DEBRA UK

Team DEBRA are back with a new challenge! 🏊♂️ 🚴♂️ If you missed BBC Breakfast this morning, that's right! This September, the team are back with another epic challenge to ‘BE the difference for EB.’ This time they're pushing themselves even further, swimming the English Channel there and back, and then cycling the 85 miles from Dover to London! "It’s going to be tough for sure. I’m not sure whether I can physically do the swim as I still haven’t recovered from my shoulder surgery earlier in the year, but I’ll give it my best shot. If I can’t swim, I’ll ride, I’ll do whatever I can, I have to. We need everyone to play their part to BE the difference for EB. Along the way I’ll be thinking of my friend Isla and the thousands of other children and adults who are living with the pain of EB right now. We can make a difference to their lives today and tomorrow." – DEBRA UK Vice-President, Graeme Souness Please donate today and BE the difference for EB: bit.ly/4fgIQc6

THANK YOU 💙 It's been a busy week for Graeme and Isla after their BBC Breakfast interview on Tuesday but one thing has kept them going - the incredible support they’ve received! So far you've helped us raise over £60,000 to help families living with this cruel condition. Whether you've donated, visited one of our stores, signed up to fundraise, sent a message of support, shared our social media posts, or more, every action takes us one step closer to a world where no one suffers with the pain of EB. Please continue to spread the word about Graeme and Isla's story and help us reach our target: bit.ly/4fgIQc6

"This disease is a living nightmare." Today our Vice-President Graeme Souness and 16 year old Isla Grist, who lives with the painful genetic skin blistering condition, epidermolysis bullosa (EB), were invited onto ITV News to talk about EB and the epic challenge Graeme and Team DEBRA will be taking on in September. With your support, DEBRA UK can continue to invest in research to find effective drug treatments for every type of EB, as well as providing an enhanced programme of EB community support. Please donate today and BE the difference for EB: bit.ly/4fgIQc6

"There's no rest. It's literally 24/7 every day." Did you watch Graeme Souness and 16-year-old Isla Grist on BBC Breakfast this morning? Isla spoke about the relentless excruciating pain and itch that her, and others living with the genetic skin blistering condition, EB, go through on a daily basis. With your support, DEBRA UK can continue to invest in research to find effective drug treatments for every type of EB, as well as providing an enhanced programme of EB community support. Please donate today and BE the difference for EB: bit.ly/4fgIQc6 #BBCBreakfast #GraemeSouness #EpidermolysisBullosa #EBResearch

They're back with an even bigger challenge! We have many opportunities for corporate partners to get involved, please message me if you're interested.

Welcome to the team Scott Brown! 👏 "To see what these families go through day to day, how mums and dads can hardly even give their children a cuddle, is heartbreaking, and so if I can help someone else’s child by putting a smile on their face or doing something to bring money into the charity or raise awareness, every little bit helps. I am delighted to be an ambassador for DEBRA UK, and I will do whatever I can to BE the difference for EB." Read more! 👇

⏰ Set your reminders! Graeme and Isla will be back on the BBC Breakfast sofa tomorrow (Tuesday 23rd July) after 8am with some big news! Any guesses what they’ll be announcing? Please tune in via BBC, BBC Breakfast or the iPlayer, and spread the word to your friends and family to help us raise as much awareness as possible.

🔬 Research highlight: wellbeing toolkit for all EB parents 🔬 Led by Prof Andrew Thompson, this project aims to develop a self-help toolkit to support wellbeing in parents of children with EB. "The project will fill an important gap in psychological support resources and aims to provide parents of children with EB a set of therapeutic techniques to manage the stresses associated with providing care for a child with a chronic and life-long skin condition." Read more about the project! 👇

These sporting stars have got their raffle tickets, have you?! 🎟 A big thank you to Matthew Hoggard, Rob Lee, David Hirst and John Beresford for supporting our raffle for the chance to WIN Car SOS Tim Shaw's very own 1998 BMW E36 M3 Evolution Convertible! You can enter the draw for just £5 per ticket, with all proceeds going towards supporting families living with the painful genetic skin blistering condition, EB. 👉 Get your tickets today: bit.ly/4dQlkC3 #CarSOS #TimShaw Paul Glover Martyn Rowley

Congratulations to The Landmark London on their 125th Anniversary! 👏 We're very grateful for everything The Landmark London team do to help raise awareness and funds for families living with EB 💙 🦋