Bringing together patients, physicians, and researchers to improve the lives of those affected by these rare disorders
![Research Studies](https://cdn.statically.io/img/rdcrn.org/sites/default/files/styles/large/public/2022-02/Intersection%2047.png?itok=7NV9AF0q)
Join One of Our Research Studies
Research offers no guarantees, but discoveries cannot be made without your help. Every active role a patient takes is one step closer to finding new treatments.
Find a StudyRare Research Report: June 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
Primary Ciliary Dyskinesia Over Time: What We’re Learning from Natural History Studies
Stephanie D. Davis, MD, and Thomas Ferkol, MD, share more about this study, while PCD family member Tori Eastvold shares what it’s like to participate.
![Primary Ciliary Dyskinesia Over Time: What We’re Learning from Natural History Studies](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-03/RDCRN_Roundup-GDMCC_0.jpg)
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
![Flyer advertising the survey appearing on a laptop screen.](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-02/RDPatientSurvey_image.jpg)