! More information can be found on our about us page. The remainder is spent on prizes and the administration of the lottery. BUY TICKETS NOW - https://buff.ly/4be14Zn
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